I've just returned from having a scan and the radioligist said that she saw a kink in my ureter. i had the scan because for years i have suffered constant kidney infections (i take antibiotics every day to fend them off but often they break through and i end up hospitalized for iv antibiotics and pain relief). the kink presented only on the right side and the radioligist seemed to think that the kink wasn't that severe.
the surgeon i have been seeing for years doesn't seem to know what the problem is. my symptoms are not only the kidney infections but when i lie down i need to urinate very frequently (this doesn't occur when i'm standing) some nights i need to pass urine up to 60 times a night and at the very least on a good night i'll go just 15 or so times.
i'm having an mri scan soon but at least feel finally relieved that they have found some problem that can hopefully be rectified.
is there any one out there that has similar problems or anyone who could shed some light on to mine. i'm feeling totally frustrated and confused!
Hi Marie i feel your pain. My 15 year old son was suffering with pains since he was 8 years old.Doctors couldn't have diagnosed his problem and we found ourselves just using pain reliever. I took him eventually to a doctor,he did the ct scan and the doctor found that the renal tube was dilated. We were referred to a urologist , the fluid was drained, eventually the doctor notice a kink. The next thing we have to do is the surgery to corrrect the kink in the ureter. Its a painful processs but in the end the surgery is worth doing.
thanks for that reply! have you or anyone got any idea how it can be rectified?
Depending on the degree of the kink, unfortunately the only way to fix it is surgery. If it is obstructing your kidney to the point that you are in pain or have hydronephrosis.
Some doctors will not do anything until it becomes moderate to severe or severe.
Feel free to pm me...I've been through this more than once.
thanks you've helped a lot! i've been in pain with this condition for over 20 years now. i feel so fed up to think a simple scan could have diagnosed things years ago especially as the kidney infections have hospitalized me on many occassions. many years ago i even lost 9 pregnancies because the infections used to get so severe they'd cause misscarriages.
at present the pain is with me all the time and i have a general feeling of being weak and unwell. my surgeon until now has just scratched his head and hasn't known what to do so quite honestly i wouldn't care if they ripped it out with hteir bear hands as long as i eventually experience some relief.
what worries me though is that the radiologist said she she the kink and some dialation in my right kidney but in her opinion those things shouldn't cause the problems i have??? my last stay in hospital was last month for 6 days where i was on morphine so the symptoms are fairly unpleasant and the pain when in full flow excrutiating!!
next stop an mri scan which i suppose will make the picture even clearer.
do you or have you suffered from a similair thing and how was your treatment plan?
i'e got a feeling that in terms of kidneys the doctors are just guessing their diagnosis half the time in the hope that it'll go away eventually!!!
I had surgery to correct mine. Do you see a urologist? If not you should think about seeing one as they are the ones who will determine the degree of the kink.
Another test they run is a lasix renal scan to check the flow of the kidneys.
I hope you feel better soon..
yes i've been seeing a urologist for some years now and he's done numerous tests but had never done the scan before (unbelievable!) although i had the one when they put the dye in you many years ago. is the operation quite a big one or a simple procedure?
as i posted before i'm having an mri scan soon so that should show things up a bit clearer!
thanks for all your support so far it's been a real help!!
The surgery depends on the degree of the obstruction. There's a newer procedure called endoplyotmy, it's preferred for first time surgery on UPJ obstructions. This is a laser type procedure versus an open repair with an incision on your side about 5-6 inches long.
My last operation was over six hours. Don't let that scare you, everyone is different. I also have a kidney disease so it made things a bit more complicated for me.
Please keep me posted and feel free to pm me anytime.
I had UPJ obstruction on my left kidney. As serenity says, everyone is different. I had a pyloplasty which is plastic surgery on your kidney. I went to a urologist who was able to diagnose it with a renal scan and cystoscopy. If you have any questions please ask. I wish you good luck with your MRI.
Things are not looking much clearer!! Have just had another 5 day hospital stay because of an acute kidny infection again (thats 3 in the last 7 mths that have needed me tobe hospitalized) The doctors are now saying despite what the radiologist noticed the radiographer thinks there isn't a kink in my ureter and the main thing that showed upin my scan was a dilated right kidney.As for the MRI that just showed scarring again on my right kidney so they're left a bit confused as to what the problem is!!! I'm left feeling really fed up!! Whilst in hospital I had a renogram which looked at how well the kidneys were working but as yet I haven't had the results back.I just feellike nothing getting done to resolve my problems, everytime I'm admitted they do 1 more test that invariably shows non conclusive results and then I'm left with them calling me an enigma until the next time I'm admitted!!! Can any one suggest anything I can ask them to do or has anyone been through the same as me?? Yhis has been goingon for 20+ years now and it's really getting me down!!!
I'm not sure if you are still suffering without answers, but I have also been told that I have a kink in my rigt ureter as well as kidney stones in both kidneys, a cyst in my left kidney and a cyst in my liver dome. The only advice that I can give you is find a good teaching hospital close to you and set up an appointment with their urologist. Although my troubles have just started and aren't severe, we have had a time with my Dad since last August concerning staph infections, strokes and heart problems. We transferred him from our local hospital to WFU Baptist hospital in Winston Salem, NC and they saved his life with open heart surgery. After almost a year of other problems we finally realized that Baptist had done all they were going to do. So as my dad started to go down hill again we have now transferred him to Duke in Durham, NC. They ran some test (that WFU had also run earlier) and realized that my dad's heart is back in AFIB so he has to have an ablation done. The thing is that after awhile you become another patient at the back of the doctors mind. Most doctors lay down a gameplan the first time they hear your symptoms and if those don't pan out sometimes the urgency of your situation fades in their mind. The teaching hospitals are so cool because it isn't just 1 or 2 doctors looking over your chart, it's a team of like 7 or 8 people discussing your symptoms and throwing out ideas. Long story short is we drive my dad 3 hours 1 way to see his cardiologist and as long as they continue to do the great job that they are doing and cure him we will continue. If however we feel that they no longer have a clue what to do with him then we will move on to another doctor in another state if necessary, because someone will eventually get lucky and find the answer. Good luck to you!
Thanks for the message!! Fortuneatly I ended up being referred to another surgeon April just passed and he decided that altough there was no clear reason why I had this condition the decision was made to remove the kidney and ureter which happened soon after in June!!! I am now after all these years finally pain free and feeling great!!! I go back in October to have an updated appointment to speak to the surgeon and hopefully then I will get the resullts of the pathology reports that were done on the kidney (that should be interesting!!!)
Hey marie! I've been having consistent UTI's and kidney stones for the past 10 years of my life. Seeing that I'm 18, that's most of my life. I just found out today that I indeed have a kink in my right ureter. My surgery date is in a little over a month, but I'm relieved to know now what the cause was to all of my pain. Hopefully they don't have to remove my entire kidney and ureter...I've got my fingers crossed. I'm just glad that I'm not the only one
Hi marie I have had the exact same problem its on my right hand side of my kidney it seems to be thats where you usually get the kink. I have had the kink before but due to my last several operations the kink has disapeared?! but has now returned after a recent visit to hospital for a ultra sound scan of my ovaries, kidneys and showed up I have a collapsed uretha tube and a huge kink in my ureter. I am having an operation next month and am going to get a pre med on tuesday. I think its just a weakness we have but I think once you have it done it gets weakened over a period of time been corrected. Hey does anyone ever have any fluid dischrage at all when you go to the toilet? I dont know anyone has had that? I dont know if that is too do with my kidneys I get reflux a lot. look forward to hearing back from anyone x
I was 6 months pregnant when an ultrasound showed that my baby had a little more fluid on his left kidney i then went to fetal assessments 3 times a week .5being nthe range of normal , his was an 8 a little above normal it remained that way till he was born he got all the tests vcug ultrasound and urine samples, he is now 4 months, and i am worried he urinates so frequently and the smelll being so strong and cries like he is in so much pain, which the dr. said its not painful and in time he will grow out of it he is on antibiotics, i am very concerned any advise you cann give to ease my mind thanks
I am 19 and i have frequent uti infections i got a ultrsound done and they told me i have a kink on my right side as well and the only thing they have done is put me on medication for two months so i won't get another uti and they told me not to worry about the kink but i get alot of back pain on my right side and i have seen a urologist and he was the one that put me on the medication and told me not to worry about the kink should i go to another dr..i dont know wat to do
I am 16 years old and back in May 2009 I had surgery to remove a kidney stone from my right kidney. Before the surgery they told me that I had a stone in my left kidney as well, but it was so small I would just pass it on my own. A week after my surgery I started having back pain on both sides, and I've had it every day for the past 2 years almost. I'm not sure what causes it. I have numerous kidney stones, and I've just started passing them on my own. (Last was over Christmas break. My urologist told me that I have Tubular ectasia, which means that my tubes are larger than normal, so it's not very painful when I pass a stone, so that's why I never have blood in my urine, but the pain is getting worse and it's frustrating.
I went to my pediatrician yesterday and he told me I may have a kink in my ureter(s). I'm going to see a new urologist soon to comfirm whether that's my problem or not, but I was wondering if I could have more information on the surgery to correct it. Could anyone help me out?
hi, im 19 and i have been getting kidney infections at least every 2 months for as long as i can remember. My abdomen is sore to press on my right hand side and i have all the symptoms of a uti but the pain is unbearable. i mostly spend my time standing because i find it worse wen i lie down. my gp is doing tests and an ultra sound, he said himself that he thinks i could have a kink in urethra or that i may have an extra duct coming from my one of my kidneys. can anyone please shed some light on my situation and tel me what does this mean and what will happen post surgery. I am fine with having surgery as long as its dealt with but unfortunately i have a medical card so the government pay for my medical care so that leaves me at the bottom of the list so it will be months before i have answers. If an yone can help please do as i am at my wits end. Thanks
Has anyone every had intermittent kinking and if so what was done about it? I have it on my left ureter and it is very painful. The urologist says that because it is intermittent, he doesn't want to do surgery.
I have a slight kink in my right ureter and every doctor I've seen tells me not to worry about it, to take painkillers and get over it. But, last night, I took some painkillers and they actually escalated the pain by 50%, which was excruciating. I was shaking from the pain, but eventually it passed (5 hours later).
I've only begun to get this pain a month ago (I've had this pain previously, three years ago with kidney infection... But I did not get a UTI or bladder infection first, which stumped doctors).
Has anyone resolved their problem? I'm being very forward about this with doctors, considering this pain is very annoying and no doctor believes me at all.
I will definitely come back and post if my problem had been resolved and the process.