You can get on the medical treadmill to nowheres-ville,
or, perhaps......SEE my most recent thread. It is at the top of the list

of things to PRESS your doctor to try. The drug and its cousins are already
in the s-l-o-w grist mill of the medico/federal funds, controlled studies.
You might wait for ten years to hear from them of some sort of mixed results,

or maybe, just maybe, you could be 'well' tomorrow, using a drug that costs less than
$25 per month and requires no extensive medicine show monitorings.

I do not like too many doctors---some are great. Some are heartless by-the-book dullards.

I am not a doctor. I am a human who used to have all those symptoms you just described,
plus many more: SLE arthritis, chronic, debilitating fatigue, fevers of unexplainable cause,
ever-elevating high blood pressure, facial rash since age 18....and only last year did I put the puzzle parts togetheron my own: it is what they lump-name, "SLE". And =they= don't know a damn thing about what or why this condition happens.
ALL the auto-immune "diseases" seem to be, at root, related.


hth,

Reid, "cured", healthy!

Thanks, I will look. I'm in the UK by the way. I am off work today with a headache and fever, and the only thing which has helped is going to bed and sleeping. I thought it was flu (but I don't have a cough/sore throat/cold) so maybe this is part of the SLE? Funny thing is, my joints are not aching at all today; first time in ages! Sarojini

Since others are reading this thread, I must reiterate for newcomers:
this -idea- that diazepam works, fixes, stops "SLE" cold, is -true in my case only at this time-.

Pardon capped words to come?

Diazepam MAY fix you up. It may do nothing. We only know that it has given me back my life, completely! For how long, I do not know. Perhaps for decades (?) to come.
---
Now to your "case": this disorder is like a rainbow spectrum, sunny to dark, all colors, rain, shine, good days or months, then strange things: extreme fatigue is common.
Joint pain: here, then there, then gone...for a while. For a time I called myself "Gimpy".
That hip joint, one side or the other (never both at the same time) would go lame, painful.

Flu-like feeling? TIRED, want to sleep, no energy at all, but -no flu symptoms, no fever?
I had that. Fevers? I had days of successively higher fevers, four days in a row; the highest fever: 104.3F. Then it would break (the fever would break) and I was OK but drained of energy.

Joints: may ache one day, but not the next. Over the years, I found the joint (arthritic like) pain to be more general in my fingers and toes. My toes are crooked, deformed;
all typical of the "SLE" (it's just your immune system awry) going after what it seems to think is a problem area.

I have never had a cough, no lung involvement. But as said this "condition" is a spectrum of results, as gentle as "I'm tired today; I don't feel like going out.", to "OH DEAR GOD SAVE ME" horrible.

Good days become fewer as the years go by. Some die in five years.
Others live full lifespans, never getting much worse beyond some particular point.

It is an amazing wonder, the immune system. It is amazing how it keeps us all alive.

Hope? Benefits of SLE? So far as I've heard, SLE people do not often get cancer.
And they don't get HIV!

I, for instance, am a homosexual (celibate these days). But, in my youth, I sowed my oats with at least three hundred different gay males. It was a time. AIDS was just on the horizon. We kept up our promiscuous sex, anyway.

ALL the guys that I knew from that era, that I once would see and wave hello too: nearly ALL of them are long since dead.

I had a physical exam with full work up one month ago.
ana=20. HIV? NONE, negative!

If anyone should have caught the HIV virus, it should have been me.

In a philosophical way, then, perhaps "SLE" actually saved my little life!

To close: relax, avoid worry and mental stress; yet, these luxuries may not be enough to prevent the usually inexorble =strengthening= of our SLE-peoples' immune systems.

It is a topsy-turvy thing, for sure! NORMAL people see their immune systems weaken with age.

SLE people? They see the opposite!

To live long and happily, this incredibly complex, not-understood balance of powers must be held in reasonable check.

I hope, hope, hope, that diazepam may at least serve as an excellent adjunct tool against our strange troubles.

For me, it is my salvation. I am writing on 30m of diazepam per day.
It does not "tranquilize" me. I ALWAYS blow long and hard as any wind.

Laugh now, I am a blowHARD,

cheers and joys,

Reid