I am wondering if IgA neuropathy is ever misdiagnosed? I have undergone a kidney biopsy and my nephrogolist said that the finding suggest that I may have a proliferative form of IgA Neuropathy. However, he said my kidney function is still normal, and that there is no scaring or fibrosis in my kidney. He said the biopsy showed one crescent formation in the glomeruli they tested, but the others were unremarkable. All of my lab work has always been normal, GFR is normal, and no other apparent symptoms. The symptoms which prompted the biopsy is blood and protein in my urine. My last 24 hr urine test the protein measured 340. I'm extremely stressed out about this diagnosis as I have two very young children (1 & 3 years old), and am worried as to what is going to happen to me. The nephrologist said he has never treated anyone with this, and was unsure as to how to start a course of treatment. Since I have had small amounts of blood and protein for years I'm questioning the diagnosis
Hello, and thank you for your medical question on e Health Forum.
Since you dont have any major symptoms and most of your tests are normal (other than blood and protein in urine), there is no need to get concerned as of now.
The best course of action is to get regular urine tests and kidney function tests every 3 months to 6 months and see if there are any changes.
In case there are no changes and the findings are not clinically significant, then regular follow up and proper control of associated conditions like hypertension might be the only necessary interventions needed.
If during the course, any changes are noted in the tests, specific therapy can be initiated.
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