My son is 11 and also has this eye rolling tic... When he was younger he had other tics that have disappeared over the years. The eye rolling started about a year and a half ago. I can only hope that this one too will go away. I will say though it does not bother my son and he does not even notice it...
My daughter has this. She is nine. I have spoken with her and have noticed it when she watches tv, plays any video games, or is looking at the computer. She says she notices it during computer lab and while watching the smart board at school. She also said her eyes feel dry alot too. This may be due to the excessive rolling. She is very upset and worries someone will notice and make fun of her. She has had this since she was six years old. It will come and go. We always notice it more when we allow her to use anything with a computer/tv screen. We had an MRI done and eye test---with great results. Im not sure what is going on either. It would be great to know!!
My daughter has eye rolling blinking and sucking in her stomach for the past year after a strep infection. I personally think she has PANDAS and FINALLY found a doctor who will start treating her - we did the EEG, had her tested for siezures nothing has come back but a really high titer - and strep infection....everyone on this post should google PANDAS and read about it...if they aren't siezures and they have had strep it probably is PANDAS...and it is on the rise...I am kind of glad to see others in the same boat, because I feel like no one in the medical community will listen to me! She also has complained of her tummy hurting because of the tics...let me know if anyone finds anything else!
I have an 8 year old son who started rolling his eyes uncontrollably. First noticed it about 3 or 4 weeks ago and thought he was being silly. It seemed to stop after a few days. Now it started again. Pediatrician wants him to see a neurologist. I don't know what is going on yet.
My daughter also has these, she is 8yrs. She has seen a neurologist for other movemwnta that mimiced tics. He just dismissed her as normal and.said they would disappear. They change every 8-10 weeks but this eye rolling is new. I would love to hear what the neurologist said for others. This page seems to me that there are an abundance of these cases. Please keep posting I'd you hear anything or if somthing has worked for you. Oh any my daughter does not do much tv I'd video games and is.a.A student so maybe there is a link from something else. Thank you all many blessings Jax
I took my son a neurologist. She has ordered an MRI, an EEG & some blood work. She said that it could just be a tic. If that is the case she said that many kids outgrow them. He does not have any other motor or vocal tics. The neurologist said she can not rule out seizures without the scans. The Dr. wants the blood work because she said sometimes these things can be related to strep infections. I have a very high deductible insurance plan so am trying to figure out how to get all this done (especially at this time of the year!) I will try to keep you posted.
I would be interested to learn if you or you doctor explored the strp infection idea as a way to treat the tic? I have done a lot of research on this too - my 11 year old has had eye rolling for about 9 months now...done alot of tests and he it totally "fine" according to the tests. The latest is that the doctor wants to take out his tonsils and adnoids because they think he may not be getting enough sleep at night, triggering the tics. I want to make sure we have covered all bases so any info you have will be helpful.
my sons tics and eye rolling were form PANDAS which is an immune reaction to strep. please follow up on looking in to strep if your child can be cured with antibiotic treatment would be great. unfortunately not all drs know a lot about it so get a specialist. my child also had tonsils and adenoids out and he is well now. PLEASE LOOK UP PANDAS EVERY ONE ON THIS PAGE
My son is 7 and a half and his eyes just started rolling uncontrollably 3 days ago. I took him to see his Pediatrician who gave me a script to go see a Neurolgist. The next available appointment wasn't until 2 weeks, so I have that long to be worried. This is an old post, but if by just this reply is read, can you let me know what was the outcome with your son.
My son 8yr son was also rolling his eyes out of nowhere for about 3 months. It was like a twitch or something. Our neurologist suggested an EEG & an MRI. Our EEG showed right away that my son was having seizures, which freaked me out! Our MRI results came out normal. So my suggestion to you guys is to please get an EEG also for your child, just to cover all bases.
My sons seizures are unnoticeable to us and him. He was placed on chewable tablets right away. I still can't tell a difference because he stopped rolling his eyes several months ago and he was STILL having the seizures. I'm pretty sure it's called PETIT MAL SEIZURES a form of elipisy. Hopefully he'll out grow it .
My daughter who is 8 had the throat clearing tic for a couple years now eye rolling. Neurologist said she has Tourette's. EEG normal blood normal...may get better after puberty but chances are it will continue through that time and may become more interesting before it subsides about 30'/. chance of it being life long. It is very upsetting as her parent. I am supporting her and ignoring my feelings about it. She is a happy person and that is comforting. I am having a hard time getting support from her school and my husband who are both blaming me on some level for what I am just trying to understand myself. -
- Life is a series of challenges take each one as it comes and remember you have a choice about how you react and live through it...may you all find peace in your challenges. - mom power!
Hang in there santabarbaramom. Find support to help you through.
This has been an interesting site to gain some insight. My 14-year-old son three days ago started having eye rolling, so bad it gave him a headache by the end of the school day. The past two days it has been very infrequent, but in addition on two occasions I have seen his eyes dart to the right and back to center again. Saw pediatrician today, will be seeing eye doctor next, have future appt with neuro. I can't help but wonder if fatigue and some video gaming have something to do with it. He's more the sports type, but this past weekend he had a couple basketball games, stayed up late watching TV, and was playing a new video game on a different TV in the house. It's all making me wonder.
Hi my 8 yr old son has started eye rolling now but he was told in september last year he has tourettes syndrome so was wondering if this is just a new tic for him it is very upsetting his tics did start a long time ago after his little sister falling ill and being rushed to a&e its very had trying to find answers to help them x
My son just started the eye roll thing last Wednesday. He had the MRI last night and is having an EEG done tomorrow, then off to the Neurologist. His pediatrician said this can sometimes be a tik related to a virus like strep or Lymes Disease. Wouldn't you know, he had a faint positive on the strep test she gave him during that appt. She still wanted the other tests done because my nephew started having this same problem two years ago when he was 6, (my son is 5). Turns out my nephew has ADHD and suffers petit mal seizures. He is on a medication to control the seizures and is doing well two years later. His medication just needs adjusted every now and again as he grows.
My son is 4, a few day age we noticed him opening his eyes wide, turning his eyes (usually to the right) and turning his head to the side. Does this match your son's symptoms? We're headed to the pediatrician today. Please post your progress, and I'll do the same. We are very worried
Our MRI is also scheduled for the 30th. Though, since I had noticed her symptoms, I stopped her from playing games on the itouch/iphone and her eye widening and rolling is not as pronounced. The pediatric opthamalogist suggested that it may cause some eye damage because the device is held close to the face. When I have my daughter play a "staring game" with me (blinking allowed) I tell her she can't look anywhere else but at me, she does not roll her eyes. However, if she is watching television or doing another activity such as coloring, cutting paper, the eye widening then rolling to the right starts and occurs every 20 seconds or so. It looks more like a quick glance to the side.
His also is much more pronounced when watching tv - we've cut back on how much he can watch, and when he's doing artwork or something. Also seems to be at its very worst in the evening when he's tired. Our morning drive is an hour to daycare, i wasn't watching him constantly of course, but i only saw him do it about 4 times this morning. Your daughters symptoms sound exactly like his, the glance to the side. Thanks so much for replying, I'll add your daughter to my prayers. I'll post our MRI outcome as soon as possible.
I am planning to postpone our MRI. I consulted with another opthamalogist, and she suggested that we try some over-the-counter eye drops such as Refresh saying that it could just be that her eyes are dry. She gave me an example on how she saw a 5 y/o female patient, after the parents had taken her to a neurologist, she receieved an MRI, etc. for an eye twitch. When she examined the child's eyes and lifted up one of the eyelids, she found an eyelash with significant buildup of mucous/debris on it. After it was removed the eye twitching stopped completely. I will try the eye drops today and see if there are any changes to her eye rolling. Doctor said if there are no other symptoms present, that we should wait a bit and try other things before resorting to an MRI, cautioning that it is very loud, and that the radiation affects children much more than adults. Also, my daughter will have to be sedated if we do it. I will let you know how things go. Thank you for your thoughts and prayers; will do the same for your son as well.
I hope you do share the MRI results, also you can have a CBC workup to find out more on what might be leading to the tics. An MRI would have to be thoroughly reviewed and compaired to children close to her age group.
Please research PANDAS if your daughter has ever had Strep in the past.
Hello, it has now been a couple of days using the Refresh eye drops (not allergy drops, but solely for dry eyes) and whether it is coincidental or not, her eye rolling has diminished in frequency from several times within a minute to about once an hour.
I would be interested to learn if you or you doctor explored the strp infection idea as a way to treat the tic? I have done a lot of research on this too - my 11 year old has had eye rolling for about 9 months now...done alot of tests and he it totally "fine" according to the tests. Did your doctor treat the strep? If so how? Was it effective? Any new news to share?
My then 6 now 7-year-old daughter started a movement of opening eyes wide, rolling them up and over, then moving her head along with her eyes to the left last Spring. The doctor said it was allergies so gave her eye drops, the drops didn't seem to work but then it mostly went away. Then it came back early this school year, died down and came back really bad a few weeks ago. I tried different allergy medicines, different eyedrops, nothing worked. Then I wondered, is it anxiety?? And I can almost exactly pinpoint that these "flare ups" coincide directly with the timing of issues she's had with a really difficult child at school. Now we've been home for Spring Break, and haven't seen her do it once. My advice, watch for increases or decreases in activity when they're in different environments like school or home. I will now approach our doctor differently!
Nystagmus is a term to describe fast, uncontrollable movements of the eyes that may be:
Side to side (horizontal nystagmus)
Up and down (vertical nystagmus)
Rotary (rotary or torsional nystagmus)
Depending on the cause, these movements may be in both eyes or in just one eye. The term "dancing eyes" has been used to describe nystagmus.
NEWS & FEATURES
Symptom: Dizziness. Cause: Often Baffling.
IN ALBINO STUDIES, SCIENTISTS SEARCH FOR PIGMENT ERROR
REFERENCE FROM A.D.A.M.
Back to TopAlternative Names
Back and forth eye movements; Involuntary eye movements; Rapid eye movements from side to side; Uncontrolled eye movements; Eye movements - uncontrollable
Back to TopConsiderations
The involuntary eye movements of nystagmus are caused by abnormal function in the areas of the brain that control eye movements. The part of the inner ear that senses movement and position (the labyrinth) helps control eye movements.
There are two forms of nystagmus:
Infantile nystagmus syndrome (INS) is present at birth.
Acquired nystagmus develops later in life because of a disease or injury.
Back to TopCauses
NYSTAGMUS THAT IS PRESENT AT BIRTH (infantile nystagmus syndrome, or INS)
INS is usually mild. It does not become more severe, and it is not related to any other disorder.
People with this condition are usually not aware of the eye movements, but other people may see them. If the movements are large, sharpness of vision (visual acuity) may be less than 20/20. Surgery may improve vision.
Nystagmus may be caused by congenital diseases of the eye. Although this is rare, an ophthalmologist should evaluate any child with nystagmus to check for eye disease.
The most common cause of acquired nystagmus is certain drugs or medication. Phenytoin (Dilantin) - an antiseizure medication, excessive alcohol, or any sedating medicine can impair the labyrinth's function.
Other causes include:
Head injury from motor vehicle accidents
Inner ear disorders such as labyrinthitis or Meniere's disease
Thiamine or vitamin B12 deficiency
Any disease of the brain (such as multiple sclerosis or brain tumors) can cause nystagmus if the areas controlling eye movements are damaged.
Back to TopHome Care
You may need to make changes in the home to help with dizziness, visual problems, or nervous system disorders.
Back to TopWhen to Contact a Medical Professional
Call your health care provider if you have symptoms of nystagmus or think you might have this condition.
Back to TopWhat to Expect at Your Office Visit
Your health care provider will take a careful history and perform a thorough physical examination, focusing on the nervous system and inner ear. The doctor may ask you to wear a pair of goggles that magnify your eyes for part of the examination.
To check for nystagmus, the health care provider may use the following procedure:
You spin around for about 30 seconds, stop, and try to stare at an object.
Your eyes will first move slowly in one direction, then will move quickly in the opposite direction.
If you have nystagmus due to a medical condition, these eye movements will depend on the cause.
Questions asked in a medical history may cover the following areas:
When were the movements first noticed?
How often does they occur?
Has this ever happened before?
Is the problem getting better, worse, or staying the same?
Are there side-to-side eye movements?
Are there up-and-down eye movements?
What medications are you taking?
What other symptoms do you have?
You may have the following tests:
CT scan of the head
Electro-oculography: An electrical method of measuring eye movements using tiny electrodes
MRI of the head
Vestibular testing by recording the movements of the eyes
There is no treatment for most cases of congenital nystagmus. Treatment for acquired nystagmus depends on the cause. In some cases, nystagmus cannot be reversed. In cases due to medications or infection, the nystagmus usually goes away after the cause has gotten better.
Some treatments may help improve the visual function of patients with infantile nystagmus syndrome:
Surgeries such as tenotomy
Drug therapies for infantile nystagmus
Back to TopReferences
Lavin PJM. Eye movement disorders: diplopia, nystagmus, and other ocular oscillations. In: Bradley WG, Daroff RB, Fenichel GM, Jankovic J, eds. Bradley: Neurology in Clinical Practice . 5th ed. Philadlephia, Pa: Butterworth Heinemann Elsevier; 2008:chap 16.
My son is 9 and has been doing this in some form or another since he was 5 or 6. I just got off of Skype with him and the eye rolling was so bad, I can barely catch my breath. He has done throat clearing before, and blinking. We too have seen neurologists, pediatrician's, eye doctors, etc. He has had EEG, etc, etc. All came back normal. We've heard seizures, Tourette's, tic, stress, the video games... everything mentioned in this thread. It sounds like everyone who has posted here has the same condition... what is it?!?
A physician's take:
Not everybody on this thread has the same thing..
For some, it is a seizure disorder, for others it is a tic disorder. What is clear is that EEGs are warranted but MRIs are usually not necessary and the radiation likely much more dangerous than any likelihood of finding anything. Also, it is not that serious.
My son is four. Sudden onset of eye rolling up and to the right three days ago. It doesn't seem to bother him. He is responsive. It seems worse with television and with books. He is now also involving his head in this jerky movement. Worse at the end of the day and not as active when he's busy or playing. We have MRI and EEG scheduled this week. Differential diagnoses is dry eye, absence seizures or Tourette's according to pediatrician. This is frightening to watch for a parent and remain calm. Anyone have luck with eye drops? Is that really a viable diagnosis here?
Sounds like what is going on with my 7 1/2 year old son. Started about 2 weeks ago. Eyes will shoot all the way over to one side, and the head will jerk to the center in the opposite direction. I thought he was having vision problems, so made an appt with an opthamologist. Then I realized when I asked him about it, he never said anything about his eyes. Thought it may be a tic, and had him at his pediatrician's office today. She said it's a tic, they see it alot, and it will most likely go away. Told me he doesn't need an MRI, or a visit with the neuro. Of course I am thinking worst case scenario. Has anyone seen this just go away, or to more and different tics start to appear. What I did notice tonight was that as he was falling asleep, it was happening more frequently. Any input would be appreciated.
My son has had them off and on for 2-3 years I think (he is 10 now). The latest one is he raises his eyebrows as high as they can go then rolls his eyes hard to the upper right then furrows his eyebrows (like in a glare). Previously he has tilted his head or had other facial muscle tics. Our ped says the same thing, common for kids to have tics, don't worry too much...still, hard not to be concerned. Thankfully he's in a good school where he doesnt get teased (he said sometimes kids ask him about it). They seem to go away completely in the summer, and be the worst during the spring semester. Wonder if that is due to school stress, or maybe something seasonal? Every time he gets a new type, we're back on the Internet trying to find out what it is....
My daughter began involuntary eye rolling and complained prior to of stomach aches. I assumed mild intestinal bug for few days . She did it every 30 seconds one night, better next morning. Doctor tested her for strep and I was shocked to hear it was positive. No sore throat complaints! He said strep has been known to cause this and we hope antibiotic will resolve this alarming symptom.
My 7 yr old son has done the throat clearing thing on and off for a couple years. just recently he started rolling his eyes only to upper right and he says he doesnt know why he does it and that they hurt and thats why they roll. The dr said the throat clearing can be allergies or a tic. we havnt seen the dr yet about the eye rolling. really concerned what this is.
Hi. Just wondering whether any of you have a diagnosis of autism or aspergers. My son has very mild symptoms of aspergers and just wondering whether there is a link between this and his various transient tics which have included head nodding, vocal tics and now the latest which is eye rolling. Thanks.
My 10 yr old son has been rolling his eyes for the last couple of months. He stated his younger brother hit him with a ball. My son is unaware of doing this. My son was making these weird noises with his throat. The peds said it could be allergies. Prior to doing this he constantly shrugged his shoulders. He does not shrug his shoulders anymore. He stopped making the noise for about a year when we changed our location. Since we moved back the noise came back and the rolling of the eyes have been added.
I will try the Magnesium supplement as recommended. The eye doctor gave him reading glasses +1.00 and said it should help him. She did state it is a focusing problem and asked if he had allergies. I told her about the noises. His brain as she state, "is disorganized" because of an intruder (allergen). His "tics" is a way of crying out for help. The help is trial and error for fixing his allergy problem.
The question that we need to ask ourselves is how bad is the air in the area that we live in?
I live in Florida, Broward County across from a major highway that separates the everglades from us. I am in the process of moving. I am checking out the past and present environmental issues before packing my bags.
Meanwhile, my son will wear the glasses, take the mineral supplements, and use homeopathic eye drops in case it is allergies. You can't go wrong with homeopathic products.
It is our children and sometimes our personal blogs can help each other, especially when medical authorities does not know the answer. I refuse to accept this issue is long term or put a medical label on my child. I am keeping a diary of how often he is doing it, the conversations that occurs to make it worse, and the activities he is doing. I will post another blog after 2 months or so to tell how it is going.
We live in Florida. My 8 year old son has always been a very healthy child. Never a cold, not one childhood sickness. Two weeks ago he started to roll his eyes from side to side with a neck movement. He said he couldn’t help doing it. The look in his eyes when he was doing it was like he had nerve palsies, like tourette. It came so suddenly. It was really weird and frightening.
I started to really freak out. I asked him if somebody hit him on the head, if he fell. No mommy, no mommy… What happened? I took him right away to the pediatrician. He just did some physical tests, eye movement tests. And came to the conclusion he had “tics” and it would go away by itself. My kid is so laid back, he cannot have tics, I said to myself. Something was wrong. I looked into pandas (never had a sore throat I don’t think it is what it is), epilepsy, strokes, maybe... I started to put him on multivitamins in case of deficiencies. He is very tall for his age. I figured maybe something was wrong with his eyes. So I took him to the optometrist. She did a thorough exam on his eyes. She said his eyes and vision was perfect. His eyes were very red because of the constant and extensive eye rolling. After the optometrist we came back home. I thought taking him to see the eye doctor maybe helped him with the tic. He was doing it once every 30 minutes instead of all the time after the appointment. I felt something happened. He was going to be ok…
The next day it was back, full force. Eye rolling, head shaking. At this point my husband and I almost couldn’t look at my son anymore. We felt terrible. One week passed. I met his teachers and they asked me what happened to your son? He wasn’t doing that the week before. He was still doing good with schoolwork, he could read good. I was starting to really loose it. My husband told me he if kept doing it we would take him to a neurologist.
So, I decided to rethink about everything that happened the week before he started doing it. I started to investigate with his friends, what he could have been in contact with. And then I realized he might have been in contact with pesticides. A pest company was spraying around the neighborhood this specific week end. And you know kids, they don’t look at the labels on the grass. OMG. That might be it. I looked into permethrin, that is what they were spraying around. This is a very common pesticide around here in Florida. They use it for insect and weed control. It is a strong neurotoxin. I looked at the side effects for children if in contact. Tremors, convulsions. It blocks sodium ion channels in animals, the same nerve channels that controls voluntary movement. And children are much more sensitive to it than adults. I looked up for the antidote in case of extreme poisoning. Atropine belladonna is what I found. I also found out that atropine, which is made from the belladonna flower is what they use to dilate eyes at the eye doctor, which may have explained why his symptoms may have slowed down after the eye doctor appointment. I said to myself I know how I can get belladonna. I am from Europe originally and my mom swears by homeopathy. We never went to the doctor as kids, she took us to the homeopath. I remembered she sometimes used to give us the the homeopathic remedy belladonna when we get sick .
I rushed to the nutrition smart, bought belladonna 6c. I gave my son 5 pellets as soon as he came back from school, 5 pellets before dinner, and 5 pellets before he went to bed. During the afternoon, he was still doing the eye rolling, head turning thing. The next morning, woke up. Nothing. I was petrified. He went to school. Came back at 2.30pm. Nothing, no eye rolling no head turning. I asked him about his day and he told me that his teachers asked him what happened to him. They couldn’t believe it. He was not doing it anymore. In the afternoon same, he stopped. That has been two days now, and it is over. This nightmare is over.
So, if your kid start doing that suddenly, look into chemicals that can have affected his nerves. And take them to an homeopathic doctor. And find the antidote. For pesticide exposure, it looks like belladonna did the trick. I saw some people their kids started doing that after being in swimming pools so maybe they are very sensitive to chlorine.
Homeopathic remedies must be taken before meals, under the tongue. There is no side effects. Do not bite the pellets, let them melt under the tongue. Do not use any kind of mint. Ever.Even in toothpaste during treatment. This is my story and hope it can help any helpless, desperate moms and dads like us.
Do not hesitate to give me feedback. Thanks for reading.
My 6 yr old started the crazy looking eye roll two weeks ago and hasn't complained about her vision at all. She even passed a vision screening at school. Today I noticed her doing the same type of thing with her head instead of her eyes and it's freaking me out. She doesn't notice and isn't complaining of anything. I'm nervous but don't want to drag her to several doctors! Suggestions?
My son has this same problem. Took him to his pediatrician who said it seems like a tic but that we will need to watch it because it could also be Tourette's sorry not sure how you spell that. Really hoping to solve this because my son is 8 and asks if we could bring him to a doctor to fix it. Feel so bad for him.
My 6 years old Has been doing for about a month but before that she was making other movements with her hand witch she still does but not as much anymore....
She doesn't know she does it but it breaks my heart.... Any news on what causes it and if it would never go away?
My daughter has had involuntay eye rolling since she was a year old. She has been put on all kinds of different seizure meds and meds for tics. They have somewhat ruled out both of those disorders. She is now 18 years old and they have gotten worse. They only seem to get worse in bright sun light. I've told her neruo opthamologist and she seems to think it's just stress. I am TIRED of these guessing games. She also has nystagmus on top of the eye rolling (two different eye movements). She gets so embarassed when her eyes roll, but there is NO one out there that has helped her stop this issue. She sees a new neuro doc soon. This will make the 4th one. I pray someone can soon help her. She can't even get her license until this stops.