I started to get sick a year ago and have been to every specalist with no help. Here is what I have experienced

new onset chronic itchy hives daily (nothing enviromental found)
Bone Infection Left lower leg-unknown source (no fractures or cuts)
3 PE's one while on coumadin and Lovenox, the other while on Lovenox (coumadin resistance found due to protein c and s problems)Doctors are unsure where clots came from
three episodes of acute pulmonary edema
5 stress fractures (including the femur) non trauma related
Leg edema (20lbs in 2 days) this has happened three times
Mass that came and disapeared near my brain stem
New mass in my thoratic spinal cord
Optic neuritis
Trigeminal nerve pain diagnosed with MRI
Resting heart rate of over 120
Elevated cardiac enzymes
Echo of heart showed new small leak in the valve of heart and second one showed pressure on the right side of my heart

I am only 30 years old, not on blood thinners and scared to death. They have tested me for every immune, blood, infectious and thyroid disease. All negative. Matter of fact even when I have had a bone infection my blood work has been very normal, not even an elevated white count or fever.

Doctors are pretty sure its something autoimmune, but nobody really specializes in that in this area. Any help would be great. I am rapidly going down hill, to the point I cant work or go to school anymore. At this rate I dont think I will live to see my 31rst b-day.