I work fulltime in a busy office which is hard most days as I have blurred vision and spaced out feelings most of the day, where as when i get home i feel better coz im not working and just relaxing doing dinner or watching tv etc. I have read through pages on google and its good to know other ppl have this as in NZ I cant find anyone that has it here but have found heaps of ppl on facebook and just random websites as I have had to google all my info to help me. I found having water or diet sports drinks are great as well as salt with your foods. I have also found that not eating in the morning helps alot with symptoms at work so I only have lunch at work and food when I get home either a snack and something and then dinner. I have a Wii fit so try and do that so I can rest at home in between exercises. If only our streets all had parkbenches every so often I would get out more lol. Have you had any experiences like these? I also take rescue remedy at night as well to help me sleep and also during the day to keep me going. I was told by my cardiologists to do any exercises I wanted just sit down or stop when I needed to.Im not bedridden thankfully maybe this is why hes trying to keep me doing as much as I can.
Its great being able to talk to ppl by email about POTS coz no one really knows much about it
Im 33 years old and just dx w/ POTS. I have never had any symptoms or major illnesses. One day at work (june 7 th) started to feel dizzy, got real hot, chest palpitating, fingers and hand got numb. I thought i was having a heart attack.Then i passed out for only a min though. I work in a hospital so they took me to ER. They sent me home said i was fine. Next day ended up in ER again, and again they sent me home i was fine. For three days i laid and did nothing. I then decided im living my life. Went shopping with my husband, not a good idea. I almost passed out again, I had to lay on the ground. Later that night i must have pushed myself. I thought i was gonna dye. My heart was pounding.
I called 911, they admitted. I stayed 3 days. Failed tilt table test in 2 mins. They put me on Florinef for a week, no success. Atenolol (beta blocker) for two weeks, kinda scary b/c my bp is low to begin w/ 95/65. It get down to 85/58at times. It did lower my heart rate from 115 standing to 90. However, it did not solve my problem. I still get the chest and throat tightness, dizzy and lightheadedness, brain fog and confusion all w/ standing only. So today they took me off atenolol and put me on nadolol. Im fine laying and ok for the most part sitting. I just cant have my legs hanging. No symptoms until my legs are in a standing position. Does it take awhile for the beta blockers to work? Or maybe i need to try Midodrine (a vasoconstrictor) blood could be pooling in my legs. Did you try Midorine before. I feel like im not getting blood to my head and I am so completely confused and sad. 4 weeks is a long time for me to sit and do nothing. I went from full time job, part time school, being a mom and wife--------to sitting and doing nothing. Where is the cure, research, help? Sorry had to vent.
Hey no probs, do you have facebook at all? If not join up and see the links I have attached.... I have a few forums I discuss with ppl on there. Im on no meds at all !! going back to hospital next month for a drug treatment
Which area are you in....Im in new zealand and no one here has it that I can find lol
POTSRecovery.com and we are all in there =) let me know how it goes