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Q: Hypertrophic cardiomyopathy
asked by: tufftitan2 on August 2nd, 2008
New User
Hi to anyone that may read this. I am lucky enough to have been born with a mutated gene that gave me a genetic heart disorder. Doesn't that suck. Basically what happened to me is that I was born with a heart disorder that I didn't know I had till I was a junior in high school. Basically the disorder is HCM, hypertrophic cardiomyopathy. My heart 2 x's bigger than it is suppose to be, but only half of my heart is 2 x's bigger, the other half is normal size. On top of that I inherited an abnormal heart beat and recently have been diagnosed with mildly high blood pressure and on top of all of that I haven't even have reached my 21st birthday yet. I have 3 problems with my heart that most people do not get till they are in their 60s-70s yr old. I have almost died 2 times because of this heart problem.

Yet I am living life. I have played sports and have worked out basically all my life. I have a name to live up to. I am a Tillman, I have had a cousin in Triple AAA baseball and a cousin that used to play professional football for the Arizona Cardinals. I have uncles and cousins who have been ranked nationally as wrestlers and I was ranked one of the best goalies for soccer in the bay area of CA when I was 14.

BUT MY PROBLEM IS.... with my heart condition if I push too hard I can kick my heart into "overdrive" and can kill myself. SO I basically cannot give all I can give to my passion for a sport. BUT THERE IS A TWIST TO THIS, I cannot stop doing sports or working out, I have to keep doing it, Doctors orders! ITS A CATCH 22, I cannot give 100% but I have to still be pretty active. The doctors said that since I've been so active even since I was born that I have to remain that active. So if I go under or above I could die. Im literally living on a fine line, that has death awaiting on either side of the totem pole.

Basically my problem is I want to make my name known just like my cousins and uncles and even my dad, but my problem is that I can't really do that because I could die. I could kick a football and soccer ball a football field length (100 YDS), I could throw a baseball at least 75-80 mph, and I could hit a baseball 425 ft. But the problem is, I'm a liability so I cannot play college ball. SO I CAME UP WITH THIS AS MY CONTRIBUTION TO THE WORLD, I WANT TO BE A DOCTOR OF SPORTS MEDICINE SO I CAN HELP THE PEOPLE WHO CAN BE GREAT AT THEIR SPORT, WHILE I AM STILL INVOLVED WITH SPORTS, I WANT MY CONTRIBUTION TO BE FOR THE GREATER GOOD. HELPING PEOPLE FULFILL THEIR SPORTS DREAMS SINCE I CANNOT FULFILL MINE. THAT IS MY DREAM!

Thats basically my life story so far....isn't that intense?
I just needed to vent...cause I'm kinda bummed that I have this disorder.
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BRMIL
replied on August 8th, 2008
New User
Study hard! Good LuckQ
I am not a doctor or nurse, but know someone that has heart trouble so I'm reading all of the postings. Your's is sad but keep the good attitude and work on getting that medical degree. If you do it quickly and are the best, I'll bring my son in law to you! I'll keep you in my prayers.
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Doxielover
replied on August 12th, 2008
New User
hey. I totally understand where you're coming from. I just turned 22 and have 6 weeks to decide if I want to have ablation with possible pacemaker put in. If I decide against it I just have to be miserable 24/7.

Sucks to be us.
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MarcoDB
replied on August 13th, 2008
New User
Hi
Hi Tufftidian. I'm a Med student too, and I do research mainly on cardiomegaly and heart failure. I will be more than happy to help you.
Without specific datas of your condition, it's like almost impossible for me to give you an advice. However, I can tell you it's possible to improve you CO (cardiac ouput) by doing sports.

You can PM me if you need to talk.

Fraternally
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smartboy25
replied on May 24th, 2009
New User
hocm
hi mate,
i can understand where you are coming from.
im 25 years old and have found out that i have hcm since a very long time.my heart muscle is 34mm which is 3 times more then it should be.i can't even get exited or run 20 steps up etc. as my heart feels like bursting when i do these things.just take everything easy.thats what i do,as i have no other choice....take care
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