Hello to Everyone who Has Suffered from or Loves Someone who is Suffering from Mono,
I am the parent of a young man, a high level college athlete, who was diagnosed in February of this year with the EBV. He got severely swollen glands, sore throat and nausea, swollen spleen, high titers for mono, mono-related hepatitis, etc. Then, after about 6 weeks, when the virus was supposedly "going away" or "gone", he went back to playing his sport intensely, and attending classes, etc. Unfortunately, a terrible series of events unfolded...
1st, after the first month, he was actually just beginning to experience the fatigue and exhaustion phase, but he didn't understand that, because so much time had passed already and 2nd, he began to experience panic and anxiety due to not understanding how sick he was, and to isolating, and just to being sleep deprived and very, very sick. I will also pause a moment here to tell you that the college handled his diagnosis process horribly, they told him he could probably have HIV, or Lymphoma, just because of the swollen glands, and initial negative mono test. That really frightened and panicked him. From nowhere, he developed some pretty awful depression, hopelessness, confusion, panic and anxiety.
Luckily, he was able to come home in May, and we, his family, were able to support him, by reassuring him he would eventually heal, by encouraging him to talk and cry and express himself, to unbottle all the fears he had stored up during the semester and hidden from his friends. He had developed a pattern of just trying to "play off' the weird panicky feelings he was getting but really he though he was going insane. He had no idea how sick he was. Ironically, the thing that had most helped him throughout his whole life was possibly hurting him, which was exercise. So he couldn't turn to that. Then that made him feel so much worse. Many doc's wanted to put him on antidepressants, but we urged him not tot take them, to do a lot of talk therapy, and to be patient, and we told him to borrow our faith that he would definitely heal up, he just had to start getting some sleep and temporarily remove himself from situations which provoked anxiety, such as large social gatherings.
Even though it has now been 7 months since his diagnosis, we are confident this will go away. It is not as fast as he wants, and he is missing a lot of the things he most wants to do in his life, but we are urging him to focus on all he has accomplished, not the least of which is that over this past summer, he no longer feels like physical crap all day long, he is no longer depressed, and he no longer needs anti-anxiety pills if he stays in calm situations. That is a lot.
I am wondering if anyone knows why the exhaustion lingers so long and if there is anything to be "done" about it. He is definitely still plagued with the waves of "weird" feeling he gets, almost every day. He describes it as if his whole body is paralyzed by fatigue, but his mind does not necessarily want to go to sleep. He is now more comfortable with the feeling which used to frighten him before, and which used to send him into depression and anxiety.
So, I have gone on for quite a while, but I hope this story offers hope to others, and that if there are any of you out there who might know of someone who -- yes -- maybe had mono for a long time, but who beat it eventually, then kindly post your story to give further encouragement to a young man who needs some support.
Also if anything helped you or your loved one...Vit. B shots? Coconut oil? Vit C?
Thanks, and good luck to all of you.
A Hopeful Paren