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Herpes and headaches

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I have gotten very bad headaches for years. about 3 or 4 years ago i started getting botox injections for them (after drugs did not help) The botox worked great, but my insurance no longer covers it. I began doing some research on my symptoms again (now that i have headaches again) and have found that their could be a link with herpes, neuropathy, and headaches. AM I PUTTING MY RESEARCH TOGETHER CORRECTLY? Is it common for people with herpes to have migrains?

my headacke symptoms are:

sudden sharp pain behind my ear that fades

followed by a slow building headache that is most painful behind my eye

my vision and hearing become distorted (sometimes before the headacke starts)

as it starts to fade my head and face begin to itch, under the skin.

I get simmilar itching deep in the tissue of my legs and arms that i was told were related to herpes by a doctor.
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First Helper sciencemom
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replied May 25th, 2009
First see your family doctor with possible referrals.
The neuromuscular/jaw position may be part of the problem.
See your dentist/TMJ specialist of an exam and advice.
Botox does give some relief, but of shout duration. Botox does not help the TRUE problem.


Specializing in facial injuries and pain, corrective jaw surgery, wisdom tooth removal, dental implants, bone grafting, and TMJ
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replied June 16th, 2009
headache symptoms
i have simular symptoms headache in particular. this virus is probably responsible for all your symptoms and likely others you have'nt associated it with. it's nasty and i don't think dr's know enough about all the possible associated symptoms. with as many people that have this virus you would think they would know more than they do. i guess theres not enough money to be made with it, or it's a medical taboo.
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replied July 21st, 2010
I think this is it
I personally just made the connection and I came online to research. I believe from what I have read my migraines and herpes virus are completely connected and I will be visiting a doctor soon to get Valtrex and see if that nips the migraines in the bud as well.
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replied August 8th, 2010
Take Lyrica Capsules under your health supervisor.
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replied June 11th, 2011
You are absolutely correct! I made the connection years ago through my own research. HSV 2 and migraines are definitely connected. Foods high in arginine feed the virus, and I ALWAYS get a migraine when I eat foods that are high in arginine. The trick is to take the amino acid Lysine to offset the high amounts of arginine and it keeps the virus from breaking out and you can eat the high arg. foods. The problem is, you shouldn't take Lysine in such high amounts for too long, because the body needs the arginine, too. It is a balancing act!
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replied August 26th, 2011
Absolutely!!!! Herpes and migraines are definitely connected. I never had a migraine until my husband infected me with herpes. That was back in 1994. My migraines and herpes got worse and worse over time until I had a constant outbreak on the base of my spine and a migraine every day. I never connected the two until the last couple years and there is DEFINITELY a causal affect having a herpes infection. I now have what the infection specialist terms as an extremely rare systemic herpes 1 infection and am on 3 grams/day of Valtrex to control it. If I miss even one dose, I have the day from hell the next day or two and it takes 4-5 grams a day to get it back under control. It's misery. My advice to you is get this looked at if you have migraines and have not thought about this connection. I'm so, so, so sorry for all you in the same awful boat. Take care. The Botox shots help ALOT and yes, the insurance companies will not cover them even after FDA approval. I take Imitrex nosespray and foricet tablets for the pain along with heat and ice (mostly ice) on my head and neck. Take care, get the meds and try to simplify your life before you just don't have one (or you might be like me and already be there.) Keeping stress down, watching your diet and getting enough sleep all help keep the herpes and migraines at bay. Hard to do but worth it. Hang in there. The medicines DO help. Take the time to get tested if you don't know if you've been exposed. Herpes 1 is usually but not always above the waist, Herpes 2 is usually but not always below. Of course you can get either anywhere because it is so contagious and your point of infection is where those spots show up. Mine was on the very base of my spine. I thought it was a spider bite. I had NO idea what it was until it kept coming back and making me very sick, and I went to see my doctor. My husband claimed he didn't know he had anything but I also got it the usual places for genital herpes tho those lesions were very small tho incredibly painful. More than 90% of the time it is just a small red poison-ivy looking spot on my right base of the spine. Flu-ish symptoms and bad nerve pain down the leg and up the spine all the way over the right side of the head into my right eye. I get herpetic meninigitis about three times every year, which is a nightmare and horribly painful. The medicines, ANTI-VIRALS, not the migraine meds, clear up the pain. Really hope this helps someone!
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Users who thank sciencemom for this post: JJ5 

replied March 20th, 2012
Have you had any brain damage from this? I have had two strokes in the past 2 years and before each stroke I had all of your symptoms. The only symptom I have that you do not have is breathing troubles. I get oxygen deprived. But just before an out break I get sharp head pains, leg(buttock pain), itching, eye itching. And sometimes I get blisters around my nose, and in hairline.
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replied August 26th, 2011
Thanks for sharing, Sciencemom. My migraines are also directly behind my right eye most of the time, and an ultrasound showed inflammation in the back of the right side of my neck when I have a migraine. I used Valtrex for a while, but I hate to take meds if I can find something more natural because I know it is hard on my liver after long periods of time, but I try to always have Lysine on hand and sometimes Valtrex.

I also have outbreaks in my nostrils sometimes! Strange, yes, but there you have it.

For all of you, try to figure out what you ate up to a half of day before your symptoms. It would be interesting to know how many of you find the same connection as I. Commom foods high in arginine are: nuts, seeds, wheat (everything has wheat!), oats, beans, peas... there are so many. My diet is very, very limite unless I take the Lysine. Again, herpes feeds on arginine, and for me personally, I can't ever have foods that are higher in arginine than lysine because I ALWAYS get a migaine. I just had one the other night after being fine for a long, long time. Why? Because I had pasta (wheat) for dinner and did not take enough lysine along with it.

Hope this helps!
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replied March 26th, 2012
Headaches!
Ive Had A Head For 80+ days.. i am a 23 yr old female ive had 3 spinal taps as well as 2 MRIs and a MRV the only thing that came up was two small white spots the dr said would be almost like scaring from a stoke to my knowledge i havent had any such thing. i have had a higher pressure in my spinal fluid at 28 which isnt too high but isnt normal at fist they called it psudotumor cerbri. but every medicine that would help with that hasnt helped me! i do have herpes and am wondering how or why it is linked? i am trying botox here soon! and have heard many good things about it! but would like to just find where my problem is and fix it i havent had a moment in the last 3 months without a headache i go to sleep with one and wake up with one! i am useing dilated morphine to help with pain and even that doesnt take away the pain!
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replied June 21st, 2013
Herpes Headaches
I have been tracking my cycle for 5 years now---I get a low grade headache for 3 days usually starts at night in my sleep--on day 4 and 5 and so on --I have a break out along my spine on the top of the butt--it clears in a week and repeats the cycle in 3 months--USUALLY. I have never considered dietary choice could effect it---will be tuning into that idea now---Thanks for all your experiences--its good not to feel alone in this----TML
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replied August 29th, 2013
herpes and headaches
I am 25 and just contracted herpes 2 and recently started getting severe migraines and leg pain... last night was one of the worst migraines and i woke up today with a bump down there ;/
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