hard to accept diagnosis

It can be difficult to come to terms with any life long diagnosis. Keep in mind that bipolar disorder does not define you. You are not bipolar disorder but a person that suffers with the disorder. It is one aspect of you but not the whole of you. Finding medication that works well is a big part of the equation. Lamictal is doing the job and that is wonderful. The other aspect of things is therapy. Many people have breakthrough symptoms. Therapy can help give you the skills to cope with life through the rough spots.

Give yourself time. It takes a bit to be able to digest all of this. Knowledge is power so I encourage you to empower yourself and learn about bipolar disorder when you feel ready. Know the symptoms and behaviors associated with each aspect of the disorder so you can recognize when you are starting to cycle. Mood charts can be found on-line. Google search for mood charts. There are many different types. Some are very simplistic and others go into great detail. Find one that you think will work for you. Use the chart to keep track of your moods. This will help you to see any pattern in your moods and will help you see progress in your treatment. It is a wonderful tool for the doctor in treating you. You won't have to try to remember everything when you see the doctor. You will have it all on the mood charts.

There are support groups to help and offer support. NAMI.org is a site that has wonderful references listed by state. Go to the site and there will be contact people to assist you with finding local support groups.

We are always here. This forum is designed to offer support, advice, suggestions and just listen. Always feel free to post questions or vent your feelings. Just know you are not alone in this.

Let us know how you are.

I was diagnosed back in 1985 with BPD. At that time, it was very hard for me to understand since I had not heard of the disorder. Through the years I learned more and more and how devistating this is on ones life. Not only for yourself, but for those you love around you. I found it best to have people close to you do some research and try to understand the disorder so they can better understand you.

I go through phases when I am absolutely convinced that there is something wrong with me and that it is bipolar disorder, and phases when I think that I'm just overdramatizing everything and that I am normal. I'm not sure that I'll ever be 100% sure of the diagnosis short of a infallible biological test that becomes available. It's difficult because for many of us, this sort of tumultuous existence is normal; we have no other measure against which we can compare our experiences. It is especially hard for me because I do not have psychotic features that can tell me in no uncertain terms that something is off-kilter. Also, I find that my memory is highly dependent on the mood I am in: if I am up, I only remember the manias, if I am down, I feel like I've been depressed my whole life.

My psychiatrist told me, when I was having trouble sticking to my meds, that it takes many people years and many destructive cycles to finally accept that something is wrong and will be wrong for the rest of our lives. It may take something to happen, he said, like an arrest, a commitment, serious injury or worse, to fully illustrate to individuals the gravity of the disease. However, for most of us, that is exactly the path we are trying to avoid.

It's not fair, it sucks, it is difficult as heck to swallow, but...what are our other options? Leave it alone and it'll convince you, but at what cost?

well i got told i have bipolar disorder by 4 doctors but i am pretty sure they are wrong. the problem is, they use a checklist to determine this and everybody is different. my personality (i am a hard worker) makes them think i'm hypomanic or manic. i can admit to depression but thats about it. i have mood stabilizers and antidepressants. i am going to trick the doctors and make them think i'm taking the mood stabilizers to prove a point. i will just take antidepressants. i would bet all the money in the world i am just depressed and they will say i have improved. i dont think anybody else should try this, but i am pretty sure i will be fine. it's too bad theres not a blood test to tell me for sure. let me say again DONT ANYBODY ELSE TRY THIS. you might really need your meds

Candlelight,

I agree with CarolDiane. You need to listen to what the doctors are saying. Mania presents in many ways. It can result in making poor choices and acting on impulse which can lead to trouble. Depression is one side of the disorder. Mania/hypomania needs to be controlled as well. Taking an antidepressant without a mood stabilizer will escalate mania. I hope you will reconsider your decision to withhold the mood stabilizer. Have you done any reading on the disorder? I suggest you do some research on bipolar disorder. Once you have the knowledge you can discuss your diagnosis with your doctor. I hope you will do this for yourself.

sorry for taking over this topic. i just read that and then felt like responding.

i do impulsive things and get into trouble a little bit but i think that is from my childhood problems. i have done so much research on it and thats why i think i dont have it. i dont worry about stigmas or anything. i just honestly dont think i have it. i dont feel elated moods or hyper; i just sometimes have a lot of goals that people dont think i can accomplish. the only time i think i cant do them is when i am depressed--which is often

Hi Candlelight,
I enjoyed reading your post. It definitely took some courage to put this on the forum. I totally understand what you are saying and I know how you feel. I have never posted on this forum before, but I felt that this subject was the best place to start. I would like to recommend an awesome movie to you to give yourself some perspective about people with bipolar condition. It will open up your eyes to a new world. Watch it to open up your mind and you will enjoy it, it is very well crafted. It is one of the best documentaries I have seen in the last 5 years. It is called Manic Depression and Me with Stephen Fry a very successful and well known British Comedian and Actor.

http://ww w15.alluc.org/alluc/showmovie.html?uid=271 382

Just click on the button and it will take you to Veoh I think. You need to download their software and install it, takes like 5 minutes. It will be worth it.

You were mentioning the fact that the doctors didn't take any blood samples and can't officially diagnose you scientifically with a disorder. That is true and obviously makes the practice of psychiatry a suspicious one. It also doesn't help that a lot of these doctors can be socially awkward, with a large ego and a superiority and power trip complex that makes them seem inhuman and insensitive. Just because they have their problems, doesn't mean they are wrong either.

The reason I recommend the movie is many fold, but predominantly to show you that there are catscans and MRI scans that are being done by researchers to help them understand the complexity of conditions. They have done genetic testing with animals and doctors have been using chemicals and mineral baths to help different mental conditions ease their suffering hundreds of years (for instance with natural lithium baths). Watch the video, keep an open mind and take care of yourself in the way that you feel is best for you right now.

Besides all that I also wanted to share my personal story. It was more of a thing I wanted to share for others, and I am not necessarily saying it applies to you Candlelight.

I also had numerous diagnosis before I even considered it to be a valid label. I had two psychologists who 'diagnosed' me in like 5 minutes. That was insulting, since they didn't even get to know me. Then in the hospital 2 doctors diagnosed me in record time and they were super aloof and super rude, so I ignored those guys. Then I had two other doctors who were convinced I was bipolar and I felt they weren't being considerate or decent towards me either. Then finally two more doctors diagnosed me as bipolar and they didn't treat me like an adult, but at least they were more professional. I went through 2 rounds of horrendous forcible injections, which was a nightmare!!!!!!!!!!!! (Prolixin turned me into a zombie and then oral Abilify made me tweak like a meth addict, it was a combination from hell). The only reason they injected me is because I refused to take mild oral medications, I do not recommend this resisting a court order. Prolixin screwed me up for 6 months, and then once they gave me abilify to combine with it it drove me to the brink of suicide. Don't force them to inject you, because they will and they can. I tried two different oral medications that were a nightmare and concluded that all these people were all wrong and I didn't have a mental condition or a biochemical imbalance. I was never completely convinced of their diagnoses anyway, so as soon as I could, I quit even faking to take the meds.

Like Candlelight I considered myself to be a hard worker, industrious, ambitious, curious and determined to live a great life. I have high standards, I have been well trained and well educated and I figured most of the complaints and opposition people brought against me came from their habitual party pooper lifestyle. I ignored them as haters and losers who had destined themselves to a mediocre life. Although I was already once placed on court ordered treatment I decided to continue to experiment with my life and to push things to the limit. By the second time I was in the hospital I definitely wondered if I might be bipolar, because so many of my symptoms overlapped with the diagnoses, but I always came to the conclusion that it wasn't a perfect match. I had to figure this out for myself, I couldn't rely on these doctors who are obviously trying to hide something and trying to force me into things. What I found suspicious is that they never spent any time trying to educate me, nor did they give me access to any substantial or useful medical or scientific information while I spent 60 days in the hospital (2 different visits). I continued to ignore them. I should mention that I had only had manic sort of symptoms up until then. It wasn't until I reached a period of 4 months where I was at a point of extremely low energy, I could barely do anything. Showering only happened a few times a week, I wouldn't change my clothes, I wouldn't leave the house, talking became difficult etc etc. I wasn't depressed, I wasn't sad or melancholy, I just had super low energy. My mind also felt strange, like my brain was melting or something uncomfortable like that. What finally convinced me to take medication was the fact that I had now very clearly shown to myself that I absolutely do cycle from high to low and although I do have some control over the whole process, I had gotten myself into a lot of trouble. I hadn't developed my career for over 5 years, I have no substantial recent working history and can't get loans now because of that. I don't have any nice car, I am still weak and out of shape, my college debt is still 30,000 and hasn't gone down, I have no savings, no family of my own etc etc. My final thought was however that if one happens to be Manic Depressive or Bipolar as I was noticing myself to be and one continues to keep cycling up and down unhindered, the cycles can become more intense and more rapid to a point where there is no more hope for the person to have a normal life. That was it for me. I gave up with my fight, and I fought hard, and started taking the medication. I am currently taking Lamictal and I love it. I even know when I forget to take it, because of how my best friend responds to me. I can't very easily tell myself when things are going wrong with me, because it is like watching a fun movie that is my life, but I can tell when other people trip out around me. I have trained my friends to help me recognize patterns and then I take that info to the Doctor. The hope is to stay out of trouble, out of the hospital and absolutely away from forcible injections. Now that I am not 'experimenting' with my life, I am making money again, developing a career, developing and cultivating my friendships and getting out of debt. Hope that helps someone.

I think for everyone acceptance is the hardest to overcome and is a process of us thinking and rethinking, ruling out everything else in our minds before we are actually able to settle on the diagnoses. As of yet, there are no definite tests or exact sciences that can 100% say you are or are not bipolar.

The majority of people that do have the illness don't require medications and function fine in society, its only when it develops into a problem that we are captured. So here is the scoop....we all are different and have a different degree of the illness, if you are having problems and it is creating havoc, its time to get into some form of treatment.
www.mentalhealthus.com

boomstick37, for replying so thoroughly to us. that was really nice of you and it is much appreciated. i'll watch the documentary asap. i just ant accept i have the condition. i recently got back on my meds because the doctors could tell i have been off of them because my depression got out of control.

i'm still itching not to take the mood stabilizer because i want to have a manic episode as evidence that i really have the disorder. i had (what i believe is two manic episodes) on antidepressants before, but i need a manic episode to happen recently to convince me that this is really true. sounds crazy, and it is probably irritating to you all. but i feel like i need the extremes to happen to get me to understand what everybody is talking about. i have the lows; i just need to see a high. i'm on abilify right now and i want to stop taking it. i just need to buy some time because i dont want the doctors to force me to take it.

Candlelight, I had to see both extremes myself before I could believe the Doctors. Study up on all of the material and make sure you find some good friends and or family members that you can let in on your experiment. Your judgement can become seriously flawed if and when you get into a mania. We don\'t want you to destroy your credit, get an std or end up in jail etc. Trust me any of those things could happen. Come up with an emergency action plan.

I too can relate to not being able to execpt a BPD diagnosis. As I said in my previous post, when I found out 30+ years ago that I could not take Lithium (which many can't) and at that time that was the only treatment out there. I went toxic to quickly on it. I was fine on 200mg a day and felt like a wall had been torn down in front of me and I could finally see some light at the end of the tunnel. But when he was not satified with my level (and I was) he put me on 300mg daily which put me over the edge. I have then decided that I was NOT bipolar even though my blood work stated I was and went into complete denial. About three months ago my GP (who has been nice enough to treat me for my anxiety and depression for over 5 years now,) looked at me and asked " Have you ever been diagnosed with BP"? Well needless to say, my mouth dropped 50ft to the ground at warp speed. I could not believe she hit on it. It was time for a dicission and it was time NOW. I said "yes" and explained my hiding for 30+ years and having my manic episodes and anger along with some suicidal tendencies even to the point of trying to OD on pills. Belive it or not, her asking me that questio was like taking a vail off my face and the true me was under it. I no longer needed to hide. I could now live a close to normal life and I am such a changed person due to that. I have her to thank and my willingness to face my disorder head on. I am not on Depakote and Seraquil. Wonder drug IMHO. There is so much out there that can help. Why would I want to live a life is distress when it is not nessesary anymore.

Just my experience and hope it helps