Medical Questions > Conditions and Diseases > Bile Duct Disorders Forum

Genetic hemachromatosis

i am still in severe pain 10 yrs after my gallbladder surgery. when i came out of surgery i was in pain and am still having the same pain with worse attacks than i had before the surgery. to this day, none of my complaints have changed!

i have seen a mulitude of docs and they all say it's in my head because all of my tests come back normal. i have recently discovered that if the doc clips the wrong duct, including the vagus nerver, it can cause even worse pain that prompted the surgery in the first place.

However, after the gallbladder surgery, my liver enzymes shot sky high and a doc decided to do a liver biopsy. the results "genetic hemochromatosis".

based on this information, is it possible that i was misdiagnosed from the beginning, with the hemochromatosis being the underlying cause of my stomach issue instead on the gallbladder? and if so, could this doc have clipped the wrong ducts and even damaged the vagus nerve causing me to have the continuous problems for 10 yrs with no end in sight?

thanks, please help me!!
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replied September 26th, 2009
WOW! I was diagnosed with possible hemochromotosis almost a year ago. Had High liver enzymes. They wanted to do liver biopsy-I'm too scared & refused. Have all kinds of wierd symptoms now-had multitude of tests. My ducts are on the "high-normal" side. Just wanna tell you you're not alone. I don't think drs. KNOW what is wrong. I hope you can get some real help. I hope I can as well.
Hang in there.(easy to say, but I'm goin through this mystery too). Smile
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replied September 26th, 2009
thank you so much for your kind words! it has been proven that i def have genetic hemochromatosis through a liver biopsy. the prob is the dr's assumed it was gallbladder, removed it and damaged my vagus nerve and now i'm ruined for life. dr's in my city refuse to assist me with this. (they know they screwed up) and they have ruined me financially. so please be careful when getting treatment. just because they paid thousands of dollars to get a degree doesn't make them right....find a doctor you can trust if that is possible....good luck and keep in touch!!!

also, you should be able to be tested for hemochromatosis from blood work as opposed to a liver biopsy. it's extremely painful and can cause permenant damage, again, good luck!
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