fybromialgia without muscle pains Posted: 03-28-08 05:16am
I've been having almost all symptoms of
fybromyalgia (debilitating fatigue,
abnormal sleep, bowel disturbances, memory
problems, slowed information processing
ability, dizziness, diminished attention
span and anxiety and depressive symptoms)
for almost a year now and have just a few
days ago discovered that these are the
symptoms of fybromyalgia. I don't really
have the muscle pain except for a constant
never-ending headache that gets pretty bad
sometimes.
I discovered it because I had several
thorough blood tests done and they pointed
out an enormous lack of vitamin D, which,
after some googling, I found out often
correlates with fybromyalgia, which in
turn seemed to match my symptoms for
almost 100%
I'm taking prescribed vit. D supplements
now (two ampules per week) and I've always
had an extremely strict and healthy diet
of whole grains, fruit and vegetables.
(been taking the supplements for only a
few weeks now)
I'm very happy to find that what I have
has a name and that apparantly I'm not
dying from some unknown disease or
something. I'm also glad to have found
this forum! Cool to see people support
each other through this.
I have a few questions for you guys and
girls:
1. Since a few days now, I've been
experimenting with the effects of stress
on my condition and while I'm a person
with an enormous amount of
responsibilities, I've chosen to give
myself as much free time as possible to
see what it does. The effects are
astonishing, the symptoms are still there
in full force but my mood is so much more
pleasant while I usually feel very
depressed. Does anyone else experience
this? Are the effects of even the
slightest stress so drastic on
fybromyalgia?
2. It might be coincidence but ever since
I started taking vitamin D supplements,
the symptoms have gotten even worse, I
vaguely read something about having to go
through a harsh start when you start
taking the supplements but in the end they
work great? Any feedback?
Thanks a lot
|
Seraph
Experienced User , Rather EHEALTHy
Joined: 22 Jan 2008 Posts: 276 Location: , South Africa
Thanks: 2
Thanked:0
Posted: 03-28-08 05:48am
Hi Reese
I am truely glad that you have been able
to clear up your dx. I my self don't
personally have fibro...I have Marfans and
have only recently been diagnosed and only
confirmed yesterday. So even tho I don't
have the same symptoms as you do...I
understand 100% what you are going
through.
These forms of disorders are really
frustrating. They can only treat each
individual problem as it comes up and
monitor the more "risky" factors like the
Cardio-Vascular implications in my case.
To attempt and answer some of your
questions:
1. Stress has a HUGE impact, not on fibro
it-self, but on your
depression/mood/anxiety levels (Which
might be out of whack DUE to the Fibro).
Uncertenty has even more of an
impact...and getting a confident dx is
really a huge relief...I know...so yes,
your feeling better can most definately be
attributed to both the relief of stress
and the relief of being able to put a name
to your pain .
2. I don't know too much about the
effects of the vit D supp...but I also
have a period of adjustment that I am
currently going through with the "Beta
Blockers" I am having to take...so I guess
you could say it's like with any
medication... Even flu medication
sometimes cause irretating effects (That
one usually don't realise is more the
medication than the virus it self ).
Good Luck to you
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Reese015
New User, Becoming EHEALTHy
Joined: 28 Mar 2008 Posts: 3
Posted: 03-28-08 05:57am
Thanks a lot for that quick reply! Just a
tiny question, what does 'dx' exactly
stand for?
|
Seraph
Experienced User , Rather EHEALTHy
Joined: 22 Jan 2008 Posts: 276 Location: , South Africa
Thanks: 2
Thanked:0
Posted: 03-28-08 06:07am
Lol...my bad, I havent been on EHealth for
all that long but allready I'm picking up
on the slang
Dx = Diagnosis.
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Reese015
New User, Becoming EHEALTHy
Joined: 28 Mar 2008 Posts: 3
Posted: 03-28-08 07:12am
Alright, great, thanks. If anyone else has
any feedback, I'd be happy to hear it!
This is all pretty new to me so I'm
gathering all info I find.
|
Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4106 Location: post falls, id usa
Thanks: 64
Thanked:51
Posted: 03-28-08 15:37pm
hey sorry i didnt get to this before.
welcome to the board-----hopefully the
girls will be around to talk to. I dont
have fibro myself but i mod this board. if
you have any concerns just pop me a pm.
glad to have you with us
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