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Conditions and Diseases > Fibromyalgia Forum > fybromialgia without muscle pains
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Q: fybromialgia without muscle pains
asked by: Reese015 on March 28th, 2008
New User
I've been having almost all symptoms of fybromyalgia (debilitating fatigue, abnormal sleep, bowel disturbances, memory problems, slowed information processing ability, dizziness, diminished attention span and anxiety and depressive symptoms) for almost a year now and have just a few days ago discovered that these are the symptoms of fybromyalgia. I don't really have the muscle pain except for a constant never-ending headache that gets pretty bad sometimes.

I discovered it because I had several thorough blood tests done and they pointed out an enormous lack of vitamin D, which, after some googling, I found out often correlates with fybromyalgia, which in turn seemed to match my symptoms for almost 100%

I'm taking prescribed vit. D supplements now (two ampules per week) and I've always had an extremely strict and healthy diet of whole grains, fruit and vegetables. (been taking the supplements for only a few weeks now)

I'm very happy to find that what I have has a name and that apparantly I'm not dying from some unknown disease or something. I'm also glad to have found this forum! Cool to see people support each other through this.

I have a few questions for you guys and girls:

1. Since a few days now, I've been experimenting with the effects of stress on my condition and while I'm a person with an enormous amount of responsibilities, I've chosen to give myself as much free time as possible to see what it does. The effects are astonishing, the symptoms are still there in full force but my mood is so much more pleasant while I usually feel very depressed. Does anyone else experience this? Are the effects of even the slightest stress so drastic on fybromyalgia?

2. It might be coincidence but ever since I started taking vitamin D supplements, the symptoms have gotten even worse, I vaguely read something about having to go through a harsh start when you start taking the supplements but in the end they work great? Any feedback?


Thanks a lot Smile
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Seraph
replied on March 28th, 2008
Experienced User
Hi Reese

I am truely glad that you have been able to clear up your dx. I my self don't personally have fibro...I have Marfans and have only recently been diagnosed and only confirmed yesterday. So even tho I don't have the same symptoms as you do...I understand 100% what you are going through.

These forms of disorders are really frustrating. They can only treat each individual problem as it comes up and monitor the more "risky" factors like the Cardio-Vascular implications in my case.

To attempt and answer some of your questions:

1. Stress has a HUGE impact, not on fibro it-self, but on your depression/mood/anxiety levels (Which might be out of whack DUE to the Fibro). Uncertenty has even more of an impact...and getting a confident dx is really a huge relief...I know...so yes, your feeling better can most definately be attributed to both the relief of stress and the relief of being able to put a name to your pain Wink.

2. I don't know too much about the effects of the vit D supp...but I also have a period of adjustment that I am currently going through with the "Beta Blockers" I am having to take...so I guess you could say it's like with any medication... Even flu medication sometimes cause irretating effects (That one usually don't realise is more the medication than the virus it self Wink ).

Good Luck to you Smile
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Reese015
replied on March 28th, 2008
New User
Thanks a lot for that quick reply! Just a tiny question, what does 'dx' exactly stand for?
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Seraph
replied on March 28th, 2008
Experienced User
Lol...my bad, I havent been on EHealth for all that long but allready I'm picking up on the slang Wink

Dx = Diagnosis.
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Reese015
replied on March 28th, 2008
New User
Alright, great, thanks. If anyone else has any feedback, I'd be happy to hear it! This is all pretty new to me so I'm gathering all info I find.
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TMJWorld
replied on March 28th, 2008
Extremely eHealthy
hey sorry i didnt get to this before. welcome to the board-----hopefully the girls will be around to talk to. I dont have fibro myself but i mod this board. if you have any concerns just pop me a pm. glad to have you with us
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