Epilepsy Forum - Fibromyalgia sleep anomaly aggravating Epilepsy

Conditions and Diseases > Epilepsy Forum > Fibromyalgia sleep anomaly aggravating Epilepsy

Fibromyalgia causes pain in the body. Learn the basic facts about fibromylagia and how doctors define this syndrome here....

Q: Fibromyalgia sleep anomaly aggravating Epilepsy

asked by: overactiveamygdala on July 3rd, 2009

New User

I have had fibromyalgia for 20 years. Three years ago I was diagnosed with temporal lobe epilepsy, which started with frequent auras. The past 6 months the epilepsy has progressed to where I am having frequent myoclonus and absence seizures. I recently had an abnormal EEG with spiking theta waves in the temporal lobe, AFTER I had increased all my meds.

My neurologist said I need to calm down and get better sleep. I think my poor quality sleep related to the fibromyalgia, but my neurologist is not interested in my theories and he doesn't really believe in fibromyalgia. He cut my Trileptal dose in half and told me to just take a Xanax at bedtime instead. Why would he tell me to take less seizure medications and put me on an addictive benzodiazepam? That stuff is addictive! I don't want to take it! Has anyone else had this experience with their neurologist? I think I need a second opinion.

Replies(2)

zigemyster

replied on July 6th, 2009

Moderator

I would get a second opinion. Fibromyalgia can be quite painful.

My fibro was horrific for 8 long years and finally in May 2008 I tried an anti-inflammatory diet to restart my digestive tract (as inflammation begins in the stomach and migrates throughout the body to the cellular level). Inflammation in the body ='s pain and another thing...cancer likes inflammation.

I stuck to the diet for 4 weeks as recommended and then began to re-introduce other foods one at a time to see how my body would react. Within the first couple of weeks my pain went from a 10 to 0...no kidding. Ice cream will bring it back to a 7.

Processed foods are the worst for patients who suffer from fibro as well as all cow's dairy.

You do not need nor want a doctor who does not believe what you are going through. Empower yourself, 2nd opinion froma physician who is on the same page as you and who will listen & treat you with respect. Remember you are in charge of your health, so fire the ones that can't or won't do their job.

Best wishes for a speedy recovery.

Zig

kdlee

replied on July 6th, 2009

Supporter

Get a 2nd opinion..Also look for a Rheumatologist who knows about Fibro..Like you I have had Fibro for years (not seizures)and had to look for doctors that know what they are dealing with..

I also agree with zigemyster that diet definetly plays alot in to how we feel..

Hope you are able to getting a 2nd opinion soon..

Learn About Us

Get Help

Join In

Do More

We comply with the HONcode standard for trustworthy health
information:
verify here.

The site is not a replacement for professional medical opinion, examination, diagnosis or treatment. Always seek the advice of your medical doctor or other qualified health professional before starting any new treatment or making any changes to existing treatment. Do not delay seeking or disregard medical advice based on information written by any author on this site. No health questions and information on eHealth Forum is regulated or evaluated by the Food and Drug Administration and therefore the information should not be used to diagnose, treat, cure or prevent any disease without the supervision of a medical doctor. Posts made to these forums express the views and opinions of the author, and not the administrators, moderators, or editorial staff and hence eHealth Forum and its principals will accept no liabilities or responsibilities for the statements made. Schizophrenia health sitemap.
This page was last updated on January 1, 2009.
© 2008 eForums, Inc