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Conditions and Diseases > Fibromyalgia Forum > Fibromyalgia/Chronic Fatigue ?
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Q: Fibromyalgia/Chronic Fatigue ?
asked by: Amyk9595 on September 5th, 2008
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Labs - ESR of 61? Platelets 490?

I just tested as above. I have all over body pain, mostly in the hips, feet, low back, shoulders and neck. I can do about 50% of what I used to do and feel some level of pain all the time. I have trouble getting comfortable in bed, wake up stiff and walk kind of humped over for the first few minutes after getting out of bed. I have trouble sleeping a full 8 hours unless medicated in some way. I am 49 years old and have had this condition for about 3 years. I have deep tissue body massage every 2 weeks and this seems to help for a short period of time.

My doctor is sympathetic - but she can't seem to find a name for what I have. Could it be fibromyalgia? I experienced profound loss in 2003 when I lost my mother, father and grandmother in a period of 18 months and things went downhill from there. Could that have triggered this illness? Any information you can provide would be appreciated.
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MandMs
replied on September 6th, 2008
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Diagnosis of fibromyalgia is not an easy thing to do.
According to your symptoms (you have symptoms of fibromyalgia) you need to be done full physical examination (using the right criteria) to determine or exclude fibromyalgia diagnosis.

Have you been tested for thyroid gland functions?
Do you find your sleep not refreshing?
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Users who thank MandMs for this post: Amyk9595 
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Amyk9595
replied on September 6th, 2008
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MandMS
No - my sleep is usually not refreshing. I wake up and my hips are stiff, my feet hurt (plantar fasciitis) and I am a little humped over on my first steps out of the bed.

The doc did not test my thyroid or CRP this time - but I will make the suggestion when she does my follow up bloodwork in about 1 week. She had done a fibromyalgia hot spot check once - but I'm not sure that she knew what she was doing. As a result, she indicated that I didn't have 11 of 18 hot spots so my diagnosis of fibromyalgia was rescended. When I touch my body in certain spots, I certainly have 11 painful pain points. I believe I need to find another doc. I had a consultation with a rheumatologist a few years ago and he was not helpful at all. I don't know who to go to, really. I will be researching docs in my area to see who I can go to for help. Thank you for your input.
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Amyk9595
replied on September 19th, 2008
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Vitamin D
Have you ever had your Vitamin D level checked? I found some information a couple of days ago that said Vitamin D deficiency can cause widespread muscle and bone pain. I am going to pursue that.
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MandMs
replied on October 22nd, 2008
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It is believed that in some cases the onset of fibromyalgia may have followed a particularly stressful event or episode in a person's life.
As we age, our bodies slowly lose the ability to mobilize vitamin D.
Symptoms of vit.D deficiency are muscle pain, weak bones/fractures, low energy and fatigue, lowered immunity, symptoms of depression and mood swings, and sleep irregularities.

Do you suffer from renal problems or intestinal concerns?
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Amyk9595
replied on October 22nd, 2008
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Stressful Events
I lost both my parents in 2003, and my grandmother (all the elders in my life) in 2004. I went downhill from there . . . so yes, I had some stressful events just prior to my illness. I have had physicals, ortho evaluations, blood work, physical therapy, go to a massage therapist every 2 weeks and have deep tissue massage, and generally don't overdo it anymore. I used to be a work-a-holic (both physically and mentally) and pretty much shut down in 2003 . . . got deconditioned and decided to live again in 2005 and have been trying to fight my way back every since. I have never had my Vitamin D levels taken - so that is an option to explore. My Sed Rate was elevated, platelets were high, cholesterol had gone up, and my thyroid is always 4.5 or higher and has been as much as 7 . I also find conflict in the home exacerbates my pain.
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MandMs
replied on October 31st, 2008
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Elevated ESR and high platelets count are characteristic for a condition that is very often misdiagnosed as Fibromyalgia, due to similar symptoms.
That could be happened with you, too.
It is called Polymyalgia Rheumatica, and is manifested as widespread muscle aching and stiffness, primarily in your neck, shoulders, upper arms, thighs and hips.
This is an inflammatory disease, that can disappear by itself after period of 2 years in average, and can be treated successfully in a meantime.

If your TSH level is higher than 5, you can be suspected for low thyroid functioning, or hypothyroidism.
The decreased metabolic activity associated with hypothyroidism usually leads to increased blood levels of cholesterol.

Did this condition start suddenly?
Was the pain initially felt at one side of your body?
What are your red blood counts like?
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Amyk9595
replied on December 17th, 2008
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Update
I have recently been diagnosed with Hashimoto autoimmune thyroid disease. My TSH was 7.83, Thyroid Peroxidase Antibody 358.9 (0.0-5.6 normal range). Thyroid has 2 nodules - and I have to have a biopsy of the largest nodule. My Rheumatoid Factor is 50.7 (0-60 normal range). I see internet information stating that anything over 20 is considered positive for Rheumatoid arthritis. I have not had my red blood count done in a while. I have pain on both sides of my body - left wrist, right elbow, bilateral feet, left shoulder, low back, etc. I am going to change docs since the one I have been going to for several years didn't catch this thyroid or rheumatoid thing and I had to catch it and ask for a referral. Very disappointing. Then the endocrinologist is one of those "I'll tell you what I think you need to know" kind of doc. I will be changing her too. I need to know everything. Sorry if you can't fit it into your 15 minute time slot. Very frustrating! My mother had dementia - and now I think it was related to the thyroid thing. I was following down her path, I think. Thank God I caught it and thank God for the internet! Any suggestions? Thanks for all your help.
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