Joined: 15 Feb 2008 Posts: 86 Location: Chicago, IL
fibroma-nodule on mandible wall Posted: 03-03-08 23:55pm
Hello,
I've been loosing weight - about 12 lbs in
past 4 weeks. I will go to family doctor
to have that checked out, I think its my
TMJ, but I have general feeling of
malaise, chills, sweats... body feels like
it's undergoing ongoing infection with
cold or flu virus. Often, my leg joints
hurt too.
Out of nowhere, almost 2 years into the
TMJ issue, another problem for me to face
is sublingual area (gland?)
inflammation/mass/lump. Also, a nodule
(pimple like, but with some tender mass
inside, it is mobile, not attached to the
bone).
So, today I saw ENT doctor again for
second time and felt embarrassed because I
didn't take the prescribed CT scan of the
neck (with contrast). So the doctor once
again insisted that I am going to have
this ASAP.
This nodule is on the mandible wall, not
lip, so the doctor told me that she sees
them on lips with improper healing, but in
the area of mine, no injury occured and I
did not poke or scratch. So then we
thought that it might be the salivary duct
which is inflamed. We left of naming it as
"possible fibroma of unknown cause".
I did read up about nodules in the book I
have, it says that it is common to develop
especially of some dental work didn't go
as planned, and also possibly due to
chronic inflamation of the area which I do
have - it feels like burned, but overall
not too tender or painful to touch.
So here I am, hoping this is going to be
benign, and hopefully pray that whatever
is does not increase in size. One possible
reason is having stone in the salivary
duct, in that case it should be easy to
fix.
Dr noted "submandibular saliadenitis" as
dx code (diagnosis) and also asked me to
have a hearing test. There was bilateral
sinus some kind of thing too, so he is not
rulling out that sinuses might be
contributing to some of my pains. There
are some cyst in the now infamous right
side (where everything happens) sinus.
I started going to gym again, after 30
days brake due to harsh weather and
extreme jaw pain. Yesterday I felt OK,
today I just layed in bed for most post
but then decided that I need to go to gym
every day to establish a pattern, and then
if I deviate from this pattern, it would
be good indicator that something isn't
going well. I love exercise, it's just the
matter of managing the pain and staying
focus.
As I was in gym whoever, I realized, that
I am no longer like anybody else.
Realizing that this TMJ problem if not
yet, then will cause tremendous changes
in who I am. My sense of self, my image of
self has already shifted - knowing that my
character, my personality is changing due
to chronic pain. If it is not pain, then
the medicines have substantial cognitive
impact. So here I was, looking at guys my
age, playing basketball, laughing out loud
- at that time I realized that it will be
hard to back to where I once was - an
athlete during my elementary and middle
school.
This decease is serious. And it is hard to
come to terms with it, as it might
progress, even worse, one might simple get
used and live and adapt.
It was painful and almost made me cry,
saying to myself -
I was,
but no more.
I did, but no more,
I will, but when,
will I ever be same?
I am at the point of spending some time
daily meditating on the fact that our
bodies are tempeorary, and they will brake
down earlier or later. Never in my mind I
could have imagined that such
debilitating, incapacitating condition
would grasp me into her claws.
It's difficult to agree to this, as being
25, you except to have all the energy
needed, you except to be able to work and
even help your family, and now, it's the
other way around - I am thinking of moving
back with my mother as I am often so sick
that I do not cook, or even if I do, do
not eat food.
It's a struggle to realize that we are not
in control of the aging process, and
deterioration of our structural units that
supports us - our bodies.
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4346 Location: post falls, id usa
Thanks: 93
Thanked:63
Posted: 03-04-08 13:48pm
unfortunately we arent in control of our
bodies--most of the time i wish we were--i
hope that you get a hold on this and
quick. do what you need to do to survive.
get a vitamix and have someone blend good
nutritious food for you.you can even use
met-rx a protien shake to try to help you
to maintain some weight.hang in there
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edgaras
Supporter
Joined: 15 Feb 2008 Posts: 86 Location: Chicago, IL
Posted: 03-06-08 00:38am
had ct scan today for neck - right side
of mouth floor.
hope this will have some use.
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4346 Location: post falls, id usa
Thanks: 93
Thanked:63
Posted: 03-06-08 13:37pm
let us know results.
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edgaras
Supporter
Joined: 15 Feb 2008 Posts: 86 Location: Chicago, IL
CT results Posted: 04-21-08 17:10pm
CT showed that I am missing a parotid
gland.(!). It did not show any
calcifications that were of concern in
regards to possible salivary gland
obstruction - however, everything came
back normal. Funny thing is - when I and
the PA were looking at the CT images, she
appeared so confused, not realiing that
the CT did not include the TMJ area. I
told her, TMJ is way up, by the ear, this
CT was only for neck and bottom of the
mouth. Doctor then came in who said, "hm,
strange, CT was not able to see your
parotid gland, well come back in 2 months,
maybe this things will burn itself out".
That's it.
Nothing else, nada. No corcern showed for
the nodule (lump) that has appeared at the
floor of the mouth - PA said "maybe it's
fibroma, we dont' know". I said, "i hope
it's not carcinoma". She had this blank
stare at her eyes, obviously her first
year of practice. I was also chocked how
incapable of reading the radiography
results doctors are. You basically need a
radiologist specialist who can go over and
explain to you what he has observed on the
CT. I am sheduled to meet one next week,
as there is this Dr. H from UIC, very
smart doctor I must say, with short
temper, (the way I like the doctors, when
it comes to addressing issues), but in my
casem, it was the opposite, rather than
adressing, it was a sence of dodging. He
assured me that my previous MRI scan does
not show any abnormality, while the
radiologist clearly indicated - cyst(s) in
the condyle, translation-rotation
abnormality in close-open position switch.
I smell something.
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4346 Location: post falls, id usa
Thanks: 93
Thanked:63
Posted: 04-22-08 15:20pm
go back and ber persistant---get what you
want and dont let them get away with this.
he doesnt make money if you dont go to
him--tell him you will go somewhere else
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edgaras
Supporter
Joined: 15 Feb 2008 Posts: 86 Location: Chicago, IL
funn,y thing is.. Posted: 04-23-08 22:22pm
funny thing is that I learn more from
hearing what the physician's asisstant and
the doctor talk behind the door then they
tell me in the face. For instance,
I heard PA say "is it possible that if the
one gland is missing the other (parotid)
gland is doing extra work.
CT was not able to see left parotid gland,
and it said that the right one is small.
Yes, I will be persistent as much as I
can. Recent days I have so much pain it's
hard to move around and do daily
activities. I am thinking of arhtroscopic
procedure, at least they will see what's
happening inside. I'm just not sure who to
see. My TMJ dentist said I should go to
TEXAS, yes TEXAS, and I live in Illinois,
to see this surgeon because he is "the
best". Argh!
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4346 Location: post falls, id usa
Thanks: 93
Thanked:63
Posted: 04-24-08 00:08am
well i bet you i know which srugeon he is
talking about and beleive me he isnt hte
best---his older brother is---he did my
surgery and i had to go to michigan--i
live in idaho.
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edgaras
Supporter
Joined: 15 Feb 2008 Posts: 86 Location: Chicago, IL
Posted: 04-24-08 00:16am
michigan is much closer!
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4346 Location: post falls, id usa
Thanks: 93
Thanked:63
Posted: 04-24-08 00:41am
good----want his info?
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edgaras
Supporter
Joined: 15 Feb 2008 Posts: 86 Location: Chicago, IL
info Posted: 04-28-08 21:13pm
Yes, if you would please post it or send a
private message. Thank you so much!
I was even considering looking for doctors
outside United States if I cannot someone.
Many of the docs are hesitant to do
anything invasive, perhaps for good
reasons, but what is the patient left
with when pain is so bad that activities
of daily living such as self care are
dramatically altered.