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fibroma-nodule on mandible wall

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edgaras

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Joined: 15 Feb 2008
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Location: Chicago, IL
fibroma-nodule on mandible wall
Posted: 03-03-08 23:55pm

Hello,

I've been loosing weight - about 12 lbs in past 4 weeks. I will go to family doctor to have that checked out, I think its my TMJ, but I have general feeling of malaise, chills, sweats... body feels like it's undergoing ongoing infection with cold or flu virus. Often, my leg joints hurt too.


Out of nowhere, almost 2 years into the TMJ issue, another problem for me to face is sublingual area (gland?) inflammation/mass/lump. Also, a nodule (pimple like, but with some tender mass inside, it is mobile, not attached to the bone).


So, today I saw ENT doctor again for second time and felt embarrassed because I didn't take the prescribed CT scan of the neck (with contrast). So the doctor once again insisted that I am going to have this ASAP.


This nodule is on the mandible wall, not lip, so the doctor told me that she sees them on lips with improper healing, but in the area of mine, no injury occured and I did not poke or scratch. So then we thought that it might be the salivary duct which is inflamed. We left of naming it as "possible fibroma of unknown cause".

I did read up about nodules in the book I have, it says that it is common to develop especially of some dental work didn't go as planned, and also possibly due to chronic inflamation of the area which I do have - it feels like burned, but overall not too tender or painful to touch.


So here I am, hoping this is going to be benign, and hopefully pray that whatever is does not increase in size. One possible reason is having stone in the salivary duct, in that case it should be easy to fix.

Dr noted "submandibular saliadenitis" as dx code (diagnosis) and also asked me to have a hearing test. There was bilateral sinus some kind of thing too, so he is not rulling out that sinuses might be contributing to some of my pains. There are some cyst in the now infamous right side (where everything happens) sinus.

I started going to gym again, after 30 days brake due to harsh weather and extreme jaw pain. Yesterday I felt OK, today I just layed in bed for most post but then decided that I need to go to gym every day to establish a pattern, and then if I deviate from this pattern, it would be good indicator that something isn't going well. I love exercise, it's just the matter of managing the pain and staying focus.

As I was in gym whoever, I realized, that I am no longer like anybody else. Realizing that this TMJ problem if not yet, then will cause tremendous changes in who I am. My sense of self, my image of self has already shifted - knowing that my character, my personality is changing due to chronic pain. If it is not pain, then the medicines have substantial cognitive impact. So here I was, looking at guys my age, playing basketball, laughing out loud - at that time I realized that it will be hard to back to where I once was - an athlete during my elementary and middle school.

This decease is serious. And it is hard to come to terms with it, as it might progress, even worse, one might simple get used and live and adapt.
It was painful and almost made me cry, saying to myself -

I was,
but no more.
I did, but no more,
I will, but when,
will I ever be same?

I am at the point of spending some time daily meditating on the fact that our bodies are tempeorary, and they will brake down earlier or later. Never in my mind I could have imagined that such debilitating, incapacitating condition would grasp me into her claws.
It's difficult to agree to this, as being 25, you except to have all the energy needed, you except to be able to work and even help your family, and now, it's the other way around - I am thinking of moving back with my mother as I am often so sick that I do not cook, or even if I do, do not eat food.


It's a struggle to realize that we are not in control of the aging process, and deterioration of our structural units that supports us - our bodies.
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Tmddyan

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Posted: 03-04-08 13:48pm

unfortunately we arent in control of our bodies--most of the time i wish we were--i hope that you get a hold on this and quick. do what you need to do to survive. get a vitamix and have someone blend good nutritious food for you.you can even use met-rx a protien shake to try to help you to maintain some weight.hang in there
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edgaras

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Joined: 15 Feb 2008
Posts: 86
Location: Chicago, IL

Posted: 03-06-08 00:38am

had ct scan today for neck - right side of mouth floor.
hope this will have some use.
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Tmddyan

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Posted: 03-06-08 13:37pm

let us know results.
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edgaras

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Joined: 15 Feb 2008
Posts: 86
Location: Chicago, IL
CT results
Posted: 04-21-08 17:10pm

CT showed that I am missing a parotid gland.(!). It did not show any calcifications that were of concern in regards to possible salivary gland obstruction - however, everything came back normal. Funny thing is - when I and the PA were looking at the CT images, she appeared so confused, not realiing that the CT did not include the TMJ area. I told her, TMJ is way up, by the ear, this CT was only for neck and bottom of the mouth. Doctor then came in who said, "hm, strange, CT was not able to see your parotid gland, well come back in 2 months, maybe this things will burn itself out". That's it.
Nothing else, nada. No corcern showed for the nodule (lump) that has appeared at the floor of the mouth - PA said "maybe it's fibroma, we dont' know". I said, "i hope it's not carcinoma". She had this blank stare at her eyes, obviously her first year of practice. I was also chocked how incapable of reading the radiography results doctors are. You basically need a radiologist specialist who can go over and explain to you what he has observed on the CT. I am sheduled to meet one next week, as there is this Dr. H from UIC, very smart doctor I must say, with short temper, (the way I like the doctors, when it comes to addressing issues), but in my casem, it was the opposite, rather than adressing, it was a sence of dodging. He assured me that my previous MRI scan does not show any abnormality, while the radiologist clearly indicated - cyst(s) in the condyle, translation-rotation abnormality in close-open position switch. I smell something.
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Tmddyan

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Posted: 04-22-08 15:20pm

go back and ber persistant---get what you want and dont let them get away with this. he doesnt make money if you dont go to him--tell him you will go somewhere else
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edgaras

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Joined: 15 Feb 2008
Posts: 86
Location: Chicago, IL
funn,y thing is..
Posted: 04-23-08 22:22pm

funny thing is that I learn more from hearing what the physician's asisstant and the doctor talk behind the door then they tell me in the face. For instance,
I heard PA say "is it possible that if the one gland is missing the other (parotid) gland is doing extra work.

CT was not able to see left parotid gland, and it said that the right one is small.

Yes, I will be persistent as much as I can. Recent days I have so much pain it's hard to move around and do daily activities. I am thinking of arhtroscopic procedure, at least they will see what's happening inside. I'm just not sure who to see. My TMJ dentist said I should go to TEXAS, yes TEXAS, and I live in Illinois, to see this surgeon because he is "the best". Argh!
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Tmddyan

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Posted: 04-24-08 00:08am

well i bet you i know which srugeon he is talking about and beleive me he isnt hte best---his older brother is---he did my surgery and i had to go to michigan--i live in idaho.
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edgaras

Supporter
Joined: 15 Feb 2008
Posts: 86
Location: Chicago, IL

Posted: 04-24-08 00:16am

michigan is much closer!
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Tmddyan

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Joined: 13 Jun 2006
Posts: 4346
Location: post falls, id usa
Thanks: 93
Thanked:63

Posted: 04-24-08 00:41am

good----want his info?
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edgaras

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Joined: 15 Feb 2008
Posts: 86
Location: Chicago, IL
info
Posted: 04-28-08 21:13pm

Yes, if you would please post it or send a private message. Thank you so much!

I was even considering looking for doctors outside United States if I cannot someone. Many of the docs are hesitant to do anything invasive, perhaps for good reasons, but what is the patient left with when pain is so bad that activities of daily living such as self care are dramatically altered.
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