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Conditions and Diseases > Epilepsy Forum > Feeling during epileptic fit ?
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Q: Feeling during epileptic fit ?
asked by: lilt on March 22nd, 2009
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Hi i was just wondering if anyone would be able to share with me their expriences and feelings during a fit?
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yasmin123456
replied on March 31st, 2009
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I FEEL LIGHT HEADED FAINT -DIZZY SICKAND FLOATY AND HAVE A SLIGHT BUZZING NOISE IN MY EARS FEELING FAR AWAY FROM REALITY AND FEELING SCARED EXSPECIALY IF IAM WITH SOMEONE AS IAM WONDERING IF THEIY CAN TELL THAT SOMTHINGS HAPPENING TO ME ..CANT KEEP TRACK OF CONVERSATION AND THE MORE I TRY THE MORE DISTANT I FEEL -CAN THEN FEEL PANICY TO
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yasmin123456
replied on March 31st, 2009
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hi their iam just waiteing to be sent for tests to confirm if i have epilepsy or not, it all started when i was around 16 maybe[my clearest memory of one- i would feel strange over whelming feeling and i would suddenly feel out of touch with everything around me -will begin to feel scared and have a slight buzzing sound around me and sometimes can even get as strong as a headache-will feel a bit off balance and floaty and my vision is like their is a paine of glass in front of me .if iam in company and mid conversation and even if i try to focus its very hard and just loose sense of the whole conversation-feel scared and sometimes a slight tinglely sensation-although this sensation does not always [i think happen] .recently after a space of maybe a year thes events have started up again - i think that it happens more if iam stressed and also i have a strange feeling which is a scary out of control emotional feeling i get to begin with...no matter how much i try and stay and take control of the moment i cant and even can start muddling my words up if i just so happen to be in company which makes it more scary as i know that its happening ..please someone can you help me and tell me if any of you epileptic sufferas feel like this or any body knows what the symptoms are-they are effecting my life terribly
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reliant1
replied on April 7th, 2009
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My pre gran mal aura sounds like what you are describing - except it is followed by a full seizure for me.

The sense of becoming an observer rather than participant is weird - I understand everyone but can no longer communicate. I tend to smile and nod and then off I go...

My control was much more of problem when I was younger and had my period. Every one I had was pre-menstrual when grumpy, stressed, not sleeping well and not eating well. I got tired of arranging my life around my period and when I was in my 40's I forced my internist to give me the meds to induce menopause. I arranged to see him while in the midst of a serious premenstrual 'mood change' and scared the heck out of him. No seizures since then. I had a problem when I got reflux and began using Prilosec - turns out it raises serum levels and I got a little toxic until I figured it out. My advice is to learn every single thing possible about any meds you are given - most will be affected for good or bad by lots of other meds, all have side affects and long term consequences. I figured I would trade my liver for workable brain cells.

The only fear I have ever had was breaking my brain while too many docs played with it.

So far so good - I ski, rock climb and used to race off road trucks. Now, I manage a sleep lab, nurse my arthritis and quilt. Except when I am conquering a big piece of granite or trying to make it down a diamond trail with no falls (never gonna happen).

Don't be scared too much - be annoyed that you have to put up with the silly thing and get it controlled and own it for yourself because no one else will ever love your brain more than you do.

Good luck!!
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Lufal
replied on May 29th, 2009
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Hi!
I am not sure if it´s epilepsy, but you can read the description I´ve done on my previous post.
Lufal
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twistingoak
replied on June 3rd, 2009
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Creepy - as a child I would have a feeling about 6 inches outside of my stomach and head. Now the feeling is 6 inches outside of my stomach and right hand

Its very uncomfortable and intense. I'd love to explain it further but even before I lost most of my collegiate vocabularly I'd yet to come across any words that would describe a feeling like that.


During on of the CPs I had last year I was actually trying to talk to a doctor when it happened. I suddenly couldn't finish my sentence due to the intensity - then the hallucination came where I saw a nuclear bomb explode on my right hand. I moved my hand in front of my face where I could see two right hands. My actual right hand, with no bomb exploding, and the right hand with the bomb, that my mind was trying to tell me was there. I kept concentrating on the real hand, telling myself, "there is not a bomb there. See. Its impossible to have a mushroom cloud on your hand." After the seizure I could converse just fine with the doctor EXCEPT it was about 6 hours before I could explain anything at all regarding my hallucination. I could picture it clearly, but mind would not form a single word that would describe what happened.

*complex partials anterior region of the left frontal temporal lobe
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