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Facial Swelling after sleeping

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Hello, I am new here and the reason I joined is to try and find a reason for my baby’s ongoing/undiagnosed facial swelling (usually around eyes, but somtimes cheeks and lips). My baby is 17 months old and for the past 6 months she has had facial swelling after waking up from asleep. This does not occur every day, but hit or miss (sometimes a week straight, sometimes once a week). We have been to every pediatrician and allergy specialist in our area without any diagnosis for her condition. All blood test come back "good" from what we are told. No genetic history of diseases on either side of families. We have tried different washing detergents on her bedding (straight baking soda too). They ruled out food allergies also. We live in a basement apartment, no pets, no smokers (in our apt.), and a shared building wide washer and dryer. Any advice would be greatly appreciated. This is my last shot before we pack up and head to the Mayo Clinic.
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First Helper User Profile mominashoe
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replied September 14th, 2009
Community Volunteer
Wow, I don't know if I've had someone so thoroughly check up on anything before posting here.

It could be mold. Since you are in a basement, mold is quite common. She could also have poor circulation.

The fact that it does not occur every night, or maybe for a whole week at a time really makes it a mystery.

I would suggest an alternative health care doctor, maybe a homeopathic doctor would have an answer. Some can determine what is wrong with their patient by just looking (no tests or prodding involved.) Some can also determine allergies that regular clinicians cannot. I would think it's a food allergy that isn't coming up from the tests that she had since it's such an uncommon occurrence.

If you do find out the cause of this, please do come back and let us know for others who might have the same problem. All my best!
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replied April 11th, 2010
Facial Swelling
My 13 month old daughter just started the exact same thing. The swelling around her eyes is accompanied by small red patches sometimes near her temples, often along her cheeks. We introduced whole milk to her the other night and thought that might have been a cause, but didn''t give her any yesterday and she still woke up this morning with more swelling and redness. We washed all her bedding, didn''t give her any new foods...It doesn''t seem to bother her. WE TOO LIVE IN A BASEMENT APARTMENT...that''s the only common thread here. Any thoughts?
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replied March 18th, 2011
Facial swelling on my 20 month old
My 20 month old just started with this today!!! We are freaking out I took him to his Doc.. and she gave us no answer. Please let me know if you have found the cause to this... by the way I dont live in a basement and I did wash everything and he still woke up with the swelling on the cheek he was sleeping on. Sad
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replied July 26th, 2012
Toddler Facial Swelling
I have a 16 month old son and he has been having this problem fore 2 months solid.... No answers and we have yet another dr appointment today.. I am getting frustrated beyond belief. I own my home but do have cats. The have been sent to the basement and anyone with contact has to change all clothes. But it started out of nowhere. My son was on soy formula until may/june and then we went to whole milk and he did not do well so they said 2% milk. He has done good on that but soon after he started this. Is it the milk? They say no but I am starting to wonder what kind of food it could be.... It never happened before milk and solid food that wasnt baby food in a jar. If anyone comes up with anything please let us all know. Mayo Clinic is not at all a bad idea. Its my baby and I dont want to get to the point where its his throat or even brain.... Since no one seems to know why its happening then they cant assure me its not going to effect anything else.
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replied November 22nd, 2012
Eye Puffines, Swelling, Nephrotic Syndrome
We were suspicious of something being wrong with our son who just turned two in July. We were concerned with swelling around the eyes and booked an appointment with his general doctor who assumed that it may be an allergic reaction to something. After our app. that night, we notice his legs were swollen and we decided to take him to the emergency room(mother's intuition?). They planned on discharging without a diagnosis did not think they were swollen much but the Dr.'s reference of how skin reacts when pressed were comparisons to the elderly. Plus, my son is a skinny kid that when swollen, may not be as noticeable. My wife asked if they could at least do a urine sample before leaving since the previous ER Dr. had mentioned it before he was off of his shift. There was protein in the urine and was monitored overnight. Fast forward to today (2days later), he is suspected to have Nephrotic Syndrome and began a treatment of a steroid (prednisone). When my wife went to the hospital, I was searching like crazy on the internet and came across this post that came closest in what my son is going through. We see the specialist on Monday but if you would like further info on this disease, go to Standford's site and type in this disease. Also, you can google (image) the disease and see if it's something similar in eye puffiness that you may notice with your child.
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replied November 22nd, 2012
Experienced User
You must have to go to the specialist on that to check it. It sounds so dangerous for a baby to suffer on that.
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replied December 7th, 2012
swallen face
Myself and my wife are very worried. Our little girl has just turned 2, We got a call from nursery saying our daughters cheek is very swallen and hot to touch. So we rushed her down to AnE. The doctors said she has had an allergic reaction to something. And said too give her piritan. 2 days later she had it again. We gave her piritan again. The following day the nursey rang and said this has happened again.Well we relised that 2 times at nursery she woke up with a swallen cheek all red and hot and the same at our flat too. We are getting very worried. We have not changed her diet, she has been on full milk for a year. Can anyone give any ideas. Please.
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replied May 10th, 2013
swelling when she wakes up
My daughters is having the same thing she's five months and she will wake us up Durning her sleep and let us know even tho she's on a monitor for when she sleeps she stops breathing . Doctors have no answer why this is happening she has been admitted three times since she was born . Been to every doctors and no answer what a mom should do ? P.s we do not live in apartment or big house we live in a 1996 trailer .
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replied July 7th, 2013
I have been looking for answers also. My 8 year old son has symptoms similar to these. I am at a loss as to what this could be. I know that he falls asleep immediately after lying down. And he falls into a very deep sleep- can't hardly waken him if i needed to. Anyways, the minute he sleeps, it seems as if his head starts sweating, his hair changes pattern or shape-?- if you will, and his head and face begin to swell and or change shape. I see this because i am trying to find an answer. If i didn't know something was wrong, i probably wouldnt notice these facial changes. Combined with eye issues, and headaches, and well -- I DONT KNOW WHERE TO GO. Any answers or responses are appreciated.
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replied July 14th, 2013
facial swelling
Hi all
I'm very new to this but this is my story so far and would be so greatful if anyone could help !
My little girl is 18 months old now and has been suffering from facial swelling since she was 11 months.
She woke up one morning with her one eye swollen shut, we went to our doc and said she had a eye infection, from then she has been in and out of hospital with them first saying it was a viral infection and then said it was a allergic reaction and to treat it with piriton. We have been doing this every time she has a reaction but a one time the reactions was that bad she was on piriton for 2 months.
She has had loads of tests, food tests , dust mite test , milk test and more with them all coming back fine.
Sometimes her reactions are every day then they will go away for a few weeks then come back.
She now has swelling on her eyes, lips , cheeks and once her forehead.
I really don't know where to go now or what to do?? Sad
it kills me every time I see her like this. We are from the uk and don't have anything like the Mayo clinic here or we would be there.
If anyone has any advise at all please please comment !
We would be very greatful
Thanks Sarah x
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