I am kind of in the same boat you are in -- except I have insurance right now, but not for long as I am about to turn 26 and am really afraid of what to do when I get kicked off my mom's insurance.
I rely heavily on narcotics, and a medication called Enbrel -- I really don't know what I would do without them, so I am desperate to find a job where I get insurance...which is difficult in itself.
What I suggest for you -- do you have any access to a pool? At a rehab place I went to they had a warm water pool I could use, it was the only way I could exercise. (I think even YMCAs have warm water pools) My Ehlers Danlos is really severe, so much so that I was pretty paralyzed between the ages of 22 and 24 and could barely get around on crutches.
Also, I believe you can obtain something called a TENS unit without insurance. You place electrodes on the area bothering you most, and it's a massage type deal.
I am thinking about trying one of the only things I haven't tried yet, acupunture...which insurance can help with but you don't necessarily need it.
I literally feel your pain, I wish you luck.