Muscular and Nerve Disorders Forum

Hi

I just like to know if eating-disorders is commonly associated (though most probably indirectly) with people suffering from Marfans disorder?

I know that people with mitril-valve-prolapse generally has a low BMI (Body mass index), but how much of the cardio could be responsible for eating habits in a Marfans patient? Does anyone know why it causes a low BMI?

Since childhood, I have had several problems in terms of eating...

1. I would feel full before I even start eating and my throught would feel blocked (as if though I had allready eaten too much). I would have to wait a while and would only then be able to eat.

2. I can't stand certain textures and/or mixture of tastes. Some tastes makes me physically ill and want to through up.

3. I eat vegetables but ONLY if they are raw...i just can't stomache the texture of cooked veges.

4. I can't stomache any sauce or marinade.

5. I don't have to eat much to feel full.

Some possibilities?

1. Hernia ?

According to a doctor, I am supposed to protect my tummy as I have a hernia...if I understand it correctly, this could cause my stomache to push up into my chest cavity and push everything out of whack...

So could it be that my stomach reacts, when food becomes a topic, in such a way that it causes my throught to feel as if though it is blocked?

2. High-Arched palette ?

Due to Marfans, the roof of my mouth is higher and more arched...

Could this affect my taste and sensitivity to certain textures?

3. Specific body needs ?

Could the Marfans, cause my body to crave certain foods more than others and actually reject certain food?

I can't see how it could be picky-eating as it is just not possible for me to keep certain foods down...

Any suggestions, comments? I am not too overly concerned about my eating habits as I have been eating like this for almost 29 years...I am just very curious as to why I have such totally "different taste" to other people.

Thanks in advance

ED & Marfans