Very similar story. I've been suffering for almost fifteen years. I have a audible clicking sound when I move my head, drink, and speak. At first they thought it was TMJ, and although I do have bruxism the pain I was feeling was in my neck and a dull ache radiating up to my left ear. My ear lobe was painful to the touch. I saw an ENT at UCLA and was treated for Myoclonus of the palate... Botox to the palate... just made me sound like Fran Drescher. Then they wanted to put tubes in my ear drum... they thought I had eustaschian tube dysfunction... well, I knew that wasn't the case, so I never went back to UCLA. I have a wonderful ENT now who actually listens to me and what I have to say. I recently found out that my hyoid bone was fractured and had surgery to remove part of the bone. My ENT thought that may have been the cause of my clicking, but unfortunately it was not. Although the tugging I would feel on my tongue has gone away I still have the clicking sound, headaches, ear aches, and neck stiffness. My current ENT thinks that my Styoid process is the cause of my problems and has referred me back to UCLA for a consultation and hopefully surgery to remove the styoid process. Ironically UCLA ENT's are the experts at performing the Styloid process surgery... go figure. I am scheduled for a consultation at UCLA in two weeks. I am relieved to finally know what is the cause of my pain and clicking and hope that they will agree with my other doctor and will finally fix the problem.

sounds like what I had, my neck was stiff on the side were my styloid process was elongated my tounge felt like I had bit it down by my throat,my ear on that side had pressure the feeling was a constant feeling it felt worse some days but never and I mean never went away for even a second once it had started I constantly was twitching , stretching,and pushing on my jaw for some kind of relief my doctor is down in irvine, ca if yours doesnt agree see mine insist on a tomography or 3D cat scan ,I was diagnoised by a oral surgeon who took a panaramic x ray ,took that to a ent and he told me to get a reg medical x ray and didnt show up, so He had me get a reg cat scan it didnt show up on that(because it will only show up on a 3D cat scan or tomography)the problem told me I didnt have eagle syndrome even though it showed up on the panaramic I had which he wouldnt look at told me to see a neroligist I went back to my oral surgeon took another panaramic x ray it showed up again had my ENT call my oral surgeon and when he found out that i did have eagle syndrome he dropped me ,the moral of my story is no matter what they tell you or how smart they think they are it will can only be diagnoised on a 3D CAT SCAN ALSO KNOWN AS A TOMOGRAPHY ONLY NO OTHER WAY OR X RAY WILL DETERMINE IF YOU ARE SUFFERING FROM EAGLE SYNDROME , DONT LET THEM GIVE YOU THE RUN AROUND

That's is so bas Deleone, I am sorry - doctors are sometimes so ignorant - they don't want to take hard cases - at least they would explain - or say that they are not experienced in the area.

Again Deleone, tomography refers to computerized tomography, also know as CT scan. I agree, however, that regular x-ray will likely not show the calcified ligaments, unless someone who really understands it takes it from certain angle and knows what to look for - but then again, before surgery they will likely have to do a CT scan. So here you have it.
Deleone, was 3D CT expensive, if you are insured, did they pay for it?

they did cover it luckily my new ENT called the place were i received my cat scan and they were able to turn it into the 3d cat scan that i needed ,but the styloid first showed up on a panaramic dental x ray which cost $90 dollars thanks edgaras

deleone, they probably took regular CT scan, they can't turn regular CT into what you call 3D CT - what they did was probably "reconstructed" the images - I have a CT scan CD, and few of the images includes are exactly it - they put all the slices together and you have your 3D image of skull. But I guess there are many ways to reconstruct an image - leave some parts out, so the calcified ligaments are more visible, etc.

3D CT - that's a newer version, that uses less radiation and is much quicker Some dentists/oral surgeons now have these units in their offices. It's like a mini version of CT, but yet again, if you research online, the images that they provide (cone beam CT aka 3d-ct) are amazing from what I've seen online and in the research journals. Although there are many old fashioned doctors that are skeptical of it. My own oral surgeon, who I thought was the best, said that regular ct scan would be better - yea right, probably better in his pocket form the "commission"/bonus points he gets from the hospital he refers me to

ed

THANKS FOR HELPING ME UNDERSTAND MORE OF WHAT THEY DID ,DO NOT WANT TO MISS INFORM PEOPLE ON HERE

if u ever have another CT scan, I would definetely go with 3d-CT aka cone beam CT, it is not as widely available as regular CT scan (where you have to go in this bed and they wheel you in). If I EVER again need a CT scan, I will do everything to avoid regualar CT as they expose to too much ionizing stuff..

How much does a 3d ct scan cost out of pocket if your insurance doesn't cover it?

AROUND 800 TO A THOUSAND IF YOU THINK YOU HAVE EAGLE SYNDROME I SUGGEST GETTING A PANORAMIC X RAY FROM A ORAL SURGEON YOU WILL SEE A FAINT FANG LIKE GROWTH STATING BEHIND WERE YOUER EAR IS ,THATS HOW I WAS FIRST DIAGNOISED IT COSTS AROUND $90 BUT LOOK AT THE ORIGINAL CLOSELY,LUCKY FOR ME MY ORAL SURGEON DELT WITH IT BEFORE

i am happy for you deloene, awful lot of people here have minor problems ranging from ringing in the ears to minor pain which can be controlled with simple medication such as ibibrofen. Too bad for some, that have developed neuropathic type of pain for one reason or another.
And for those that have more traumatic cases such as dislocations of the jaw, joint arthritis etc etc.
May we all find relief one day of some kind.

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