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Q: Eagle syndrome diagnosis
asked by: DELEONE on July 16th, 2009
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I just had my styloid ligament removed from my right side.My sickness was eagle syndrome a very rare easily misdiagnoised syndrome.It occours when a 1 or both styloids growing off your skull elongates and then cacilfies pretty much it keeps growing in turns to bone.It started with me getting sick normal fever like flu symptoms for 2 weeks when my fever went away my right side felt swollen in my ear and throat felt irriated.This pain stayed with me for 9 years during that time I had my touncils removed adnoids remove saw 6 ent s 3 oral surgeons and was sent to a cancer center, I received numerous blood test x rays and cat scans years apart,not one of these doctors had a solution for me they would blame it on my allergies or the fact that I breath mostly through my mouth.I felt like i should flop aropund like a fish in front on the emergancy room, this pain hurt every day some times wosre the others but always present finaly I saw a oral surgeon who took a panarimic x ray,he pointed to the stloid on the right side and told me to go back to a ENT I did the guy ordered medical x rays and would not look at my panoramic x ray ,he came highly recomended so I took his word the x ray showed no signs so he told me I didnt have it, but ordered a cat scan to make sure. the cat scan didnt show it either he told me I didnt have eagle syndrome and thought I should see a nerouligist,i didnt listen to him went back to my oral surgeon who took another panoramic x ray it showed again i called my ent he talked to my oral surgeon and dropped me when it wdas diagnoised i found a good ent and had my styloid removed hope this story helps some one out the best way to get diagnoised is with a 3d type cat scan
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DELEONE
replied on August 7th, 2009
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ITS BEEN A MONTH SO FAR SINCE MY SURGERY ,HEALING IS GOING SLOW BUT FEEL 30% BETTER
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tinacoffmon
replied on September 16th, 2009
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Who are your doctors? I have been dealing with eagles since 1997 and I am exhausted.

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DELEONE
replied on September 17th, 2009
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christopher yian ,in irvine ca
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weebo
replied on November 20th, 2009
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Hey Deleone, how are you feeling now?
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