I personally have not heard of this. I am going to research it so I know what it is and what causes it. Sugery? Most be connected to Tempral Mandibular Joint and the bone surrounding it. Is it hard to chew? Can you feel it slip out of place from time to time?

It does hurt to chew, BUT, it is not a joint problem. The tmj specialist was confounded and never was able to help me. A neurologist is the one I got this diagnosis from. It is caused but an elongated styloid process. I go back next week to see what is the next step. The chief symptom, although there are others, is constant pain for the last 2 years. Hey Carrie do you know anything about Neurontin? I was suposed to try it to get me off some of the narcotics but it made me so dizzy and spacey I quit taking it.

Not really. Just that it supposed to help with pain and RLS. And also can be used for siezures and antidepressant. It is related to the Lamictal family in sort. I can cover many different symtoms. Kinda an all around broad spectrum medication. I just know that it has been know to treat many things.

Hi Metalcrystal,

I was just diagnosed with Eagle’s Syndrome after years of pain. Have you found anything that has helped you?

Well, unfortunately I am back at square one. The eagles syndrome that the neurologist was so sure i had was not confirmed on the x-rays, they showed the elongated styloid but not to the degree he thought they might. So he sent me to an ENT surgeon, who pretty much laughed at that diagnosis. Needless to say I never went back to him. SOOOOO, here i am, exactly where I was a year ago, still on pain meds, eating soft food and definately not seeing any more specialists! I go to the chiropractor
twice a week and have trigger point massage every week also. I am managing the pain but have still not found the cause. I personally think arthritis in the jaw is a good bet.

hi my mum has just go through surgery and is still been recovery for 8 days now. its very difficult to understand cause the pain just came back after the operation! now she's a little bite ok but we can't say about tomorrow!

Hello,

I was diagnosed with Eagle Syndrome after four years of symptoms. I had all of the classic symptoms; sore throat, foreign body sensation, earaches, jaw pain, headaches, pain down my neck, shoulder and around my head and choking & swallowing difficulties.

I went to every kind of doctor; ENT, Oral Surgeon, Neurologist, Infectious Disease, Chiropractor, Orthopaedic, Cardiologist and even a massage therapist.

I went to another Oral Surgeon for a 2nd opinion and asked him to order a Dental CT. In the last six months, I've had numerous MRI & CT's. The Dental CT showed my elongated Styloid Process without a doubt.

I am having surgery in a few weeks to remove both Styloid Processes and I cannot wait to be paind free! My surgeon is at Loyola University in Chicago.

After almost fifteen years of pain and seven different ENT's I have finally been diagnosed with an elongated Styloid process. Your symptoms sound very much like mine, but I also have an audible clickling sound from the Styloid area that is audible... meaning other people hear it as well. and since I am a voice over actor the clicking sound has been more than annoying. The microphone picks it up. Not good. Clients have asked if I have dentures... again not good.

My current ENT has referred me back to UCLA for a consultation and if they agree with my doctors findings, hopefully surgery to end my misery.(They misdiagnosed me four years ago, but they are the experts at styloid process surgery.)

I am curious how your surgery went. How big was your scar? How long was your recovery? Are your symptoms finally gone?

I'd really appreciate your response.

Thanks