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Eagle's Syndrome surgery recovery ? (Page 1)

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It is day 4 after my calcified styloid ligament has been snipped and a piece of the stylhoid bone itself has been snipped off. I am in tremendous pain, my doctor has prescribed me 30, 7.5mg/325mg Oxycodone/APAP, I am finding it neccessary to take up to 6 a day at the time being. Day 3 I got a drain tube removed from my neck so it seemed to amp up the pain a bit more as i can feel it all healing now, and healing hurts. I guess what im asking is since i got my surgery 6 hours away in Atlanta, GA and not in Florida where i live, will my doc be able to perscribe me more painkillers as I will be running out in two more days. I was told the pain probably wouldnt be as intense after the 4th or 5th day but its still damn bad. The doc i had told me that he does tons of surgeries in this particular area of the neck yearly, and that i had one of the thickest necks he had ever seen lol... im not a big guy 6 foot 186lbs. How long should i expect these incisions to hurt for? all the stitches are under the skin and i have gauze over where the drain tube came out, each day goes by and the site seems to get a little less numb and a little bit better but it also still hurts constantly. Should my doc be giving me more meds when i run out and how much longer hsould i expect to hurt. thank you. doctor
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First Helper whitney2933
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replied July 1st, 2009
Pain still very bad on day 5, ear numbness continues as well as facial numbness near incisions. If i closes my eyes i would tell you that my ear kills but feels like it is not there. like amputated or something. Pain levels around a constant 4 to 5 , I dont exaggerate on pain so i would put it at like a 4.5 all, it seemed like my doctor didnt think he would need to put in a drain so i think putting my recovery at like 5 days to a week might be half hearted. Anyway im down to 8, 7.5mg oxycodone, i need to take about 1 every 4 hours, and occasionally 2 if it is killing me. I almost require about 40mg of oxycodone a day at this point in my recovery to feel just comfortable (not completely without pain but i also want to be concious amd not too loopy. Keep in mind i was taking up to 8 or 9 of these more like 60mg for day 1-3. If you would my doctor, and did this surgery would you have a problem perscribing another 30 percocets 7.5 or 20 of them to get me through the pain. Last script was filled on Monday morning at 8am. I wont need another script till friday or saturday. Please someone answer me, this is a pain relief question scenario after post surgery, doesnt mean u need to be familiar with eagles syndrome.
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replied July 5th, 2009
got a refill on the 2nd or so. 25 10mg hydros cause they said they couldnt refill percs over the phone cause its a 6hr drive to the docs office. the 8th day after surgery guys and it still hurts. when i wake up i get a break from the pain from having been laid down all day but now i get pain starting around 2pm and it gets unbearable without pain meds by 6pm , although i am down to only taking 2 to 3 hydros a day, the first day of the script i needed a ton for the pain and the day after but these past two days have been more and more barable...still think ill need a 20mg dose for a week
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replied August 8th, 2009
Can any of you tell me where I can find a surgeon to treat Eagles Syndrome? I have seen one doctor at Johns Hopkins, and I would like to find a second opinion from another doc that has performed this surgery more than once. I thank you for any information you can provide
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replied September 11th, 2009
adramafreezone...I highly recommend Dr. W. Bradley Simmons of Canandaigua, NY. He treated me for Eagle's Syndrome. My surgery was November 20, 2008 at FF Thompson Hospital in Canandaigua. Can you believe that there was NOT one specialist at Strong Memorial Hospital in Rochester who knew anything about Eagle's Syndrome? I was shocked! Dr. Simmons performs the surgery with his partner, Dr. John Centonze. This magnificent medical team fixed up my left styloid process which was impinging my carotid artery. Normally measuring 2.5 cm in length, it was 6.5 cm when they performed my surgery. It is now back to its appropriate size. Good luck to you! I'm getting ready to have my right styloid process fixed up in the very near future.
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replied September 16th, 2009
1EMTbabydoll.. did you exhibit any pain due to the Eagle's Syndrome? And if so, is the pain now gone after the surgery? Any help would be appreciated!
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replied October 24th, 2009
Eagle Syndrome Treatment Atlanta
Did the surgery help you, decrease the pain you felt? Also you said you had your surgery in Atlanta. Would you mind referring me to which specialist you saw? I'm trying to find a doctor in the area who has some notion or clue about the syndrome and its treatment. Thanks for any help.
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replied November 11th, 2009
styloidectomy three years ago at northwestern in chicago. I am now having severe pain for past year that feels lika an icepick is being drilled through my ear. I also have numbness in the left side of face and neck. I never got rid of the numbness to my neck post-surgery. Several Dr's later and several diagnosis and I am soooo done! Has anyone had these symptoms after a styloidectomy?
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replied May 26th, 2014
Hello,

I had a styloidectomy several years ago and I am having the same problems. It is seriously impacting my life. I just stumbled upon this website... Have you had any relief yet from your pain? I am very curious to know. I am at wits end. Thank you.
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replied May 26th, 2014
Hello,

I had a styloidectomy several years ago and I am having the same problems. It is seriously impacting my life. I just stumbled upon this website... Have you had any relief yet from your pain? I am very curious to know. I am at wits end. Thank you.
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replied January 14th, 2010
styloidectomy (Eagles Syndrome)
I just had my styloidectomy two weeks ago and Dr James Merrell (970-245-2400 Grand Junction Colorado) removed both sides for me. He did surgery inside my mouth and I spent one night at the hospital. Had some pain after words and the doctor explained all the risk to me. One of the bones was touching my throat making it felt like a pill was stuck and also gave me symptoms of acid reflux. And now I fell great.. Before this I went to many doctors and had many test, untill I examine my mouth deeply with a flash light and fingers I could feel a bump pointing out where my tonsill was. I went to an ENT Surgeon and pointed out the bump and sent me for a CT scan with contrast, we found the problem. It was call eagles syndrome and I looked it up on the internet and youtube, the problem was found .. This surgen did a great job and was very careful but they did tell all the risk before surgery and problems I could have. I made my own decision becouse living with this problem could get worse and make my life miserable.
write me if i can help
Art
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Users who thank whitney2933 for this post: grammy6pak 

replied February 10th, 2010
Dear whitney2933

I was diagnosed with Eagles Syndrome yesterday as a result of my CT scan. I am absolutely miserable. I can no longer swallow solid foods and am now drinking Ensure. I lost about 10 pounds and now weigh 96 pounds! I see my ENT surgeon on Monday (now Wednesday) and am very scared with all this uncertainty. My doctors are at Johns Hopkins. I had this terrible pain in my ear and throat for over 2 years! The doctor's diagnosed me with multiple sclerosis but they said it was a "mild case". I have no other MS symtoms except this hideous facial and throat pain. Please give any thoughts of wisdom if you get this...

Best,
Joyce
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replied February 18th, 2010
Any Dr. in albany ny who has done surgery on The Eagles Syndrome
My name is Melanie I live in Albany NY. I have been diagnosed with Eagle's syndrome...some of the symptoms are pain in my chest, left arm, teeth and neck...some times unbarable pain. Does anyone know of a Dr. who has done the surgery in the albany ny area? please reply to me asap.
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replied February 26th, 2010
Styloidectomy
I was diagnosed with Eagle's syndrome and carotid artery dissection October 2009. Pain in the back of my neck and headaches have been debilitating. Does anyone know a good ENT doctor to perform a styloidectomy in the Philadelphia area?
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replied October 23rd, 2011
Dr cognetti Thomas Jefferson hospital. I am having surgery Dec, 5,2011.
I' ll let you know how it goes.
Chloefm
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replied October 23rd, 2011
Dr cognetti Thomas Jefferson Hospital, Philly
He is doing my surgery Dec, 5 2011
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replied May 6th, 2010
JasonInPain...I'm sorry I have not been back in the forum here for some time. I did not experience pain afterward. In fact all of the pain I experienced prior to the surgery was instantly gone when I woke up in recovery.
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replied May 6th, 2010
LadyM114 and SummerFun...I assume that you are very frustrated with the limited knowledge out there regarding Eagle's Syndrome. Once again, I will put out there that Dr. Warren Bradley Simmons in Canandaigua, NY is phenomenal! I highly recommend him. I can tell you that from my previous posting about Dr. Simmons, someone from Florida saw my posting here and contacted him. I saw Dr. Simmons for my continuing post-op f/u checkups. Dr. Simmons told me about the numerous surgeries this fellow had previously without any other doctors having diagnosed Eagle's Syndrome. He said that my referral to him gave this gentleman his life back. He even repaired a hole in his ear that someone else put there. So I very highly suggest that you contact Dr. Simmons and arrange to see him in Canandaigua, NY. He will give you your life back! His phone number is 585-396-3110. Good luck to you! Keep me posted. I'll try to stay more current on here.
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replied May 14th, 2010
Experienced User
Thanks for all the names of doctors familiar with this surgery. Because this is rare it is hard to find experienced surgeons for this, so this is good help.

I'm from Europe and will be undergoing a styloidectomy (external) in the University Hospital of Antwerp (Belgium) in the next few weeks. For people from Europe it may be good to know that their ENT department has a high level of experience with this, as they perform this surgery about once a week and claim an 80%-90% success rate. I've been miserable for a number of years; you can find more on my story here:

http://ehealthforum.com/health/eagle-s-syn drome-t207038.html

I'm happy to read that a number of people have had such good results from this surgery, that's reassuring. After my surgery I too will post my experience here.
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replied June 10th, 2010
Weebo, how did your surgery go?
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replied June 22nd, 2010
Can anyone tell me how long their styloid process was before they considered you for surgery?
I have just had a ct scan which shows the styloid process on both sides are 58mm.
My only symptom though is severe ear pain on the left side and was due to have surgery for Geniculate neuralgia until this scan showed this finding.
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replied February 23rd, 2012
styloid size
i have the elongated styloid on both sides,
left is around 6.3 cm and the right (what they can see, it goes off the page) is 6.8 cm. with two joints in it. it is also trying to attach to the hyoid bone on the right side
just had the meeting with the doc in st louis and he said he didnt think it is bad enough, and i dont have enough symptoms for a long enough time to justify taking them out. this was just after he told me that i had about the biggest and worst case he has ever seen in 30 years.
for the last 10 + years i have had a swollen gland under the right jaw, and a gagging/choke .
headache, eye pain, face pain, neck pain, changes in vision on the right side.
a lot of the symptoms change with the position of my head. if i tilt back, the pulsing headache gets worse, turn head down and to the right, the gag kicks in.

it almost feels like the right side is wanting to poke through the bottom of my jaw sometimes

right now, i dont think any of the doc's have a "standard" to go by.

i have read that some put the removal length at around 3.5 to 4 cm.
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replied July 7th, 2010
Find an Eagle's Syndrome Surgeon in NYC area
Hello. I just was diagnosed w/Eagle's Syndrome today. My dentist thought maybe and sent me to orthodontist who has 3D xray machine and it showed it. At least I know what the pain behind ear is now. Now to find a dr. in New York City area or Connecticut to perform surgery if necessary. Anyone have a doctor from this area that performs this surgery? Thanks!!
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replied March 8th, 2012
I just went to NYU and saw a ENT specialist and was diagnosed with Eagle Syndrome. I have pre opt next week and the week after the surgery. The surgery will be through the neck.
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replied October 19th, 2010
Help for Eagles Syndrome
All I can say is acupuncture. I was miserable wondering how I was going to live with the pain and could not even turn my head to the left. Then had my first treatment and it was about 50% better afterwards. Had the second one and since then no pain. I have her work on my neck about every month to keep it controlled and it is so worth having a normal life again. I sure hope this helps someone.
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replied October 19th, 2010
accupuncture etc
I agree Violetcrone. I tried accupuncture recently and it really did help! And I will keep it up. I have Eagle's but also TMJ from worrying about it. But, i have good days and not so great days. I do think accupuncture helps a ton and TMJ physical therapy etc. I'd still love to know of a NYC area doctor for future surgery if necessary. Thanks.
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