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MS is a relatively unpredictable disease of the central nervous system. Learn about the four types of multiple sclerosis here....
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Diagnosing MS is fairly straightforward. Learn about the diagnostic tests and procedures neurologists use to confirm or exclude an MS diagnosis....
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Q: Dx'd with MS
asked by: MSBengal on September 16th, 2008
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Amazingly, my initial reaction to the dx was...relief! I had been feeling "off" for approx 8 months since what I now realize was my first "Exacerbation" I guess. In December 2007, I went to the hospital for tingling in the right side of my face near my eye and severe muscle pain in my right side shoulder and neck. They doctors tested me for everything under the sun and after everything came back normal, they told me that it was probably nothing. For the following month, I was getting some tingling in my fingers and muscle stiffness in my left hand and arm that lasted maybe 5 minutes. For the next few months, I felt basically normal and thought that the doctors were right...it was nothing.

In late July, I began to get a re-occurence of the tingling near my right eye and also over my lip. Neuro doc ordered MRIs of my neck and brain, along with an evoked response test. The MRIs showed a few lesions in my spine and brain bridge and the evoked response test showed a slight slowing of the right optical nerve.

A few days later, my left foot began to feel funny. The best way to describe it is a hot/cold, tingly, strange sensation in the foot and lower leg. At that point, the Neuro decided to start me on Avonex (which I was just able to start 3 weeks ago). After the foot problem, I had two severe acute attacks within 3 days that lasted a few hours for each of them. Symptoms included sever muscle pain/stiffness, tingling sensation, muscle twitching, minor tremors, a slight vision problem in my right eye, and pain. Additionally, my coordination and balance were both off during the episodes.

For days afterward, I was very weak and wobbly when I walked. Since then leading up to today (almost 3 weeks), I have re-gained all my strength, coordination, balance and overall function. I'm able to go to the gym which is very important to me and run with ease. I am still experiencing daily bouts with minor twitching, tingling, muscle stiffness, and vision issues in my rt eye. However, they are extremely short in duration and don't come all at once. Some days I feel about perfect and others, I get those symptoms that come and go. No acute severe attacks since .the last two.

Sorry for this ridiculously long post,...I truly am, but I need some insight. Smile

Does what I have experienced sound familiar to anyone? When people get remissions, does it mean that all your symptoms clear up or can you have lingering ones?

Thanks everyone in advance. I'm glad that I was able to get all of this off my chest! Any comments would be appreciated... Smile
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MSBengal
replied on September 16th, 2008
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also...
I forgot to mention that I am a 30 year old male!
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yabels
replied on October 4th, 2008
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It must be a relief to know that you have MS and not something more serious like ALS which can take you out in a matter of years! It sounds like you have a fairly mild form of relapsing-remitting MS. I hope that you have continued ease with your DX. Make sure you keep yourself up to date on new treatments and ways to manage what you have. I don't know what your political preference is, but I do know that Barack Obama has a personal investment in caring and curing MS considering his wife's father died from complications after a LONG bout with it. (There's some YouTube video of him discussing this fact.) Wishing you all the best, and a mild process.
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Ice pop
replied on October 4th, 2008
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Re: MSBengal's post
I have experienced the same tingling and pins and needles effect starting from the left side of my face, lips, left arm/hand and leg. It was all accompanied with an uncontrollable blinking of the left eye and blurred vision. My left leg trembled/twitched uncontrollably at the time. The whole thing lasted nearly 20-30 mins. On the same day I experienced a slightly worse re-occurrance of the same symptom(s). During the time of the symptoms, I experienced a dull pain tin the back of the head(temporal region).

Initially the neurologists rejected MS, even without doing any tests. Following a MRI of the brain, white matter lesions on both hemispheres have been detected. The neurologist still rejects MS. I am a 23 y.old male and the effects of these symptoms are really affecting my day to day life and I find it unfortunate that the doctors I'm seeing cannot really tell me anything reassuring!

During this time I have been/I am experiencing difficulty in walking, increased tingling/twitching in the left hand/leg. Although i do recover for a short time, only for a new or amplified symptom re-occurs.

I also went through a psychological analysis....it came out totally negative. What type of lesions did you have in the brain? Where exactly were they? I hope it's OK for you to anwer these Q's. It's just that I feel so let down by my neurologist/consultant(s).
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