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Duplicate System, Kidney Scarring Later

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sunny Hello everyone. I just wanted to go ahead and post this topic here, in case it helps anyone out in the future with your children.

I am 19 years old, and I have a duplicate system. This means that I have 2 ureters going to one kidney. One ureter drains the top part, the other drains the bottom part. This is a birth defect, I guess you could say, because most people just have 2 ureters in total, where I have 3.

Anyway, on to the point of my post, I didn't find out until about 2 years ago that I had this. I was having urinary tract infections all the time, and couldn't figure out why. Everyone kept telling me to "drink more water," and it did seem like that was a temporary fix, but I do not drink much of anything at all, just by nature. I don't get thirsty. Razz

This went on and on, where every infection was worse than the one before, and would escalate at a faster rate. For example, the first infection I had, I began showing symptoms (slight discomfort), and it took a full week for me to be in actual pain. The very last one I had took one day. One day to go from discomfort to pure pain. The second day, I was actually throwing up. As you know, the medication to treat a urinary tract infection is a purely over-the-counter drug: you have to go in, give a sample, and wait every single time you get an infection, which for me was about a monthly basis.

After quite a while of this, my parents decided to take me to a urologist, and the closest was about an hour and a half drive. I'd had this infection MANY times before, so I immediately could distinguish the symptoms of it. I wanted to make the quick trip in to get antibiotics for it, but the doctor I had been seeing said that we should wait, and go the the urologist. My appointment was the next day. I knew I was in for one helluva time, and I was all but demanding they get me antibitoics NOW, because it takes at least a full week to cure a urinary tract infection, so why not let me get a head start to take some of the pain away?

This was about the last infection I had, and as I said they escalated more and more quickly, so that by the time we got to the urologist's office, I had to carry a little gallon bucket with me, because I kept puking. I was given medicine by him, but I threw that up too, and was then hospitalized for three days. I was told that my white blood cell count had been extremely high, which further proves how quickly the infection had escalted in me. After my release from the hospital, I was told to come back in a few weeks time so he could do an x-ray (or whatever the test was).

At this point, they realized I had 3 ureters. I was told that one of the duplicate ureters going to my left kidney was not draining properly into my bladder, and that it was instead backing up. The opening from this ureter into my bladder was too small, and surgery would have to be done to open it up. I had a scope surgery to open it up, and my urologist looked somewhat shocked that the ureter which wouldn't drain had ballooned to the size it had. Seems harmless really, but is kind of disgusting when you think about it.

After the surgery, I was told I MIGHT have another infection or two, sort of like a clearing-the-system thing, and that I had some scarring on the top of my left kidney. Well, its been two years since then, and I have only had one urinary tract infection, a month or two after the surgery.

I mention this because (according to my mom), I used to be sick a lot as a toddler. I always seemed to have some sort of stomach infection, and no one could figure out what it was. Looking back, it could have been this all along.
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replied May 15th, 2011
Hello and welcome to e health forum.

From the history provided it seems that you had hydroureter and hydronephrosis as a result of the block in the additional abnormal ureter, which was finally diagnosed by a Intravenous pyelography.

Since the condition, was immediately treated and surgery done to fix the defect, all the issues have been solved.


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replied April 27th, 2012
Duplicated ureters, Hematuria, multiple cysts, Psych child abuse
Dear Deepak,
I also have two ureters from birth. As a child, up to age 7 or 8, I had kidney pain and recurrent infections. Finally diagnosed by IVP, and treated only with sulfa drugs. The idea at that time was that children would grow out of it, ie one ureter would atrophy and the other would take over completely. There was nothing more to be done for a child at that time. This was according to the best and latest medical knowledge of that time.
It was also not understood by my parents that late bedwetting was associated with this, nor that the pain of the kidney disease was severe, so I was punished by spankings often with a belt each morning, and my mother felt it useful to humiliate me by telling everyone that I was still a bed wetter. She encouraged siblings to call me a crybaby when I cried from the pain.
To my mind, the physicians were like torturers, always catheters and injections and prodding sore kidney areas; the catheterization traumas were like parents assisting with rape and torture. I fought like a little wildcat, so I was also spanked (with a belt) after each painful visit for not listening to my mother when she told me to be still so that the doctor could spread my little legs and place something painful inside my body with her help.
After about 8 years I learned to hold my urine by practicing religiously, to sleep lightly so i could refrain from bedwetting, not to tell when I had intermittent pain, and to be cautious not to grab my side in agony when it hurt, but to hide somewhere and suffer alone. Thus, there was the appearance that I was cured of my illness, and gradually the taunts and beatings
and humiliations lessened.
At 20, as a young Medical Assistant, I discovered that I had hematuria when we examined our own urine to practice urinalysis including microscopy. The GP I interned with became alarmed or curious, and insisted upon ordering an IVP. The two ureters were still evident, but no other disease was apparent at the time, and I was not in pain, so that was that. No followup was suggested.
I continued to check my own urine from time to time through the years. I also studied to become a Clinical Laboratory Scientist, and by age 24, I was working primarily in hematology and in urinalysis, although there were periodic rotations through microbiology, chemistry, blood gas analysis, chromatography, RIA lab, and blood bank to keep skills sharp for shift work wherein each lab person was responsible for the entire scope of emergency lab work.
Thus I was able to check my various labs from time to time to see that I was in the normal range for chemistries, my CBC/Diff was fine, ect.
At 40, another physician of mine again insisted upon an IVP which showed the two ureters still there, one smaller than the other, but no apparent kidney disease otherwise, although I had blood in the urine throughout the 20 years I had been routinely checking my urine at least once per month. When the blood was heavier, there would be trace WBC and trace protein as well. This was my normal. No followup nor referrals were suggested.
Now I am 60. Recently I became symptomatic, with generalized flank pain, not sharp and abdominal distention measuring 2 inches more each evening than each morning. CT scan lower abdomen shows cysts in kidneys. Ultrasound was done yesterday. Needless to say the hematuria is still a constant for me.
Sorry this is long. But current best practice still says that double ureters are not a serious concern without symptoms, and that a single surgical intervention "cures" their problems. I could say that this is likely wrong, and that persons with double ureters should be followed
up throughout their lives. On the other hand had I been a constant patient, with repeated interventions over the years modern medicine might, as it developed, have killed me before I reached 60 years.
Parents, I hope you use my story to realize that no matter how frustrating complaining, bedwetting children may be for you, the child suffers more. Mentally, emotionally, and physically/painfully your child is suffering. Please don't add to it.
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replied May 24th, 2011
DEEPAK ANVEKAR wrote:
Hello and welcome to e health forum.

From the history provided it seems that you had hydroureter and hydronephrosis as a result of the block in the additional abnormal ureter, which was finally diagnosed by a Intravenous pyelography.

Since the condition, was immediately treated and surgery done to fix the defect, all the issues have been solved.



Yes, I posted so people possibly won't overlook things like that. Smile
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replied June 17th, 2011
two ureters in five year old
my five year old daughter has been visiting doctors for weeks now and they did an ultrasound which showed she had three uterers she has saidthat she has pain but it comes and goes should i seek a referral for a specialist my doctor says her ultrasound was okay except for the third yterer but my daughter still says it is a niggling pain
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replied September 10th, 2013
Yes you should.
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replied October 9th, 2013
Two Ureters in my right kidney
I am a 42 year old female that has two ureters in the right kidney. I just found this out about one year ago. I have suffered from chronic UTI's, I have kidney scarring, and now I have constant right kidney pain. I'm going through 3 different issues at the same time right now too. I having my gallbladder removed in little over a week. Then I'll be getting a second opinion on my two ureters. Their "medical answer" last year was to put me on an antibiotic everyday for the rest of my life. I did that this past year and have suffered from two or three kidney infections being on the medication...not to mention that my immune system has been compromised. I'm finally getting a second opinion after my gallbladder surgery. I don't know what the next urologist will do...but I'm tired from the pain and infections. After this completed, I have to deal with a torn disc and two cysts that have decided to make their home in my L3, L4 area that is pressing on my nerves! UGH....good luck to the rest of you with this birth defect!! It isn't easy...I too was a bed wetter until age 8 or so. It was humiliating!
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replied November 19th, 2013
Hello,

I was diagnosed about 10 years ago with Duplicated Ureters. However this isn't just on one kidney it is both of my kidney's. That's right I have 4 ureters, two off of both kidney's. I went into the doctor's because I was having kidney pain, low and behold I had numberous kidney stones. The doctor's said that they are small enough that I can pass them (thankfully no surgery). I never researched my condition until now and am surprised by how much information I am able to find out. Is there anyone else out there that has 2 ureters coming from BOTH kidney's?
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