I have suffered with a balance problem since I was 21 which started with an ear infection but has never gone away. At first it would come and go so I would be free of any symptoms for months but for the last two years it’s never gone away some days are worse than others it’s affecting everything I do now and it frustrates me. Below I have listed the symptoms I have every day -
As soon as I get up I feel tired even if I've had a good 9 hours sleep, I can wake up in the night and feel strange and spaced out which can take me ages to go back to sleep, I can't bend down and get up quickly or look up both ways I feel very dizzy even just standing when I’ve been sitting and turning corners can make me feel dizzy. My balance is not good if I'm in a small space it intensifies like the shower a toilet cubicle etc, I find it difficult to concentrate I can't keep my head still and stare or the room moves or it feels like I've jumped very strange feeling, I get a very heavy head which feels like its got a weight attached to it which can make my eyes hurt and heavy this then can lead to a tension head ache which is normally only on the one side of my head and goes down into the back of neck, I get very anxious if I go shopping and its very busy it brings on my balance it's like my eyes can't keep up with what I seeing there's just to much going on which makes me want to run as I feel like I could pass out or panic, I struggle in situations like if I have a meeting at work and I feel like im trapped or if I go out for a meal I fidget and can't keep still and neck and head get all heavy.
I have been to the doctors on many occasions had ear test ENT test MIR scan nothing was found they just put it down to vertigo but I don't have this as I don't get the symptoms like the room spinning and sickness.
I try not to let this effect my life I do a lot of exercise but this sometimes can make me very dizzy I have a healthy diet I have no caffeine I limit chocolate and have plenty of fruit and vet not sure what else I can do.
Any help or comments would be most appreciated I just want to live a normal life again.