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Q: dizzyness and balance problems ?
asked by: poppygirl299 on January 4th, 2009
New User
I have suffered with a balance problem since I was 21 which started with an ear infection but has never gone away. At first it would come and go so I would be free of any symptoms for months but for the last two years it’s never gone away some days are worse than others it’s affecting everything I do now and it frustrates me. Below I have listed the symptoms I have every day -
As soon as I get up I feel tired even if I've had a good 9 hours sleep, I can wake up in the night and feel strange and spaced out which can take me ages to go back to sleep, I can't bend down and get up quickly or look up both ways I feel very dizzy even just standing when I’ve been sitting and turning corners can make me feel dizzy. My balance is not good if I'm in a small space it intensifies like the shower a toilet cubicle etc, I find it difficult to concentrate I can't keep my head still and stare or the room moves or it feels like I've jumped very strange feeling, I get a very heavy head which feels like its got a weight attached to it which can make my eyes hurt and heavy this then can lead to a tension head ache which is normally only on the one side of my head and goes down into the back of neck, I get very anxious if I go shopping and its very busy it brings on my balance it's like my eyes can't keep up with what I seeing there's just to much going on which makes me want to run as I feel like I could pass out or panic, I struggle in situations like if I have a meeting at work and I feel like im trapped or if I go out for a meal I fidget and can't keep still and neck and head get all heavy.
I have been to the doctors on many occasions had ear test ENT test MIR scan nothing was found they just put it down to vertigo but I don't have this as I don't get the symptoms like the room spinning and sickness.
I try not to let this effect my life I do a lot of exercise but this sometimes can make me very dizzy I have a healthy diet I have no caffeine I limit chocolate and have plenty of fruit and vet not sure what else I can do.

Any help or comments would be most appreciated I just want to live a normal life again.
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Replies(4)
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dizzyperson
replied on January 13th, 2009
New User
Advice for Poppygirl
Get ENT specialist to refer you to a balance scientist or audiological scientist. My balance was out of balance following benign positional vertigo episode and again this week with a viral ear infection. Balance scientist diagnosed my right ear was more than 20% out of balance with the left ear wich is why I felt light headed. Solution was 6 week vestibular exercise programme to re train my brain with balance. It is meant to help with situation that you mention when you feel odd in supermarkets etc.

Exercises did not eliminate verything but helped. I sill suffer when I go to shoppong centres with bright lights and if anyone knows how to remedy this please help.

Good luck and let me know how you get on.
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Users who thank dizzyperson for this post: poppygirl299 
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weezie13
replied on January 13th, 2009
New User
Relate to poppygirl299
Oh my goodness, reading your write up is exactly what I go through on a daily basis. I have been to my family doctor and ENT and nobody has any help for me. The only thing that helps me get through my days is taking clonzapam. It helps to alleviate some of the pressure in my head and make the dizziness more bareable. I am going to a dizzy clinic next month and hopefully they will have more answers for me. I wish I had answers for you, but all I can say is I relate with what you are feeling completely. I wish that other people could spend just one day in my shoes to see what it feels like to live this way. It is not easy. I think also because people like us physically look fine, the understanding from people is just not there. There is no obvious physical problem so people find it hard to understand how you feel. All I can say is hang in there. I have been living like this for the last two years and it is no fun and EXTREMELY frustrating.
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Users who thank weezie13 for this post: poppygirl299 
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cat111
replied on February 5th, 2009
New User
Dizziness
Hi ,I have the same problems as yourself and it is affecting me ,I left work and don't drive and stopped living really but that was 3yrs ago and only since last year i went to the doctor so far i had mri happy to say all clear,next will be ent test .The doctor has put me on med for vertigo they are called serc.I found it hard to roll over in my bed so after 1 wk of takin them that has gone but also i have not have had 1 dizzy spell or loss my balance yet so 2 wks now,So i am goin to test the shopping centre and see if the bright light affect me,they usualy do and i alway bring my child and buggy for something to hold on just in case it happens.I don't know if the lights but me off balance but if these meds are working with everything else but the lights in the shops then maybe thats a saperate thing.I used to work in a big shop with high ceilings and if your light senitive the higher the ceiling the worse it will be that what they told me when i got my eyes tested and he said i had perfect vision so i said if i am affect my bright lights is there anything you can do ?No .So i just have to suffer i thaught but why should i?You can get tinted glasses he never even said this but i think there for people who suffer from headaces and i don't want to wear them as it looks like your wearing sunglasses all the time and people would stare.Hope my storie helps ,are you takin anything for the dizziness?
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cat111
replied on February 5th, 2009
New User
reply for ppppy
Please excuse my last message ,i was in a hurry.What i would like to ask you,has a doctor precribed anything for your problems with the dizziness.If so ,what are they called and did they work?If you have not been taking anythink go and ask your doctor can you try something ,thats what there their for they are suppose too help us but i found out the hard way that some doctor just are not listening and but it down to anxiety so don't give up......I know how you feel ......
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