I've been having the same symptoms for the past 6 months, although my dizziness is pretty much constant instead of once a week. I've seen 7 doctors, including 2 ENTs, and had many tests, including an MRI and CT scan, and nothing came back abnormal, although my magnesium, iron, and Vit. D are low (though not technically deficient). I've been on Rx Vit. D supplements for 2 weeks now, and the tingling is better tho not totally gone. I have also gotten magnesium injections, which may have helped the tingling rather than the Vit. D. The dizziness has not improved yet.

I don't know if any of this is helpful, but I know how you feel and how frustrating it is to feel like something is wrong and not get any answers. I'll let you know if I find out anything more. Good luck!

I'm curious as to how much Vitamin D you are taking each day with your blood test showing it was low? I too experience dizziness on a daily basis. In fact, I've had it for almost 4 years which was on and off again but in the last 2 months it has been almost daily. I too have had all the tests run (MRI, ENG, Neurologists, ENT's, etc) I was just recently told that I am Vitamin D deficient so I'm wondering if this is the problem. I'm just trying to get all the puzzle pieces of this together....very frustrating!

I have been prescribed what I imagine is a pretty high dose: 50,000 IUs of vitamin D twice a week. You have to get an Rx to get that high a dosage. I do feel a bit better but unfortunately it doesn't look like the cause, since I've been on it for almost 2 months and am not close to being dizzy-free. I hope this helps--good luck! I know how frusterating this problem is.

That is a pretty high dose. My doctor only recommended that I go on 2,000 IU's a day. I just started this week so I won't know if it has any effect for a while. I sure was hoping that this might be my answer. My ENT thinks I may be having a type of migraine without the actual headache (something vascular where the arteries may be going into spasm) - He started me on Verapamil (calcium channel blocker) I'm a bit skeptical as I'm wondering how I can possibily have a "migraine" every day, all day long! He says the medicine will take a couple weeks to have any effect, if it's going to. Can you describe what kind of dizziness you are having?

Hmm, interesting. I saw a nuerologist a few months ago who was not sure what I had but suspected it would go away. He said to come back in a few months if I didn't feel better, and that one possibility for future exploration would be a vestibular migraine--he explained it is possible to have a migraine without pain, although having one daily for months is unusual and thus he was hesitant to try meds at first. I go back to him in 2 weeks so I'll see what he says. This sounds similar to what your ent told you--although I'm not sure if a vascular migraine has the same symptoms. So don't be too skeptical--it sounds like it could be a promising diagnosis. To answer your question, my dizziness is of a strange lightheaded feeling I have constantly, as though I'm always on a faintly rocking boat or trampoline, with brief vertigo/motion episodes a few rimes a day. the sensations are hard to describe and seem to change by the day. Does that sound like your dizziness? Do you have any other symptoms, or do you feel any heart palpitations or vascular spasms as your dr suggested? Let me know how your meds work, and good luck!

Wow, my dizziness sounds very much like yours. As far as other symptoms...I have borderline HBP, insulin resistance and have a slightly low thyroid. I do get waves of heart palpitations that can last for weeks to months at a time but strangely enough, they went away prior to this really bad onset of dizziness that I've been experiencing for 2 weeks now. For the last several years I've only had the "strange lightheaded feeling" that you describe and in the last couple months it has been progressing to this now every day all day feeling that you described as well. Please keep me posted on your findings as you go back to your neurologist and I will do the same!

Will do! Hopefully at least one of us will figure it out soon! I'm especially curious to hear if your migraine medication works. By the way, I also have slightly low thyroid--maybe that's a clue? Anyway, I'll keep you posted!

Hi, I used to have dizzy spells with acute memory loss for about 3 years. The doc thought I had brain cancer and tested everything. It came back negative. By chance a doctor discovered through a blood test that I had virtually no hormones. That helped a bit. Then I started to do reseach my self and discovered that stress situations triggered these moments as well. Through good friends that are doctors I changed my nutrition and took a high dose of very good supplements (expensive!) and got rid of these spells. It surely is not funny to spend hours on time like on a rocking boat in this condition ( you discribed it perfectly) never knowing when it would set in again. I thank God that He provided all this information and now I am well! Hope this might help you. Greetings Gracygirl

Thanks for your story, Gracygirl. I'm wondering what vitamins were you low in, because my doctor found that I have a B2 deficiency and am low in some other B vitamins, so I'm taking supplements for that. Also, how long after you started the supplements did it take you to stop feeling dizzy?

Thanks again for lending hope!

Hi bizzybee, It took several months, around 6 or a bit more I think. I don't know exactly when it happened, but one day I suddenly realized they were gone. I took a combination of vitamins and minerals. All natural not synthetic. They were quite expensive, but a friend of mine who studied chemistry and worked in a factory producing all these things recommended them to me. By the way minerals are quite important. I did not know this at that time. Hope this helped. Never loose hope, there is always a way out. You only need to find the root of the problem. To cover the symptoms won't help. Have a nice evening

Hello everyone,
I have been reading all these posts and I thought I was the only one suffering from these symptoms. To start you should all know I have been diagnosed with hashimoto's thyroiditis so I am on meds for that. But for the past 6 months I too have been having the dizzy spells as if I am floating or on a boat that is always rocking. At times I have really bad vertigo. Not to mention computers don't help the dizziness.
My Doctor sent me to an allergy specialist because they thought it might be something in the air but that just showed I had an allergy to dust mites. so I followed the steps given and nothing changed. Then I had an MRI to check my sinuses and my brain but that all came back normal. I had a VNG done and that showed that I had a weakness (peripheral vestibulopathy) in my right ear that could be contributing to the dizziness but they said they don't think that is the cause. I also have had multiple blood tests. My blood work showed that I was low in Vitamin D and the doctor put me on 50,000 units of vitamin D a week. I am currently done with my prescription Vitamin D but my levels are still low so I have to take 2000units everyday.
I then was sent to a neurologist and she told me it was due to my migraines. She said even though I am not feeling the headache it is still there and I am getting migraine auras which are causing the dizziness. She also put me on nortriptyline to help with the migraine problems. This has helped out with my dizziness but I still have my bad days. I was also sent to a physical therapist for my dizziness. They told me they couldn't make the dizziness go away but they might be able to teach me how to adjust my life with the dizziness. Honestly the physical therapy did nothing for me or at least it didn't fell like it did. With or without the therapy I would still have the dizziness and I would just have to learn to cope with it.
Also in these past 6months I have also been feeling like my heart is flipping in my chest. The doctors did an EKG and a Dynamic EKG and it came back with a mild sinus tachycardia but they told me it was nothing to worry about but I disagree. It feels as if my heart is going to stop at times because it flips so much but the doctors say it is nothing to worry about because it is mild. I will try to keep you all updated if they change any meds or if I find something that works. I know how frustrating this all is and I wish it would all just disappear. All I can say is hang in there and hopefully we will get it all figured out.