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Disc Ectomy / recent tailbone pain

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I had a disc ectomy in 2006 after steroid injections, steroid packs etc... A month later had to have one more surgery I was hemorrhaging where my disc ectomy was done. Pinched nerve went away after the surgery. I have complained about my lower back still hurting since the surgery, its like I cant describe my pain. All across lower back, feels like my bones it aches at time extremely back. Recently this year my tail bone started hurting. I had no fall or injury. It hurt to the point I couldn't sit down right, poop, bend I was in horrible pain. Went to the doctors again. (I havehad so many CTs , MRIs and xrays) I went thru the whole dye injection didn't show anything, went threw more xrays, and MRIs. Sent off to a pain management doctor. Who prescribed drugs of course, in his words he wasn't sure what was wrong with me. He wanted to do steroid injections but, this time they were all the way into my spine, painful etc. If those didn't help me then surgery. So, I set my appointment with a sick feeling in my stomach to start epidural injections. I sat there with a friend who took off work to take me home for over two ours. We left, It never felt right to me in the first place. I started feeling good back was getting better. It's been a little over six months since that, now its starting to bother me again. (it always bothers me I just tolerate it, have a high tolerance to pain) I am to the point I am falling asleep at work. I guess I am not sleeping well at night. I wake up and my back hurts worse then it did when I went to sleep. I want to exercise but I hurt all the time. I am 6' have put on about 25 extra pounds. I want to find a doctor that can help me, I have been to so many in our state and feel I have lost a battle. I hate taking medicine and I am so tired of being in pain. I just keep smiling everyday and don't complain to anyone around me. Please, if anyone had suggestions ideas, I am open for them.
Thank you for taking the time to read my post. Brandi
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replied June 30th, 2010
Extremely eHealthy
hi wishesrfree
to quote you
"i want to exercise but i hurt all the time"
somehow you have to get your body moving. i know it hurts but a bad back will never improve if it isnt moved.
you have to start now by getting into physical therapy. i dont know if you like water but aqua therapy may start moving your butt so the muscles feel better. i had no luck with land therapy but the water did get me moving.
there is a way to move. you have to experiment with a therapist...
i'm sure i have a worse back than you. i cant stand more than ten seconds because of pain. my back and neck have been fused. i cant sleep in a bed because its not firm enough. i use the floor. yet yesterday i swam 2/3 mile doing side stroke. after a swim i sleep better. it does strengthen muscles and loosen joints.
it sounds like you have muscle pain and not nerve pain. no more talk brandi. now's the time to move. go for it....bring it on...and let us know how you do.....pete
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replied July 2nd, 2010
Hi Brandi. I can totally understand how you feel. I have had two lower back spinal fusions and a third operation to remove all the plates and screws. After surgery my leg pain eased but i have been left with chronic lower back pain. My back and hips lock up in bed and i am unable to roll over. My husband has to help me get out of bed at times. I am unable to sit for any length of time or stand. The pain is so severe. I take medication for the pain, it does ease it a little but nothing takes it away completely. I have been to a million doctors. Have had a thousand injections and am now under a Pain Management Doctor. He has tried epidural injections to no avail. I am now going to attend a pain management clinic to simply try to help me manage the pain. I suffer depression as a result of ten years of operations and pain.
I have also had so many mri's, xrays etc and nobody can find the source of my pain.
My Pain Management Doctor said that 45% of people who have back surgery to help fix sciatica end up with worse lower back pain., He said i had whats knows at "failed back surgery syndrome". I
have resigned myself to the fact that I will always have back pain. I walk for exercise every day because I have to. Everything i do hurts.
I hope they do find the source of your pain. I have given up.
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replied July 3rd, 2010
Extremely eHealthy
shadow61
have you checked out spinal cord electronic stimultor. google st. jude scs or medtronic scs to get general info. dont give up.....pete

ps...check out this recent post here by jwick59

http://ehealthforum.com/health/spinal-spon dylolisthesis-surgery-t231552.html
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replied July 3rd, 2010
yes i have looked into spinal cord stimulation. my pain management specialist said it is great for leg pain and for pain that they can isolate. Because mine is lower back and hip pain and they cannot find the source or isolate the nerves involved it would not give me any benefit. I have also looked into Ketamaine Infusion which i am not keep to have because of the side effects.
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