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Difficulty Swallowing food/ dysphagia (Page 4)

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November 28th, 2010
About a year ago I almost choked on chinese food, then it happened several times again on various foods over the span of this year and after that first incident. I thought it was from eating too much too fast. But it wasn't the case. So I finally couldn't swallow well at all with or without foods. Ended up in the ER so scared. Thought I would choke or my throat would close on me. They did an endoscopy a day later and found out I had a condition called eosinophilic esophagitis. It was a struggle for several months after that. They gave me some meds and we hoped for the best. I showed some signs of improvement and then would get bad again for weeks and weeks. They did tons of allergy testing and I was negative for all. MRI of throat was negative of anything abnormal.
Now at this point 5 months after that initial diagnosis I am still struggling having a hard time eating foods getting foods to go down and swallowing. And now believe my symptoms to be in my throat. And all along. That is where the food gets stuck and won't go down. Then I get so scared. I have to drink tons of water in hopes it will pass and go down. The last endoscopy shows no more eosinophils present and my esophagus is open now. So it is something else. And I believe something with my throat or trachea.
Not sure what to do next. I am not living life now and haven't been for some time. Just existing. I want my life back!
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replied December 16th, 2010
Dysphagia/Anorexia Nervosa
Birddog36
Hello all I am glad I found this site. I feel for everyone of you. I started having trouble a year ago October 2009. I noticed when I would eat I could swallow but could feel it going down like it was going slow and not all going down so I would continue to keep swallowing to get it to go down. I had a barium swallow and practically choked trying to get the thicker stuff down. The Speech Pathologist seemed to think there maybe something wrong with the criconpharyngeal muscle. So I went and had an Upper G.I. done but nothing was found. It seemed to go away on it's own but in March 2010 it was back. I noticed in around the time I would sneeze more and my ear would pop and when I would swallow I would half to keep swallowing some stuff to get it to go all the way down. Then the more I would eat the more of a lump in the throat I would feel. I was losing weight so I went to an ENT and he took one look in my throat and told me it was the muscle give it 9 months to relax, what a joke.. Then I went to another ENT who tested me and told me my breathing and swallowing was uncoordinated so I had to retrain myself which was difficult to do. In August 2010 I went to Cleveland Clinic to get extensive testing done. They more or less said that I have that hyper glotus sensation and that I have residue that sets in the pyriform sinus after eating but it isn't anything bad I just have hypersensitivity and anxiety as well. He told me it is nothing to take likely he has seen people like me and in a worse way and that I could end up with a feeding tube. That scares me. He sent me to a behavior psychologist that deals with swallowing/eating disorders whom I am currently seeing right now. I am angry about what I have discovered. One I have anorexia nervosa due to the weight loss now I don't want to gain it back, I have anxiety and depression from all I have been through. I had problems in the past that the psychologist is addressing right now. I didn't realise things in the past could effect me now but he told me you have swallowed so much you can't swallow anymore. I am currently trying for long term disability for awhile until I get straightened up. I was on short term disability until it ran out. My job had to terminate me because of the situation. I am still having good days and bad. I don't eat very much in a given day because I get so much phlegm in my throat it makes me nauseous and I hack and spit to get it up. Sometimes when I crave chinese food or something similar to that I will chew it but spit it back out before I swallow. I hate the way I feel and for the problems with what the swallowing problems have caused me to have other problems that I face now. It is a uphill battle I just hope I don't fall back. Sometimes I think they missed something and why can't they fix things so I don't have the residue in the pyriform sinus. Why do I half to learn to live with this problem. I hate the mucous that I feel and it seems like when I get the sneezing and ear popping I notice the other problems with it. I don't know but I get frustrated and tired of doctors. Sometimes I feel like I spent all this money and feel the same way. I guess it is like buying cars and they never run. Sorry this is so long but I hope maybe somebody that has this problem or anorexia and are recovering can give me some information on what may help me.
Birddog36
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replied January 3rd, 2011
Still Struggling
It's been a while since i visited this forum. A few things have changed.... First it went away for the most part and i was able to eat. But now it's back, and there are some new things to share:

1) I can tell when i'm about to have an "episode". My whole bottom jaw starts to ache while i chew and I have to choke that mouthful down, then the next one *bam*. Let's just say no more eating that night.

2) I have less trouble when i'm actually hungry (as in stomach grumbling hungry). And that sort of makes me hopeful because last time i had issues, when i was hospitalized, i was never hungry. Ever. Now i am.

3) Then when i actually have issues it literally feels as though either my throat doesn't know what to do OR as if something is trying to come up while i swallow. Or both. I can feel my face go beat red and it takes me several minutes to swallow that mouthful. Then i don't eat any more that night (if i try to then i become really nauseous. )

4) Some things make it worse - car rides (namely sitting in the back or for long periods of time), movie theater sound - but then it gets better and goes away.

5) Sometimes just having the food in my mouth (chewed or not) seems to trigger an almost gag or something similar. Heck, right now i even feel "off" just yawning!

6) I have narrowed down some "trouble foods" where it seems to "pop up" the most (meaning things will be fine until i eat these foods). Garlic (which stinks because i love garlic bread) is one. Noodles (again stinks because i love noodles.) And some meats.

7) Other symptoms during or after the issue pops up: sore neck/jaw muscles, dry mouth, nausea, feeling hot/cold, occasional stomach aches.

My doc put me on a new allergy med since they thought that was part of the issue last time, but nothing changed. They want to put me on a new med for reflux that also helps general stomach issues like burping (i have to call her this week to tell her the allergy med change didn't work.)

I'm going to request an appointment with someone with esophageal experience, i think. Any advice as to what sort of specialist might be a better bet? I'm hesitant to do much only because i know they'll want to do tests that i just, quite plainly, can't do. But i do want to get a handle on this because now i have a job that i love and i don't want to be missing work because of this.
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replied January 6th, 2011
It's really heartening to read all these posts because I was starting to think I was going a bit crazy. My difficulties are in no way as severe as most of you - and have so far only really started to be bothersome very recently. Mainly I seem to be getting the feeling like I'm going to choke as I go to swallow some foods at particular times. I guess it's been happening for six months or so, but definately getting worse in the last two months. I am still able to eat everything, but food like salad leaves or spinach or chewy things like steak are becoming very difficult to swallow. I am finding that I'm tearing off very tiny bits of food and chewing and chewing and forcing the swallow and getting this really panicky feeling as I do. Using lots of napkins to subtly get rid of things that are too hard to eat.
In the last week I've felt like my throat is tight, or rather that my neck is weighing on my airway making sleeping difficult (it's just gone 3am here) and when I try and swallow to clear the airway it feels like it's too dry and sticks - I need a drink of water to help.
I've had anxiety issues in the past, but they were always panic attacks (which I know how to deal with) and I did once almost choke on a stringy bit of vegetable at a restaurant, so I'm not discounting psychological issues, but my glands feel swollen and it's such a physiological thing and as the family are out of town I'm almost too worried to go to sleep. Very glad to know it's something real and that it's something that you can live with. Definately going to make an appointment with the GP as soon as I can.
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replied January 6th, 2011
kactus - i agree, it's good to know you're not alone/crazy! My original doc said i had an eating disorder.... which was inaccurate as proven by the shrink i was sent to.

I never felt as though i was going to "choke", just that something was trying to "come up" while i was trying to swallow. Which made my throat close up. That's the best way i can describe it.

Have you made a list of foods that are "okay" and foods that aren't? Have you narrowed it to certain types of foods? I have trouble with breads and meats - but less with soft or "moist" foods (although if an episode pops up then nothing goes down!)

I'm sure some of it's anxiety (i have a lot of stress in my life right now) but that can't be all of it. Not when, after an "episode", my throat actually hurts and i feel nauseous.

And just for those that are curious (because i know some people suggested maybe my diet or diet in general might have something to do with it) - my diet is actually pretty healthy and has been since the last episode in 2007. I used to eat like a pig but i changed my diet after i gained a ton of weight and after the "episode".

No spicy food (tacos are about as spicy as i get, and even those aren't spicy at all.) I limit my fried food to once in a blue moon (meaning rare). Soda is a rare treat. Junk food is an occasional treat. I drink more water than anything else.
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replied January 11th, 2011
It's good to see this forum getting some traffic... Dysphagia can be a very lonely problem to have. I see so many support active groups out there, but the dysphagia groups hardly get any hits. It's really frustrating!
Everything I've read tells me that Dysphagia is far more common than what you'd think by looking at the amount of support there is out there. I see that an SLP posted here awhile ago.
Of course everyone with problems swallowing SHOULD see a a doctor & a speech therapist & they SHOULD be getting therapy. Depending on how long you've had Dysphagia, that's easier said than done. You may have to fight for it. Personally, I just don't have the energy, anymore. They count on you not having the energy to fight, though.

Mutt, I don't really have a specific list of safe foods. My general list includes baby food, soup, oatmeal, and mashed potatoes. There are other things, too, but those are the main ones.

Someone mentioned water fountains being helpful. Be very careful with water fountains if you have trouble with things going up your nose. II think it's the angle, but nearly every time I drink from a water fountain, I get as much running out my nose as I do going down my throat.

Does anyone else hear have problems with frequent hiccups? Not frequent as in every few days, frequent as in daily for hours at a time?
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replied January 17th, 2011
Why is it that the easiest things to eat are usually the ones that are bad for you? Soft cheeses, chocolate mousse, bread pudding, pate, Spam, Corned Beef Hash... I've stopped paying attention to what I eat & mostly concentrate on whether I eat at all. I just don't care any more. You can only eat so much tomato soup. Eating is just not as much fun, anymore.
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replied January 20th, 2011
Hello everyone,

This is really a heartwrenching forum! I'm so sorry that all of you are having such a hard time with this illness. I know from experience that after time, a persons mind can become filled with an overwhelming sense of hopelessness, but I find it very encouraging that so many posters on this site are so willing to try to help other people with their problems. You really do sound like great bunch of people.

I should probably give you a bit of information about myself and my situation...Over the last few weeks, I seem to have started having a problem with swallowing. Actually, I can swallow just fine, but I feel as if foods or liquids are getting caught in my esophagus. Kind of like they start to back up where my esophagus empties into my stomach. I always seem to feel as if there is a lump in that area, just behind my breastbone (Sternum). I've not seen my doctor about this yet. I'm at the point, not unlike a number of other people, where I'm hoping that this is going to turn out to be a tempoary problem, although from reading the posts on this Forum, I'm starting to think that this problem is probably not temporary. I really am concerned about telling my doctor about this because I'm fairly sure that he's going to want me to have an Endoscopy, and I have a hard time dealing with tests like that. In fact, it's one of my biggest fears. But if I know me, I know that sooner or later I'll become so concerned about this that I'll force myself to do something about it.

I was just wondering (and hoping) if any of you know someone who had Dysphagia that went away on it's own. I'd appreciate any information at all. Thank you.

I'm also hoping that maybe I'll be able to help someone else on this Forum. I've been practicing this "Life" thing for quite awhile (64 years) and I hope that maybe that experience will enable me to help someone else here feel somewhat more at ease.
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replied January 21st, 2011
RichWill -

1) An endoscopy is not a huge deal depending on where you get it done and HOW it's done. I'm VERY sensitive about things in my mouth (always have been) - the slightest hint of anything where it shouldn't be sends me gagging.

So i was outright terrified when they had me do one in the hospital. However they knocked me right out and i don't even remember the procedure. Just remember the doc saying they where giving me something then lights out until i woke up in the recovery room.

If your doctor suggests it then request (or demand) that you have it done in the hospital and that you're knocked out for it so that you're unaware. It goes very quickly that way.

2) My issues with swallowing haven't been consistent. My first case was back in January of 2007 (i think) and that ended with me in the hospital that summer (mostly because everything was out of whack from lack of eating/drinking). It slowly went away and i've only had brief episodes with certain foods up until this past October when it started up again.

Right now it's bouncing between minor irritation to major and i'm in contact with the doc already to "nip it in the bud" so to speak. On days where it's harder to swallow (which happens maybe 2-3 days a week) i drink meal replacement shakes to get my nutrition to keep me out of the hospital.

In general -

It's best to get things checked out quickly before they become so bad that you don't have a choice. I lost so much weight that first time, and in such a quick time frame, that i developed gallstones.
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replied January 22nd, 2011
Endoscopy
Mutt88,
Thanks so much for responding to my post. I know I shouldn't wait too long before going to see my doctor, but my symptoms have started to become less severe over the last week or so and I think I'll give it a bit more time before I jump on that merry-go-round we call our healthcare system. Your answer did make me much less apprehensive about having an Endoscopy though.
I was sorry to hear that your symptoms have started to return. How are you doing today?
Thanks once again for your reply.
Rich
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replied January 22nd, 2011
RichWill - even a passing "hey, had this on and off trouble" at your next scheduled appointment would be good even if it passes. There are plenty of things a doc can suggest to make swallowing easier during a flare up without going into testing, and at least then the doc will have the mention on file.

I, too, am reluctant to mention anything to my doc because i know for a fact that many of the tests they may recommend i will NOT be able to do (barium swallow study for example - can't stomach the taste of the barium). And others, like the endoscopy, well as long as they give me the good drugs and think it's necessary i'll do it when it comes to that.

Right now it's not that bad. I eat a slimfast or nutrition shake in the mornings and that goes down okay, but it'll be random what and when i can/can't eat solids. Example: this morning i couldn't eat breakfast but right now i'm scarfing down lunch (peanut butter graham crackers with apple juice). Yesterday i had full meals. Day before i could barely eat anything. It's very random.

Good luck!
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replied January 22nd, 2011
Thanks once again Mutt. I think you're right about me mentioning this business with my Doc...Good to have it on record.

Glad to hear that you're able to "scarf"! LOL.

I know what you mean about the tests that they ask a person to endure. I would think that by now doctors would be able to scan you with a "Tricorder". You would have to have been a "StarTrek" fan to know what that is. It's not really important that you know, but I'd be willing to explain if you don't.

Keep scarfing!
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replied January 29th, 2011
Well, i just went to a consult with a gastroenterologist. When i explained my issues and mentioned that "hey, it isn't just the nausea bugging me.... been having issues swallowing again and it feels like my throat closes up before the food gets to it and the muscles around my jaw and under my chin hurt before hand" he suggested that it was some infection that causes inflammation/irritation.

He thinks that it's my upper throat area and/or jaw, not my "esophagus" per say. He doesn't think it has anything to do with my acid reflux.

He mentioned that it wasn't that common a thing until just recently (past four years or so) so it could be a possibility that they didn't test me for last time it flared up. I can't remember what he called it (it sounded like a big word with a lot of 's'es) but he wants to test for it to see if it have it. The test is a biopsy of the esophagus and throat (which they didn't do my last endoscopy.) So in i go in two weeks to see if i could have this thing.

Crossing my fingers on this. He also mentioned getting me in to do a test that measures the muscle strength of my esophagus (if we don't find anything with the other test) but he figures that won't be needed as my issues seem to be connected to upper throat/mouth and jaw.

But he also mentioned sending me to a different ENT and/or a speech pathologist/therapist - he outright said that "we may never figure this out, and if you don't want to continue testing we don't have to - but if it comes to that we can offer you symptom control". None of the other docs i ever saw said this - they where all "test test test". I'm pleased with this guy.

Here's to hoping this infection thing is the key - apparently it can come and go (which my symptoms do) and it can be treated with medication.
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replied March 27th, 2011
Same problem looking for a solution please read
Hi everyone,

Great to see that I'm not alone. Iv had my problem for over a year now after a choking episode. My problem is the same as everyone except for the people who get a lump feeling in their throat iv never had this. Im 99.9% sure mine is pure anxiety caused by a fear i will choke. I hesitate to actually swallow, i have to have a liquid with each mouthful to get the food down but what is weird with me is that i push on my ear which someone helps me swallow when i have no liquid. Somehow pushing on my ears or ears blocking out the sound makes it easier to swallow. I dont no if there is something attached to ur ear and throat. Also sometimes and its very rare now thesedays wen i forget about my problem i can swallow like i used to then im like "how did i do that" then my problem comes back. Im sure it is mentally based as sometimes when im really anxious e.g if im in a public place i have trouble swallowing my salvia.
Iv had the barium swallow test and my throat is fine however it was a mission just to undertake the test.
I also went to a gastroenterologist and he performed a endoscopy on me in which i only remembered waking up after the procedure. This stretched my esophagus, however it did not help my problem at all. I started taking anxiety medication which does help alot. When i stop taking my medication i definity notice the difference in my anxiety levels. I want to fix this problem and get off the meds.
I think the only way to cure this is either through hypnosis or what suzuki person mentioned earlier "leg length inequality" thats if you have this problem, i havent really researched into this yet iv just read all these posts now.
If anyone has found a cure post it right away please. Im currently trying listening to a hypnotherapy mp3 once a day for 21 days and im on my 3rd day, hopefully this works if not im goin to try actual hypnosis to erase my memory of this problem
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replied March 28th, 2011
Chocolate - i agree that anxiety can be a part of it. A big part of it. Have you considered talking to a therapist of some sort for help with the anxiety? They would likely be best at giving advice for countering this.

Never heard of using hypnosis to "forget" a memory of something - would that even work? Would that affect the "muscle memory", the actual physical act which isn't really connected to the mind?

I also had the barium tests done a while back (i refuse to re-do them now because i literally can't) and i just had an endoscopy - all clear and no infections. And yes, your ears and throat are connected (eustachian tubes drain stuff from the middle ear into your throat i think).

Which brings me to my question: my ears have been clogging and popping (or refusing to pop) a lot recently. Like to the point where it's very uncomfortable and sometimes painful. At first i thought it was work (i work around high pressure dryers) but now it's happening at home.

When they clog or pop (or if they don't pop i find myself feeling as if i'm underwater) i find myself unable to swallow easily and i get a really nasty taste in my mouth. Anyone else have this? Could it be connected to the swallowing issues?
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replied April 3rd, 2011
Yes i have considered seeing a speech therapist i just havent had the chance as i am overseas atm. Im going to when i get home.

The reason i want to be hypnotized is so i can erase the memory of ever having problems swallowing. I only have difficulty swallowing when i am aware that i am swallowing, if i eat food unconsciously i can swallow fine.

I had the same problem with the barium, i couldnt swallow the food they gave me i had to get water. However i havent done the barium test for the upper throat and mouth i only did the test for the esophagus. im going to try the other test when i get home

Iv never had any clogging in my ears however this could still be related to the swallowing
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replied May 23rd, 2011
Dysphagia
Well ive stumbled across this site and have probably had swallowing "issues" longer than most of you. I am 42 and think my problem kicked in around 10 or 11yrs of age so we're lloking at over 30+ years. another thing which i dont think many have touched on is the damn secrecy of having the problem, the embarassment, the lack of social interaction, being self-conscious when you have to eat with others etc etc..
Let me just ask this in case its something we have in common. At around 6 or 7 years of age I ate about half a bottle of my mother Oestrogen tablets! i had to have my stomach pumped quickly. it wasnt nice but i dont think that planted any particular seed for future throat problems. Did those tablets cause any physical problems that would take years to manifest as swallowing problems?
I dont recall a time or date that my problems started its a blur and sort of crept in at 10-11 yrs old.
ive had all the tests in hospital - all negative.
at the start of a meal i can eat just fine for a few mouthfuls thereafter it gets slower and slower ie; i feel i am chewing for longer and prefer washing down with a drink.
I am taking cod liver oil tablets right now and at the point of the swallow you can feel the damn thing almost stick - its in no rush to go down. i can breathe just fine but you get a feeling of the tablet lodged at the top of the throat.
with meals or sandwiches breads and meats my tongue begins to feel as if its tired and so the excessive chewing and moving food around becomes a pain.
has anyone tried any tongue strengthening exercises?
i have some i printed off from the internet but have yet to keep them up regularly.
i always thought a website devoted purely to this condition would be a good thing for me to set up and try and help people. from the outside you look normal yet your being cut up on the inside because of this crippling condition whether its physical or all in the mind. Dont forget too that when i was a young lad growing up in the 80s we didnt have the internet. i felt so alone and didnt think anyone else would have this condition but the www opens up so many avenues and you soon find other folk who have lived with the same condition. It doesnt solve your problem but to know youre not alone does help.
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replied June 20th, 2011
dysphasia
I think you only have trouble swallowing when you are aware of swallowing because there is a problem that is intermittent that you (or more your body) are aware of and correctly predicting when there will be a problem with it, this is not a psychological issue it is called intelligence
You can check the wikipedia page on dysphagia, there are loads of causes, it depends on your muscles working and things that are more easily checked. People with breathing problems as well especially when asleep need a sleep study done. If those muscles at the back of your throat are too weak to swallow food properly then they might be too weak to stay open to let you breathe while you are asleep. If you don't breathe properly when you're asleep you're not getting a proper rest, which can cause psychological problems.
The big scary diseases that sound foreign and rare like myasthenia gravis can be mild or affect only certain muscles. Rare diseases get missed because no one ever thinks of them but a long shot could be you!
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replied June 20th, 2011
I think you only have trouble swallowing when you are aware of swallowing because there is a problem that is intermittent that you (or more your body) are aware of and correctly predicting when there will be a problem with it, this is not a psychological issue it is called intelligenceI think you only have trouble swallowing when you are aware of swallowing because there is a problem that is intermittent that you (or more your body) are aware of and correctly predicting when there will be a problem with it, this is not a psychological issue it is called intelligence
You can check the wikipedia page on dysphagia, there are loads of causes, it depends on your muscles working and things that are more easily checked. People with breathing problems as well especially when asleep need a sleep study done. If those muscles at the back of your throat are too weak to swallow food properly then they might be too weak to stay open to let you breathe while you are asleep. If you don't breathe properly when you're asleep you're not getting a proper rest, which can cause psychological problems.
The big scary diseases that sound foreign and rare like myasthenia gravis can be mild or affect only certain muscles. Rare diseases get missed because no one ever thinks of them but a long shot could be you!
Try drinking iced drinks first, especially if it's worse in warm weather and better in the morning.
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replied June 23rd, 2011
Patchadams everything you said is exactly how i feel. The secrecy is a major part, for so long i couldnt even tell me family because i felt like some weirdo. I avoid eating with my mates because i need liquids to get down most meals and it seems being with people who dont no you have the problem causes my anxiety which makes it 10x harder to swallow.

I can recall my problem also starting at around the age of 10 at a theatre watching catch me if you can. Back then i just had to chew my food up more because i was worried i would choke. I nearly got back to complete normal, i was a slower eater but i could eat most foods without water. Then when i was 18 i choked on a hotdog and since then it has manifested into this issue we all have. It feels as though my tongue doesn't have the power to push the food into my throat and then also as if my mind tells my throat muscles to contract because im so anxious about choking. I dont even no what are normal amounts in mouth to swallow anymore. It is weird though that i can swallow large chunks of food with liquid. It just gives it that push to get down. But even liquids can be a challenge if im extremely anxious.

This issue needs to be solved!!! I can't believe patchadams that you have had to put up with this for so long. Iv only had this problem for about a year and a half now but im not going to live with it for the rest of my life. Why isnt there a cure for this issue? Surely many doctors have heard of this problem. It feels like its some hidden problem with no cure and its doing my head in!!! Has anyone considered being hypnotised?
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replied June 27th, 2011
Grrrrr... just posted a bit ago, and I cannot find my post;(. Unfortunately, there's no way that I can repeat my post, but hopefully can sum it up. For the most part, I am just so thankful that I have found a support site for this, as most ppl would not understand this, would have the "cure". So, I am a 54 yr old happily married female with Lupus, a serious back injury which requires surgery (but that is on hold for now), Diabetes, GERD, and a deviated septum. So, how on earth wud I e er determine which of these cud be causing this, or if it is ANY of these? I know that many are going to relate these w/the swallowing difficulty, but I wud like to add that most of these other symptoms have been present for a long time, and the swallowing thing just started...I think...lol. I have terrible memory recall due to the Lupus and mess...but I think I wud remb. Something like this don't u? Neway, (I abbrev. A LOT ) I can't post much more due to joint pain(typing), but I wanted to at least say that I am really happy to find this site so I can at least connect w/others that have the same prob, and maybe even find some paths to take that might help or even eliminate things not necessary. I will be back to elaborate on my situation, and I will try not to bore u to sleep;)
Gail
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replied June 27th, 2011
Dysphagia
Rolling Eyes Grrrrr... just posted a bit ago, and I cannot find my post;(. Unfortunately, there's no way that I can repeat my post, but hopefully can sum it up. For the most part, I am just so thankful that I have found a support site for this, as most ppl would not understand this, would have the "cure". So, I am a 54 yr old happily married female with Lupus, a serious back injury which requires surgery (but that is on hold for now), Diabetes, GERD, and a deviated septum. So, how on earth wud I e er determine which of these cud be causing this, or if it is ANY of these? I know that many are going to relate these w/the swallowing difficulty, but I wud like to add that most of these other symptoms have been present for a long time, and the swallowing thing just started...I think...lol. I have terrible memory recall due to the Lupus and mess...but I think I wud remb. Something like this don't u? Neway, (I abbrev. A LOT ) I can't post much more due to joint pain(typing), but I wanted to at least say that I am really happy to find this site so I can at least connect w/others that have the same prob, and maybe even find some paths to take that might help or even eliminate things not necessary. I will be back to elaborate on my situation, and I will try not to bore u to sleep;)
Gail
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