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Conditions and Diseases > Brain and Head Injuries Forum > Diagnosed with Brain Lipoma
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Q: Diagnosed with Brain Lipoma
asked by: alwayssick4444 on April 5th, 2009
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Hi. I was diagnosed with a brain lipoma (small benign---not cancerous----fatty cyst-like tumor) when I was 12, I am now 22 and have been getting sick an incredible amount. For the past 2 weeks I have been in a constant state of fatigue, I could literally sleep all day with no problems. I have had a constant headache for about a week now with no relief from OTC medications. My eyes hurt and feel like they are straining/tugging when I look any direction but straight, and they are extremely sensitive to sunlight (even when I'm wearing sunglasses--sometimes I have to wear them inside if there are a lot of windows). My vision often gets blurry but that only lasts a few seconds on and off. I have been on medication for migraines since I was 12 (that's how they found the lipoma--trying to figure out the cause of the migraines--but they are evidently unrelated) and I switched to topamax daily about a year ago and am STILL having the tingling and numbness sensation s/e in my feet and hands (mainly my feet--and sometimes it gets SO severe it's actually painful). Lastly, I have been having some chest pain and my pulse has been in the upper 120s-130s on and off for the past month. My last MRI about a year ago showed that the lipoma had grown a few cm (the first time in 10 years evidence of growth was shown)--and I was wondering if anyone knows what is going on based on my dx and symptoms?!
Thanks!


--i forgot to mention that I am also forgetting things a lot. The other day I forgot the gate code to my apartment I've been living in for a YEAR! I had to sit there for a long time and think about my hand movments over the keys before I finally got it right. Little things like that have been going on for a a couple months now.
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kelly457
replied on April 14th, 2009
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brain lipoma
I am 45 years old with a brain lipoma and have every symptom you have. My migraines with aura started in my 30s though. The tiggling about a year ago. My memory is going and I am seeing a doc for this. the neurologists tell me the migraines are not related. Have you had an eeg to check for epilepsy? The psychologist i am going to now said that the memory should stay the same as before cuz this stuff should always stay the same. get a good baseline test for memory you might want to use it later. i also had 2 mris show different things - i am not sure if it is the person reading the mri poorly or if it changed - but every doc you talk to tells us that this thing is asymptomatic - but sure is funny we have the same stuff and the same symptoms - honestly i havent found an answer yet or a doctor who truly knows anything about this rare condition - just know you are not alone
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vanessalipoma
replied on May 15th, 2009
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me too!
i am a 33 yr old female, w/ lipoma in corpus area of brain...i have been very healthy till this past year....confusion, fatigue, eye pain, and vision problems, head buzzing...i know its the lipoma,,,i just recently got another mri to see if its grown...i'm with you folks!
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ab2001
replied on July 23rd, 2009
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HI,my sister has had now 2 surgeries so far.. she was diagnosed with lipoma when she was only 14 and now she's 25, after having 2 suregeries done, doctor told her the tumor might come back.. it seems to regrow after a few years, she lost vision from one eye and just recently she started having lots of headaches so doctor ordered another mri for her next week.. and we'll find out and go from there.
had anyone gone through this? i would like to know.. plss
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amberleah
replied on October 14th, 2009
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lipoma here!
i just was diagnosed and am seeing many eyedoctors in 1 practive over the next month, along with a neurologist next month. im very scared.

my vision is all "annoying" feeling. its hard to describe! its like its blurred, but not actually blurred. i went to the ER because of the eye pain and sensitivity to light, and i was told its a 6mm lipoma in the middle area, by the 3rd ventricle but may not be related to the eye problems. its so annoying, i need sunglasses in brightstores and people think im a weirdo! Sad im happy to know im not alone - please contact me if you have any more informaiton, or updates. thankyou.
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