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Q: Depression and Lupus
asked by: WishingToJustHide on May 26th, 2009
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I've been diagnosed as being depressed. Am on anti-depressants for which the dose has been recently doubled by my doctor. I sometimes get migraines. I also have fibromyalgia and have recently been diagnosed with Lupus.

Sometimes I can't stop crying, and have no clue why I'm crying in the first place.

I am in pain all the time - some times it's not bad as other times, but I'm just sick of it. And the pain is everywhere. But it doesn't hurt everywhere all at the same time....sometimes it's my legs, sometimes my arms/elbows/shouders, sometimes by back. I know the pain is from the fibromyalgia, but I just don't know how to deal with it.

I feel like I am worthless, useless, and just basically pathetic. I am beginning to wonder if there is something wrong with my brain. Sometimes I think that perhaps if I just go to sleep one night and not wake up the next morning, things would be so much better off for everyone. I don't think I really wish this, I just feel helpless, hopeless and at my wit's end.

Sometimes I feel like it's all my fault somehow. But then I ask myself what I have done to make it my fault, and of course I can't think of anything.

I ask myself what is wrong in my life that makes me feel this way, and I really don't have an answer for that either.

I ask myself what I have to be depressed about, and I don't really have an answer for that either! I have a wonderful husband that I have been married to for 22 years who stands by me no matter what. And no, we have never really had any fights or anything. Maybe a few disagreements, but really nothing that has ever lasted more than a few minutes. I have two boys - one 30 and one 21, and both of them have boys of their own. I'm very close to all of them, and love them dearly.

I am overweight, cannot stand without being in pain, cannot walk more than 50 feet without being totally out of breath and in pain, and spend most of my "free" time at home because I cannot go out for a walk, go shopping or bike-riding or anything of the sort. I cannot exercise because of my weight and my pain and shortness of breath, and I cannot lose weight because I cannot exercise!

I have no real friends so therefore I have no-one to really talk to. I have also just been diagnosed with Lupus for which I need to go see a Rheumatologist for. I have also been asked to see a Psychiatriast as I have been told that he/she should be able to help me learn ways to "cope with the pain" and "get on with my life".

I do rubber stamping/cardmaking and scrapbooking, but haven't been able to do it for about 5 months because I had to take everything out of my spare room and put it in the attic because my youngest son separated from his wife and he is living with us now and he has joint custody of his 1 year old son whom also stays with us (I don't really mind them living here, so I'm not complaining about that...just trying to give you a picture).

As for my job, I really afraid of losing it, but....I just can't be there. I am on FMLA but it is about to run out. Some mornings I am in so much pain that I can't even get out of bed. Which has really affected my job due to all my absences - I also in jeopardy of losing my job, but I don't know what to do. I don't want to lose my job, but I just can't be there. My job is a desk job, but even just sitting there working on the computer all day doesn't help my pain any in my back, my shoulders, elbows, arms...everything from the waist up!

Does anyone else feel this way? How do you cope? How do you make yourself go to work?

Any suggestions/ideas/comments are welcome.
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kdlee
replied on May 28th, 2009
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Hi Hon
Well I do understand where you are coming from..You cry because you hurt, you are frustrated and no one seems to be able to help you..Many doctors act as though fibro. doesn't exist or that it is in your head..I have had this for many years and it is exhausting..FIbro. is so frustrating and the pain so much that it is very hard to deal with..If you look at my profile yo can see I have mentioned alot of the autoimmune problems I have..

I willbe your friend hon--you can pm me anytime..I also like scrapbooking and have a huge container waiting for when i can get back to it..

I also have a hard time with weight issues and walking..I have places on bottom of my feet where arthritis is taking over..

I had a lap band put in to help with wieght but with the autoimmune have had to have the band emptied..I stay so dry that I end up throwing up so much..

My job is also at a tdesk doing computer, phone work..Thankfully though it is a family operation of people I know and they are more lenient (for now).. Check with your doctor about Savella a new fibro drug..it seems to give me more energy but doesn not help with pain..
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