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Conditions and Diseases > Epilepsy Forum > Deja vu and lightheadedness
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Q: Deja vu and lightheadedness
asked by: sushibuddy on September 17th, 2009
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A week after my 20th birthday I was at work and felt deja vu followed by lightheadedness and tingling in hands and face. The whole episode lasted 30 sec. Never passed out. I felt a little weak for about a minute after then went right back to working. The next day it happend again.

Then for the next couple years I had the same type of episode spiratically. Sometimes 6 in a day and sometimes non for a month. Same thing happens everytime and never once lost consciousness. I have always been able to talk through the whole episode and I could tell you what is happening and what I am feeling from start to finish.

Not to mention I have seen about 6 different neurologist and been on a few different meds. I still continued to have episodes even on the meds. 2 out of 6 EEGS came back abnormal.

My husband and I decided to get pregnant so the neurologist weaned me off meds. I have not been on meds for 4 1/2 years now. 2 children later and I may have 1 or 2 episodes a year. Although the tingling has subsided. I only feel deja vu and a little lightheaded, the length is about 20 secs.

I was diagnosed with epilepsy. Does this sound familiar to anyone? Does anyone know if it is a seizure and what kind?

Thanks for any info you may have. Just trying to see if there are others out there like me.
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connorsmom
replied on September 28th, 2009
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Hello,

I am new to this site. I have had several episodes of intense deja vu, relaxation, lightheadedness, tingling sensations, and loss of muscle tone in my arms. I also have a totally different type of episode where I enter a dreamlike state, drop to the floor and faint. My doctor is scheduling an appointment with a neurologist this week. Based on everything I have read the deja vu type episodes are "Simple Partial Seizures."
Again, I have not been diagnosed with this yet. I will have and EEG in the coming weeks.
I just wanted you to know that there is someone else that has felt the same thing.
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sushibuddy
replied on September 28th, 2009
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Thanks for getting back to me. If you don't mind let me know what turns up. Good Luck!
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connorsmom
replied on October 4th, 2009
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I went to see the Neurologist Friday. He thinks I am having seizures but he did not mention what type of seizures. I will have a "Sleep Deprived EEG" October 12th. I am curious to see what shows up. If I get diagnosed with Epilepsy I will let you know what type of seizures they think I could be having. I still think "Simple Partial" and "Atonic' but I am not the Doctor so we'll see. Have a good week!
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pat67smi12th06
replied on October 8th, 2009
New User
I have been experiencing the de ja vu bouts for over 15 years. I did always lose consciousness but now since I have been dignosed with epilepsy and taking medication (Sabril)I only get the de ja vu on very few occaions. I can talk myself out of losing complete consciousness but I have noticed that I am having regular bouts of exteme anger . At least once amonth. I have not yet consulted my doctor as I am a bit ashamed of the fact that I am doing this. I get extremely angry and comlpetely unreasonable with my love ones. I am depressed after this occurs but I also feel relieved after the bout is over I feel as though pressure has been relased from me. Iknow that this is having a huge effect on my relationship and that seems to get me upset again when I start thinking about it. It seems like an eternal merry go round. I co not know if the is Epilepsy related or if some other neurological disfunction is occurring
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dozza
replied on October 10th, 2009
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Hi, about 24 years agoI suffered what appeared to be a grand mal attack. I sought help with consultant neurologist who, diagnosed epilepsy. For a number of years I took Tegretol then later was weaned off. The episodes stopped for a number of years but then I moved city and a more hectic, stressfull lifestyle.The peti mals started again and once or twice I had a Grand Mal attack.After seeking help again and going through all the tests, Epilepsy was not diagnosed but anxiety.I remain on tegretol Retard 200mg and with breathing techniques and support from my employers, attacks are rare.Tegretol is also prescribed for anxiety and after seeing a consultant psycho neurologist I manage this condition. My trigger is informaton overload! People who talk at me constantly and quickly or who are them self anxious whilst giving lectures could set me off!I advise you take all the tests first before you follow this route but I hope I have been of some help.
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connorsmom
replied on October 16th, 2009
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Sushibuddy,

I got the results back from the sleep deprived EEG. It came back abnormal. The nurse over the phone said I am experiencing Partial Seizures. The doctor wants to put me on Lamictal. My husband and I have been trying to have another baby for a couple of months now. This is not the best timing for this. I have my follow up appt with the Neurologist Wednesday. I have a lot of questions for him. Have a good weekend.
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SteelersBarbie
replied on October 27th, 2009
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Mini Seizure's
Hi, this may not be helpful since there has been already been replies, but i figured since it was so similar to my experience i would add it.

i too had the deja vu, followed by tingling in my hands, face, pretty much all over. Feel like your are in a dreamlike state, You feel very focused on one thing, and its almost a good feeling. (if that makes sense) i can tell you exactly what is going on and remain concious. Afterwards, i feel kinda light headed and a little confused at times, but for the most part i feel fine. I always thought this was my imagination until i had a seizure. Afterwards I described this to my neurologist and she told me these are mini (partial seizures). very scary since i had been having them for years.

I had one grand mal seizure in nov 2006, two more September 2009. I have been on keppra since 2006. had many tests, ekg's, all came back normal. Supposedly keppra is a good med to be on (if you have to be on one) I was even able to take it (in low dosage, 250 2x's a day) during my pregnancy, without any complications. Thank God! I just took extra vitamins, folic acid and iron pills, had lots of blood work and stress tests, just to make sure everything was progressing smoothly. Luckily my son was born healthy.

Good luck, hope everything works out for you.
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