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Q: Cystic Hygroma
asked by: rachey13 on April 8th, 2009
New User
Hi all, I have a 15 month old little boy who has a CH on his left shoulder. It did not appear until he was 2 weeks old.He has had surgery on it and it went but then 4 days later it returned with avengence.It is now the size of a grapefruit. We are waiting for an injection called Picibanil or OK-432. However his consultant is having big problems getting this injection. Does anyone know if there is anywhere I can buy it from please? Also if anyone out there is going through a similar thing then it wqould be good to talk. Thanks Rach
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