About 2 years ago my daughter had a blister type form on her cheek, i thought it was a mozzie bite. It spread to the bride of her nose, i tool her to the doctor man times thinking it was just infected, but then after no antiseptics were working, i then thought it was her excema playing up, as she used to get fungal infection type leisions on her face since she was a baby. After 6 months of expensive trips to the family doctor and many types of antibiotic treatments, we were then refered to a dermatologist, he ran lupus tests which came back negative, yet by this time it had spead over half her face and on her chest. He conducted a biopsy (me only relating biopsies to cancer DUH!) and after two and a half stress filled weeks he finally gave the diagnosis of Cutaneous/Discoid Lupus. I know thw difference between Discoid and Systemic, but being so young, i am very worried. She went through a very highly charged emotional stage, loss of sleep and now hair loss. I have reluctantly put her on to plaquenil 200mg per day. Im looking for other people in the same position and ways to help my darling daughter... If anyone has any advice or stories similar to mine i am ver interested to hear them. My grandmother has sisters who have developed systemic lupus and herself is getting tested as she has been suffering a wee bit with arthritic symptoms, we know it could be anything and not lupus, and i am a worried mother, my daughter may of had this lupus the whole time since she was born. and how would that affect her? Would her chances bee higher? At the moment i have noticed since the meds started she has settled with her moods and seems her happy usual self, if she misses her meds for one night - shes not very pleasant. I try to put this down to usual "growing pains" as she is nine now, but i dont know.