About 2 years ago my daughter had a
blister type form on her cheek, i thought
it was a mozzie bite. It spread to the
bride of her nose, i tool her to the
doctor man times thinking it was just
infected, but then after no antiseptics
were working, i then thought it was her
excema playing up, as she used to get
fungal infection type leisions on her face
since she was a baby. After 6 months of
expensive trips to the family doctor and
many types of antibiotic treatments, we
were then refered to a dermatologist, he
ran lupus tests which came back negative,
yet by this time it had spead over half
her face and on her chest. He conducted a
biopsy (me only relating biopsies to
cancer DUH!) and after two and a half
stress filled weeks he finally gave the
diagnosis of Cutaneous/Discoid Lupus. I
know thw difference between Discoid and
Systemic, but being so young, i am very
worried. She went through a very highly
charged emotional stage, loss of sleep and
now hair loss. I have reluctantly put her
on to plaquenil 200mg per day. Im looking
for other people in the same position and
ways to help my darling daughter... If
anyone has any advice or stories similar
to mine i am ver interested to hear them.
My grandmother has sisters who have
developed systemic lupus and herself is
getting tested as she has been suffering a
wee bit with arthritic symptoms, we know
it could be anything and not lupus, and i
am a worried mother, my daughter may of
had this lupus the whole time since she
was born. and how would that affect her?
Would her chances bee higher? At the
moment i have noticed since the meds
started she has settled with her moods and
seems her happy usual self, if she misses
her meds for one night - shes not very
pleasant. I try to put this down to usual
"growing pains" as she is nine now, but i
dont know.
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Brandywine63
New User, Becoming EHEALTHy
Joined: 04 Apr 2008 Posts: 1
Systemic Lupus-Swimming Pool Rash? Posted: 04-04-08 02:01am
I have recently started swimming every day
to relieve my Lupus pain. By the second
day I noticed I had a rash all over my
body that really itches! I was wondering
if anyone might know if this could be due
to my having Lupus? I've never had a
problem with chlorine in my past, but was
wondering if maybe it's because I have no
immune system and the chlorine is actiing
up due to all the chemicals they use in
the pool. Has anyone else experienced thid
happening.
