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Crohn's Disease Tiredness and Fatigue

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March 24th, 2010
Hi

Almost 2 years ago I had a bowel resection for crohn's disease, and of what they took away it had "disease free margins". Just like anyone I have the odd flare up every once in a while, but one thing I have become really annoyed with is the tiredness that this disease causes me.

I can get up at about 8.00am, go to work and then by about 2.00 in the afternoon I am tired again. I abuse coffee to try stopping myself from being tired, and even my alertness is affected with this. I have a lot of things I need to do after work, such as study and I am quite ineffective now at doing them, because of the tiredness. The fatigue happens all the time regardless of whether or not I am in the midst of a flare up.

Every time I mention this to my consultant they take blood tests for B12 and Iron and everything is always fine but they don't offer any help for this problem. I'm already on a multivitamin pill called Forceval which in my opinion makes no difference to the situation. Can someone please tell me what I can do to not be tired all the time. It would be much appreciated if someone could help.

Kind regards

Heid
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First Helper heid
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kjean
replied May 18th, 2010
Hi Heid, I too suffer badly with tiredness and also have a cups of tea all day to try and stay awake, ive had 2 small bowel resections and i have B12 injections every 3 months, i take multi vitamins too. Ive also started running 3 nights a week as being fit is meant to give you more energy but so far i'm still exhusted and the running is hard i'm hoping it will get easier. anyway sorry i dont have any tips apart from maybe try excercise and if u can pop outside for some fresh air.

regards
kelly
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jellio
replied July 30th, 2010
z z z z
Hi there, I'm exactly the same as you both. Unfortunately the NHS has not spent much money on researching fatigue. I'm trying exercise too but not helping. So tired ZZZZZZ Jo
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herbalrevolution
replied September 8th, 2010
i know the feeling people,but coffee gives me terrible stomach aches,i find the herb Kratom helps with tiredness. a cup of it in the morning is great with a little puff of sativa strain cannabis from my vaporizer,relaxing but energizing without the caffeine comedown and side effects. but like any medicine kratom shouldn't be abused,research is key.
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KRao
replied August 19th, 2011
Is anyone having a solution for the aobove?I too have similar problem.
I was diagnosed for Crohn’s in 2000. I had a ileal perforation in 2003 for which I was operated.
From past 3 months,I am having heaviness in eyes, slight dizziness(not rotational) as if I am drunk. I also feel exhaustion, fatigue throughout the day. I am not alert. If I walk for a short distance of 200mts also I feel very tired, dizzy and nausea. If I speak to a person I feel rest of the world around me is blank. All these symptoms are sever till 1-2pm and reduce as the day passes.
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pj2103
replied February 27th, 2012
Hi I think we're all in the same boat, I get so frustrated with my tiredness, that's an understatement but I can't print it. I too am on forceval and b12 injections which dont seem to make much difference to my general well being and after my last resection in may 2010, this being my 5th operation, one being a total colectomy but without the stoma. When I go to see my consultant every 6-8 weeks, my ongoing symptom is chronic tiredness, but I get told its because I'm up at night 5-6 times going to the loo, which I agree does have an impact but when I do on the rare occasion get more than 3 hrs full sleep, I am just as tired the following day if not worse. I worked full time for 20 yrs upto my last op in 2010 aswell as bringing up 3 children on my own but I didn't feel anywhere near ad exhausted as I do now and because of this I haven't been able to return to work. I too wish that more research should be done into chronic tiredness for crohns sufferers as this is just another of the terrible symptoms we seem to have to put up with.
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Mozart
replied July 15th, 2012
I am a Crohnes sufferer. I too suffer from tiredness. I quite often, and by that I mean most days, wake up at my desk having nodded off for anything upto an hour. At my last appointment with my specialist he suggested that my tireness was due to my depression. It seems that any excuse will do as long as it is not mentioned in the same sentence as Cronhes. Wether my work colleagues don't care or don't notice I don't know but at least no-one from management seems to have noticed. I tried Berocca with some success but they are expensive and was put off when it was pointed out what high levels of various substances are used.
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bigbrettler
replied August 24th, 2012
i was just diagnosed with crohn's this year, but i am pretty sure i have been suffering from it for at least 20yrs, but this was my first flare up. Anyway i work on commercials, and even with the long crazy days, not only do i still not sleep through the night but i can notice a tremendous difference in my ability to go through the day and not feel so fatigued, but you would think working long ass days, and not sleeping well would eventually catch up and allow you to sleep well, but not in my case. and when im not working im tired and depressed all day
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cd2003
replied August 31st, 2012
Crohns fatigue
Same thing for me, bowel ressection in 2010. I get up early go exercise and then i have to take a nap when i get home because i am so fatigued. Blood test always appear to be pretty normal. Walking up steps, talking to much, anything i do makes me tired. UGH. I feel hungry all the time too thinking eating something will give me energy.
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