If the cystic malformation is big and compresses the fetal heart, hydrops may occur. The risk of mortality in fetuses with hydrops is high.

Type III (microcystic) CCAM is associated with much poorer prognosis.

The size of the lesion has been reported as an important predictor of survival but lesion's size may undergo involution and even disappear during the intrauterine life.

If polyhydramnios occurs the prognosis is worst.

Hi!
Im a 21/f and they found out i had cystic adenamatoid malformation when i was 15 yrs old (VERY RARE I KNOW..) My last lung surgery was when i was 18, bc they didnt get it all out the first time..Anyways im wondering how your baby is, and if shes had any problems with her heartrate after having this diagnosis? Please let me know.. Ive been having problems with my heart rate getting up to 180-200 beat per minute just randomly..Thanks
Alyssa

Also i was going to tell you that i had my first lung surgery at cook childrens (Dallas TX), and had to have another surgery bc they didnt get it all out the first time..My second surgery was at MD Anderson (Houston TX) And they were great! I dont know where you are from but any pulmonologist should be able to help you, or suggest a surgeon..

Well actually, two months after this diagnosis, i went for a second opinion at Childrens Hospital of Philadelphia and found out that I was misdiagnosed, the baby actually had a BronchoPulmonary Sequestration which is less fatel if at all. She is doing great she had a lobectomy a month ago and she is doing just great. you would not have even know she has had lung surgery. It only moved her heart to the side it caused no problems with it though. I am very blessed to say that the outcome was not what the old doctor said it was.I dont know where you live but I know that only two hospitals in the country specialize in CCAM that is the one i took my daughter to in Philadelphia, and the University of Sanfransico In California