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Conditions and Diseases > Neurological Disorders Forum > Complex Regional Pain Syndrome or MS?
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Q: Complex Regional Pain Syndrome or MS?
asked by: slybibs on October 31st, 2009
New User
Hi, I have been examined by a neurologist who believes I have Complex Pain Syndrome.

A year ago I had a stress fracture in L foot and about 3 months after that- from wearing a walking boot- I started having extreme shin splints in L inner shin. I rcvd. PT for shin splints, but gained scar tissue from intense massage from PTherapist in L calf. After I stopped PT, shin splints returned in L inner shin and radiating into calf. So severe, could not walk at all.

Orthopedic diagnosed minor tendonitis after x-ray of foot, shin and MRI of lower L leg. I limited weight bearing, crutches for awhile, ice therapy with dixie cups. "Twinging" type pain in inner shin into ankle and calf continued even after long periods of rest. Pain then started bother me behind knee to outer thigh into piriformis muscle into lower back. Then R inner shin started receiving same pain with limited to no walking.

Chiropractor diagnosed me with periostis of leg bone, took additional vitamin D with my other multi-vitamin. Pain persisted. He then diagnosed me with Piriformis syndrome. Did massage and back adjustments. Pain persisted, coldness in foot and leg, discoloration and color pooling in both feet. Tingling sensation in L leg up to lower back. Piercing pain in inner shins sometimes when walking. Dull bone aching pain in both inner shins after standing or walking for an hour or so. Discomfort all the time expecially at end of day while sitting or laying in both shins and feet and all the way up L leg into lower back.

Neurologist diagnosed me with Complex Pain Syndrome and put me on anti-convulsant and anti-depressant with PT.

The drugs worked for a little while, but then stopped. The anti-convulsant seemed to get better blood flow (feet weren't as cold, color pooling stopped.) This only worked for awhile then stopped, pain and tingling twinging feeling persisted. (sometimes if I hold my hand over my shin and wait for it to catch the heart beat and pulse from my hand, the blood starts flowing and my legs and feet warm up...weird right?)

PTherapist is not convinced I have CPS because I have other symptoms such as:

-Muscle convulsions of piriformis muscle
-Piriformis and surrounding muscles all extremely tender
-Any nervous reaction eg. driving and having to hit the breaks, an uncomfortable phone conversation, watching a moving movie, anger over argument etc...intensifies symptoms and can feel my muscles clench all the way up my leg into lower back up my spin into neck and jaw and into L eye.

I dont know if all of these things are related, but in the past 5 years I have been through 4 years of intense stress of a very demanding college career that caused no sleep and allot of hunched over sewing and drawing, standing and ironing (fashion design.) Along with the pressure I put on myself for fitness and running (about 3miles 4x a week-what caused the stress fracture) Followed by a job in NYC that was so intense and stressful, I had to leave. (My left eye started to twitch because I was so clenched and on edge all the time...)

Do you think this is CPS or just nerve damage or something worse like MS. I seem to get tense very easily now. I have had MRI of lower back and no discs are impending a nerve...

Help, I am exhausted and tired and still in pain and discomfort and unable to really continue living a routine lifestyle. Some days the symptoms flare up and then I'll have an almost "normal" day with no pain.
I think I am becoming more anxious and tense because I don't know what this is for sure and no treatment seems to give lasting relief.
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