Vaginal and Uterus Health Forum - Chronic Vaginal Pelvic Pain

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Q: Chronic Vaginal Pelvic Pain

asked by: cas122 on April 2nd, 2009

New User

My chronic pain started 2.5 yrs ago after my current bf & i started having sex. I assumed it was an STD but Ive been tested numerous times. 2 days after intercourse, I began bleeding (black/brown) for 2 weeks, had lower abdominal pain (right side), and pain at the vaginal opening. 2 yrs later, I have CHRONIC (every day, all day) discomfort in my vaginal canal (like aching/pressure) & pain/irritation at the opening of my vagina on the RIGHT side. I also have pain with deep penetration (again, only on the RIGHT side). Pain worsens during mid cycle. Tried lupron (they thought it was endometriosis & vestibulitis), basically they have no answers. I'm scared and in a LOT of pain-I feel like it' some kind of infection. I've never had an abnormal pap until this started too...my last pap was (finally) my first normal pap in 2 yrs. I go for my annual tomorrow. All these doctors look at me like im crazy when I explain it and I need someone to take me very, seriously. Beyond desperate, I need help. I'm afraid my body is damaged since it's been so long and the pain is just unbearable...I don't remember what it's like to feel normal. Except for the fact that the "left" side of my vagina/pelvic area feels completely fine. Please tell me there is someone out there who understands or knows what's wrong with me.

Replies(7)

kk81

replied on June 16th, 2009

New User

I know exactly how you feel and am suffering from very similar problems. The only additional thing I would say I have is cramping very low down in my abdomen.

Urinating isn't painful, but it triggers the pain...

I've been tested for endo and came up clear. Saw a uro-gynecologist and he tells me it isn't interstitial cystitis... I'm at a loss. Feel so frustrated and flat about it...

cas122

replied on June 16th, 2009

New User

I noticed that too....I feel like there is pressure on my bladder. I just had an MRI done that came back normal, and so my doctor basically told me she can't help me anymore. Nice, right? So I'm at a stand still, and still have the same problem. I did find a place near Philadelphia (I'm from NJ) that specializes in stuff like this - I think that's my next move. It's called Cooper University Hospital and they have an office in Marlton, NJ that specializes in hard to diagnose "vaginal diseases" as they call it. It's just so hard going from doctor to doctor it takes so much time and energy. I'm so afraid I am going to have this pain forever! Sad

kk81

replied on June 17th, 2009

New User

That's the frustrating part, when they don't help any further and you are left with a computer, google and no idea of where to start (that was me all last night!).

I just went and plonked myself in the emergency department of the Women's hospital today. The doctor I saw was very thorough and thinks it's Endo and the other doctor was off, so wants to test me again. So... Back in for another ultrasound on the 10th of July.. JOY!

How did you find that hospital (more to the point, how did you find a place that specialises in that kind of stuff?)? I'm in Australia, so will obviously have to track down something of my own here if the next ultrasound doesn't help.. I just hate the waiting between appointments. So much time passes, it's been almost a year for me now.. Then there's the time off work and the stress that causes! ARGH!

Still, it's nice to have someone to talk to about it and to share notes too!

cas122

replied on June 18th, 2009

New User

It's so nice to have someone to talk to. I like you, spend endless amounts of time googling and searching for answers. I just started searching for doctors/specialists and that hospital came up. I'm afraid to go because I feel like that is my last hope...and if they can't help me. Then I don't know what I'll do. Also like you said...it's so stressful with work! I don't have the time or energy to keep up with all of this. I was tested for endo, I had an ultra sound done and they even treated me for it by switching my birth control and trying the "Lupron" injections for 6 months. None of it helped soooo, I guess it wasn't endo. My whole life my paps have been normal and as SOON as this stuff start, my paps starting coming back abnormal. The doctors insist that has nothing to do with my pain, but it's too coincidental.

cas122

replied on June 18th, 2009

New User

I guess i wrote too much in the last reply, it cut me off! Anyway, I'm afraid I'm going to be in chronic pain for the rest of my life and I have mixed feelings about whats going on...on the one hand I've been tested for everything and they come back fine. On the other hand, I've had chronic pain for 2 years, so how can it not be something really bad?

kk81

replied on June 22nd, 2009

New User

I'd be pushing the fact that your paps have been coming back abnormal. That isn't right and the timing has to be more than just a coincidence.

Mine are still normal, so I guess that's the main difference for us?

Also, when you were treated for your 'Endo', didn't they do a laporoscopy? Apparently that is the best way to diagnose it and also it's a form of treatment because they can clean everything up while they're in there...

I know what you mean. I get worried every time I see another doctor because I don't want to be told again that it is nothing... Which is what I'm worried about for my next ultrasound in July... : (

Have you called the hospital yet?

cas122

replied on June 27th, 2009

New User

Every doctor Ive been to, which is about 5 or 6 over the past 2.5 years, insists that it has nothing to do with my paps...and I think that's ridiculous. My very last one (which was in May I think) was normal. They did't do a laparocopy because the lupron didnt work and she didnt think she would see anything, because my pain is a little lower then she would be able to see. What irritates me the most is any disease or condition they have relating to this, has a name, but their descriptions are all the same (chronic unexplained pain). Like vulvodynia or dyspareunia-they give it a name...but it still doesnt explain the problem! I've not been to the hospital...as much pain and as miserable as I am, i still find myself procrastinating because im scared.

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