I have suffered from a condition similar to what many of you describe and have been for 20 years now. As many of you have, I have had nearly every medical test imaginable with no definitive diagnosis. I have been diagnosed with everything form panic disorder to inner ear condition and while each explains some of the symptoms, there has been no diagnosis that explains all of them. I feel that many doctors hear what they want to and depending on who you go and see, you will get a different diagnosis.
I will share the predominant symptoms that I have and also share some of the things that have made my life more manageable over the years.
My condition began while working in a lab, spending every day working on materials through a microscope. One day I had a severe dizzy spell that induced a panic attack. Here is a list of symptoms that are present at different degrees depending on how severe the symptoms are.
-Disequilibrium
-Light-headed
-Foggy feeling in my head
-Feeling of unreality
-Pressure in my head, primarily near my temples, my sinuses and my mastoid are (behind my ears).
-Tightness in my neck and feeling like I need to crack my neck.
- Sensitive to light and loud noises, esp low frequency noises.
-Gassy stomach
-Heart Arrhythmia (was diagnosed after the symptoms began, not present before)
-Feeling unusually chilly
-Numb tingling on the surface of my skin, usually in my legs.
-Increase in symptoms when working out, esp lifting weights or anything that increases blood pressure.
Many of these symptoms are associated with numerous other conditions, but for me, these are the primary ones that have been consistent over the years.
Now for what has helped me to a certain degree. The symptom that has the biggest negative effect on my life is the disequilibrium. The feeling of imbalance causes vertigo and can trigger panic attacks. The stress of the condition is exhausting and I believe that it is also mentally exhausting to the brain and will decrease the stress fighting chemicals.
The one medication that has made a significant difference has been SSRI antidepressants. For me it was Paxil for a number of years and recently I switched to Lexapro. I personally believe that the stress of this condition decreases serotonin levels and probably epiniephrine and norepinephrine. These are chemicals that your brain uses to deal with stress and when levels are low, additional symptoms arise. The antidepressants have not completely eliminated the symptoms, but they seem to make it easier for my brain to deal with the stress of it.
The other thing that really seems to help is exercise. Although exercise often increases some of the symptoms, I stick with cardio exercises and stop if the symptoms get too strong.
One of the things I find so difficult is distinguishing the difference between primary symptoms and secondary ones. I feel like some of them are a result of others. For example, the more physical symptoms such as the dizziness and disequilibrium put a lot of stress on the body and may explain some of the anxiety and hypersensitivity.
I still don't have a definitive diagnosis and continue to hope something will be discovered. In the meantime, I think it's important for people to share their experiences. The more we learn, the more information we have when we go to our doctors. I have learned all too well that if you don't have a plan when seeing your doctor, they will tend to focus on what they know and the symptoms that are applicable to their specialty. Arm yourself with questions and move on if you don't get the answers you need.
Bill