The post is quite long as I wanted to give everyone a comprehensive description on the symptoms I have been experience for past 3 years.
It all started 3 years ago in January 2007, I had this fullness/dull ache feeling on upper left quadrant just below the rib cage, the fullness feeling radiates to my back in between the spine and left rib. I would burp every 3 seconds trying to relief the weird feeling in my abdomen, but it never worked, there seems to be something stuck down there in my digestive track. Even though it doesn't make me feel better I just can’t stop burping. It feels worse after meals and foods seems to just sit in my stomach for hours. I underwent a gastroscopy and dr told me I had minor reflux. I was subscribed Pariet(Rabeprazole) and after few days my symptoms went away.
After another two months all symptoms came back, I took Rabeprazole again but my symptoms didnt improve at all. I went to doctor and he prescribed me Nexium(Esomeprazole), which did the trick. However symptoms again came back after a few months, this time Omeprazole worked.
It was until the fourth flare-up that no medicine would fix my problem, tried everything including Lansoprazole. I then went away to travel, which apparently cured my symptoms. However, of course it came back again and again, with stronger symptoms and longer durations. That’s when I decided to go to doctors again, I did abdominal CT scan(early 2008) and ultrasound which showed nothing abnormal. The doctor doesn't have a clue on what’s wrong with me and told me its probably stress and I have to cope with it. The symptoms seem to always fix itself given it time. However, it’s taking longer and longer to disappear, with more and more extra symptoms. Some other symptoms during a flare-up includes constipation/diarrhea/acne/dry skin/chapped lips/fatigue/general sick-feeling
I then thought about colon cleansing (Nov 2009), I bought some cleansing herbs from pharmacy and took very little dosage one night. I had severe diarrhea/fatigue for the next 7 days, I lost 3kg and developed chronic hives for 4 months. I never found out what caused the hives since it happened everyday even though I was eating different food/in different countries different environments. I went to hospital for a detailed check which again revealed nothing; the doctor said in gastroscopy that there weren’t even signs of reflux anymore. I have never felt well anymore, I suffer from the following symptoms up to date:
Gas (Non Stop Belching and more than normal flatulence)
Severe indigestion (Feeling of fullness, foul smell breath, food takes very long to digest),
Fullness feeling in upper-left-abdomen
IBS (Constipation and diarrhea when under stress/excitement),
Abdominal cramps in morning
Inability to gain any weight, in fact, I struggle to keep my weight
Intolerance to fried/oily food (causes extreme discomfort and sore throat)
Lactose Intolerance (Diarrhea after drinking milk, I used to be able to have milk everyday)
Light brown marks on skin (appeared after hives subside, hidden allergy?)
Fasciculation/Muscle twitch (occurs anywhere, last less than 5 seconds),
Heart palpitation (Beating rate is normal, but feels stronger),
Acne (links with my abdomen, when I feel worse there will be more acne)
Weight loss (5% over 4 months),
Anxiety, Nervousness, Irritable, Mood swing
Hard relax my muscles, muscle tension
Hard of concentration/Foggy brain
Weakened Immune – Frequent cold, bit of white coated tongue, white discharge from genital(only when stressed/had poor sleep)
Here are the tests I have done:
Gastroscopy – Minor reflux 3 years ago, now Normal
WBC/Differentiation - Normal
Blood glucose - Normal - 3 months ago
Liver Functions- Normal - 3 months ago
Thyroid - Normal - 3 months ago
Stool test – Neg occult blood/parasite - 3 months ago
Abdominal Ultrasound - Normal - 3 months ago
Allergic test (IgE?)- 3 months ago, Shows I’m allergic to nothing
Abdominal CT – Normal 2 Years ago
Abdomen X-ray – Normal 4 months ago
H-pylori breathe test- Normal 2 weeks ago
Urine test - Normal
I have seen more than 8 doctors in different countries. I’m yet to find a doctor to link all my symptoms together; I just went to another dr recently she thinks anxiety are causing all my symptoms. But I think if anything it is my indigestion that’s causing my anxiety. Does anyone around have similar symptoms or can provide any information that can possibly help? I seriously need some light before this thing totally destroys me. Just some background information which I think could have caused all these: I sit in front of computer all the time when I’m home since grade 6, I would have a meal and then go back to computer and start some exciting game (which can cause indigestion I assume)
I have come up with some of disease that could be causing all these but left undiagnosed:
Leaky Gut/Intestine Permeability, Candida, Chronic Fatigue Syndrome, Gastroparesis, Lack of HCl in stomach or other enzymes, Hormone disorder, Celiac, Lyme, Chronic Food allergy
pls reply if you feel better and i can tell you more
my mom has these symtoms and they all trigger when she gets very stressed or if she carries heavy weight.
i will give you simple thing to do and see if that helps.
1--- when you are empty stomach stand straight then put your thumb on you nose tip and then bend down and try to touch your navel with your smallest finger.(sorry for my english) you can write me and i can try to make u under stand
then second thing is lay down and join both feet and try to raise them and see if you feel any kind of stiffness in ur navel.
from what we saw in our mother case.it was same like you.we had all the test and nothing came.
In india they say its when you navel joint get dislocated cos you carry heavy weight and it keeps happening all the time .so these exercises are to set that joint again.
like you know when baby is born all the joints of the body is through navel and that connects baby with the mother .
pls remember to eat something soon after doing exercise and stop stressing about it.cos more you are worried about it more stressed you will be and more bloating and burping will happen.
I hope you get better soon...my mom had so many problems cos of this and now she is healthy.
Dont know. I am going through the similar symptoms. Started in August last year. I am a singer and started to sing professionally after 10 years. Initially was doin fine. All of a sudden one fine day felt as if something is stuck in my throat. saw a physician who advised me antibiaotics still the symptoms remained.Went to the ENT who said u have laryngopharyngitis and advised me more antibiotis. Didnt help much either, finally the physician told me that its GERD and thats causing you the dicomfort. Again had no relief. Finally went to an Ayurvedic doctor whose medicine helped me and though symptom reduced they were still there.I always have this constant burping and belching. Infact my weight has gone down by atleast 7 kgs. February onwards I had a throat infection and ever since takin an antibiotic my condition is getting bad to worse. I have white coating on my tongue, fatigue the moment I wake up..Pain in my elbow and knees, muscle pains, inability to walk(I cud run and weight lift once upon a time with remarkable ease...wud give complex to people). I have had Xray, CBC, Endoscopy, Thyroid, Diabetes umpteen no. of times. Dont know whats wrong with me. I would be indebted for my life if someone can help me get my life back. Thanx.
I've had a similar condition starting from about mid-march this year. The main symptoms are every digestion problem under the sun (expect heartburn) and chronic hives (very hot and itchy, night and day). I've had all the same tests done (though not a stool test, just blood), but nothing came up. Extensive tests for everything including the regulation of my hormones and organs to a pregnancy test.
It just occurred to me recently that the digestive system and chronic hives is most likely related to each other. It seemed to me, as far as I can remember, that the digestive system problems came first, and extremely bad might I add, and then the hives followed suit. I'm still in the process of trying to figure it out but I have found some helpful suggestions in the meantime:
1) Go completely gluten free and dairy (cows milk) free in the mean time. This has helped my digestion so much. I don't really have an intolerance to any of these things but in a time of crisis these things are extremely hard for digestion to handle. You'll notice you'll start to feel less inhibited by the way you feel in a week. This wont solve the problem but it's an extremely helpful solution in the mean time to carry on with your life until you find the root cause.
2) Ask the doctor to do a blood and/or endoscopy to check on a bug called H. Pylori. It's a nasty little bug people get from tainted water and the likes, and is asymptomatic. It mainly effects digestion and has been linked to the development of hives. I'm going to the Doctor friday to have tests done to see if this is the case with me. I'm hoping it is since it is easy the get rid of with a high potent dose of antibiotics.
I wish everyone the best and to try these suggestions since I am a student myself and know how hard it is to keep up with school while suffering health problems. I'm interested to know how things will turn out so please everyone update if their conditions improve or get figured out.
I have the symptoms of burping an difficulty burping. I need 3 burps to clear the gas in my stomach, but can't get the third one up at times. I am on Somac 40g & have been for the last 3 months. Sometimes I improve & then take a step backwards. It is a source of constant frustration.
I also stay off the foods I am allergic to such as milk, eggs & yeast. I read all ingredients on labels so I am not eating any of these. I take acidophilis pills every morning & Gas Ease at night to help me burp. Sometimes it works & sometimes it doesn't. I also cough up a lot of smelly phlegm. I have had a gastroscopy, H-pylori, abdominal ultrasound- all normal. I have the tendency to be constipated but have been trying to address this by fibre & water.
I research a lot, but still can't find the answers. The doctors don't seem to have a clue either. I have also lost weight similar to aznxfrost except I am female 51kg, 173 cm.
One thing I know is it has gotten worse whenever I have eaten spicy foods, but I have been eating very strictly for 3 months & haven't improved much at all.
I have had similar symptoms over the past two years: extreme, debilitating fatigue, joint pain, muscle twitches, numbness in toes, short term memory problems, acne, insomnia, etc.
I lost count of how many doctors and specialists I've seen. I've had bloodwork (nothing alarming), hormone testing (a few things low), mri's, CT scans, nerve testing...and no one could pinpoint a cause.
I finally got frustrated and started researching on my own, and thought there might be a link between foods/diet and inflammation (as my symptoms could pretty much all be linked to either inflammatory or autoimmune).
I stumbled across a blog post on the paleo diet, and decided to give it a try for 30 days to see if it makes a difference. It's basically no wheat, grains or gluten, no dairy, no legumes, no sugar, no processed food. So you can have meat (supposed to stick with grass-fed and free range), vegetables, fruit and nuts (no peanuts).
It's only been a little over a week, but already I've lost a few pounds, my lungs feel clearer, I'm less bloated, less achy, and have more energy (not to where I should be, but I have noticed an improvement).
It takes a little planning for meals, and it's meant me cooking more (which I don't mind, just had to make the time for), but it it absolutely worth it if this means I feel better!
if you google around you can find shopping lists, recipes and meal plans.
I'm beginning to think I maybe have had a gluten sensitivity this whole time. (Also, you can test negative for a wheat allergy and negative for celiac, but still have a sensitivity to gluten.)
I'd encourage you to give it a try for 30 days and see if helps. Nothing to lose, right?
Hiadal hernia can only be found if you do a test called a barium swallow...I have had all of these symptoms for years after gaining some weight and on top of that shortness of breath. Protonix and allegra d seemed to keep things in check but recently I have had an influx of the horrible belching when it is stuck in your stomach and when it does come up its a lot. The shortness of breath is the most disterbing. A haital hernia is when the esaphageal sphincter weakens and part of the stomach goes up into it and above your diaphram. It can cause a variety of symptoms and can be progressive. I think that is the fullness feeling in the upper abdomen. So many dr.s have checked my lungs but relatively except some asthma(wich can be caused by haital hernia) there was nothing.we will see over the next few weeks, but this is no way to live. I think with all my research it is...haital hernia...good luck to all!!!
Get a gastric emptying study done (liquids and solids). My daughter has was diagnosed with CFS and gastroparesis. Gastroparesis can cause all of the symptoms you have described. Gastroparesis is delayed gastric emptying, is a disorder in which the stomach takes too long to empty its contents. Normally, the stomach contracts to move food down into the small intestine for digestion. The vagus nerve controls the movement of food from the stomach through the digestive tract. Gastroparesis occurs when the vagus nerve is damaged and the muscles of the stomach and intestines do not work normally. Food then moves slowly or stops moving through the digestive tract and causes further complication as food is not digested properly. Undigested food ferments in the small intestine causing gas and bloating. Nutrition is impaired and bacteria and/or yeast overgrowth can become problematic as well. If left untreated, as condition progresses further complications may arise.
There is no way stress could cause all these problems, any doctor that writes you off with a lame-ass diagnosis like that should be avoided. Your anxiety is more likely to be a symptom of your condition. There are studies that have shown gastrointestinal bacterial infections lead to enhanced anxiety. My daughter (also suffering from anxiety) was given Effexor, the side effects of the medication and/or immune suppressing properties far outweighed the benefit. Whatever you do, do not take immune suppressing medications like steroids (this includes Vitamin D). Your immune system is already impaired (the gut is a major part of immune and hormonal function) so don't take medications that may suppress your immune response.
If Gastroparesis is the problem, then antacids are not the right way to go. They may provide temporary relief and actually make your symptoms worsen over time. If symptoms are not resolve with medication and changes in diet/nutrition, whatever caused damage to the vagus nerve (most likely a viral or bacterial infection - it could be a rare genetic disorder, however, this is less likely) will need to be addressed. Most doctors you see will not be familiar with these conditions so look for a doctor specialising in long term chronic illness and infectious diseases. They will most likely get you to see a nutritionist familiar with gastroparesis as well (you should probably be seeing one anyway as you appear to be very underweight).
I have had chronic burps for a while it is starting to make me vomit more and more I feel my throat getting more and more sore doctors can never figure out what's wrong my little sister has the same problem they blame reflux but it has to be more than that I don't think they get just how terrible this is
I have suffered from many of these symptoms for many years, and the only real advice I can give you is to modify your diet to try and limit the symptoms as others on here have suggested. Your goal should be to find foods that are very easily digested and absorbed by your small intestines, and your doctor can probably help you with recommending easy to digest foods. Also be sure and chew your foods VERY thoroughly before swallowing as anything you can do to make digestion easier should help. Nothing else I have tried aside from diet modification has really worked with my condition, and so it is worth trying if you haven't already.
If your goal is to understand what is happening, all I can say based on all my ongoing research into the condition is that the problem is likely related to one or more problem(s) with the GI tract. The reason why the symptoms are "chronic" is that you must eat food to survive, and the food you eat must pass through the GI tract as it is processed. In short, if you have a probelm with your GI tract then every single time you eat you can trigger the symptoms and you will probably find that the severity of your symptoms depends on what you eat.
In my case, I believe I understand the cause. I took Accutane as a teenager to treat my severe acne, and in the years that followed I went from exhibiting no GI problems at all prior to that point to progressively more and more problems over the past 10 years (it was finally publicly revealed that Accutane causes inflammatory bowel syndrome and several other GI related disorders..before then I was merely suspicious that it could be the cause, but had no hard evidence).
As I understand it, the "fullness" feeling and burping are likely due to poor absorption of nutrients in the small intestines. You likely feel "full" because the nutrients actually are still backed up in there or otherwise from inflammation leftover from your immune systems attack on the the poorly absorbing nutrients. You may find that you can clear the feeling by fasting for awhile/drinking liquids.
The chronic burping I believe is from something termed "malabsorption" of the nutrients in the small intestines, and arises from the long time it takes for food to clear through your system. The same basic idea is behing the increased flatulence ..the food is not making it through your GI track smoothly and the gas is being produced from fermentation in the meantime that has to be expelled through either mechanism. You may also notice being able to "taste" your lunch when you burp for this reason (you can taste it because it is still there!), even several hours after eating if the food is backed up in your GI tract.
The fatigue and viral like symptoms (associated with concentration issues, etc.) took a lot longer to figure out (I thought it was chronic fatigue syndrome too for many years), and it could be arising from your immune system responding to foreign substances clogged up in the small intestines. This is just now beginning to be understood, but there was an article in Scientific American a year or so ago dealing with Celiac Disease (gluten intolerance) that discussed the role of the immune system in gluten intolerance and it was linked to poor absorption in the small intestines.
The anxiety issues are likely not the cause, but a reaction to the cause (when you get nervous it can "upset" your GI tract which can exacerbate the symptoms). I had horrible IBS for years, and it has by and large went away as I obtained a greater knowledge of my condition over the years (knowing at least a little bit about what is wrong has calmed me down quite a bit, and I hope it will do the same for people reading this as well).
The bottom line is that I would strongly recommend that you stop trying over the counter drugs and modify your diet instead. I should caution that it could still be something like a virus causing the problem (so your doctor should still check for these things just to be safe), but if an extreme change of diet shows a large effect on your symptoms than you can be almost sure it is GI related instead (and the bloating, burping, and flatulence are strongly suggestive of a GI problem). For example, try gluten free diets for a month and see if that shows a positive effect. Modifying your diet is also a much safer approach to "troubleshoot" the illness than taking meds to try and solve the problem.
First I would like to say that you are all not alone. When i was 21 I started having strange digestive upsets and strange feelings all over my body that were very alarming. Went through every test in the book from liver and gallbladder function diabetes, parkinsons and always found to be in perfect health yet i felt terrible. I would wake in the morning to violent dry heaving, shaky weakness, strange fears and I was losing weight. It got to the point where i could not work so I flew to seattle to see a herbalist. He treated me for stomach condition, and after his treatment I was told that I was cured. Well I still felt horible. This led me to research some more and I started reading up on anxiety. Now I have found the source of my trouble. A good resource site to visit is Anxiety Centre. There you will find all of your symptoms listed. The only way, in my experience to make the symptoms go away is to forget about them. The more you worry and dwell on them and obsess about them the worse they will be. I know this is not easy but it is the only way I found relief> Hope this helps.
-Trouble gaining weight and muscle.
-muscle twitching(painless)all over body.
-Trouble swallowing(thick saliva?)
-Inflammation all over, mostly neck.
-Throbbing or pricking pain mostly in thighs and arms.
I was told by a specialist that I had anxiety, but how can anxiety cause chronic constipation, muscle twitches, belching and headaches without even feeling anxious!!
I have tried prilosec, good diet, excersice, apple cider vineager, multivitamis and drink PLenty of water.
Does anyone else have prehypertension? My B.P. is normally 135/79. I am a 20 yr old Male, 6'1 and 170. 3 months ago I weighed 210. I think it might be lyme disease because I had a small red ring on my thigh for about 2 weeks but didnt think nothing of it. The only reason why I would rule out lyme disease is because I never had flu like symptoms and I was told that is very common. Does Lyme mess with digestive system too? Please reply back, I think the not knowing feeling is what is causing my anxiety. I get a happy feeling reading through these forums that have all my symptoms listed hoping that in one of them I would find a suitable diagnosis.
Have you looked into bacterial or parastic infections? They can cause major havoc with the digestive system. Unfortunately, most gastroenterologists have no idea so you need to the find the best in your country.
i have all the same symptoms listed by everyone. its got to autoimmune. i was diagnosed with collagenous colitis but still dont know what causes it. i dont want to just take pills and treat the symptoms. i want to know why this came on so sudden and wont go away? its been 4 years now and i am worn out. too bad we all have to do our own detective work.
i have tried all the things you have and diet does help but doesnt get rid of it . to me that means we still arent hitting on what our bodies are reacting to. this aint horseshoes and "close" doesnt help. i've been wondering about a few things that may have been factors...does anybody else have the following;
-really bad allergies to mold. i moved to a town half way down the mississippi 4 years ago and my symptoms started 2 weeks after i arrived.
-uranium and deadly chemical plants all about 5 - 10 miles north of us on the mississippi. they have found benzene, toluene, leftover crap from uranium enrichment, all kinds of other chemicals with long names. we are in the 95 percentile of cancer in the nation. the mud//sludge/gasoline/farm chemical/every other nasty combination of things in the river combine to make this slick,greasy clay mud sludge in spots all up and down the river and they call it "gumbo". when i first got here i was always in the gumbo.
-use of fleet suppositories almost daily for about 2 years
-collagen supplement capsules
these are all things i've been wondering about. do any of you have any of this stuff that might be a precursor to this funky disorder.
they are also saying that there is this thing calle metabolic syndrome or syndrome X that may be caused by a virus/bacteria. who knows, but they finally agreed that ulcers wer caused by a virus.
I have had almost identical problems, and I went through all kinds of test and scores of antibiotics. After one particularly difficult bout of indigestion and heartburn, inability to process slew of different food(even apple), I decided to explore "non-medicine" path to healing. I read about all kinds of herbal remedies, alternative treatments, and generally did a lot of research. And finally decided it would be helpful to go through 3weeks of juice-fast. It was the simplest, yet one of the hardest thing I have ever done, especially the first week of the three. I did not eat any solid food but drank freshly extracted juice made with organic vegetables and fruits 5times a day, in addition to drinking plenty of water. No OJ, no coffee or tea, no other anything. It was the best thing I have ever done for my body, because what I did gave my digestive system a rest and cleansed and detoxed the liver! I no longer have much food allergies, nor do I have problem with chronic indigestion and heartburns. It will be hard, but you will not regret it. Invest on a good juicer if you don't have one. Read up juice fast and get recipes( stick with mostly organic veggies). And most importantly, be very careful to ease in to food when "breaking the fast" . You do not want to dismantle all the good things you did for the 3 weeks by going on a fried food binge immediately after the fast. Good luck!
I've experienced everything mentioned in this thread. It progressively worsened over a course of 7 years. I spent over 2000 hours researching and over a hundred thousand dollars of my own money not including what my insurance policy covered. I've seen top providers from chronic fatigue specialists, endocrinologists, naturopathic and homeopathy. I've spent tens of thousands on tests alone. Let me tell you with a fair amount of certainty, that these issues stem from pathogens that often go undetected with most testingby Docs including GI docs. It wasn't until I was referred by my chronic fatigue doctor to Dr. William Stuppy in Los Angeles, that he was able to figure it all out, including my hormone imbalance, endocrine issues, anxiety and insomnia. It's all about the testing, and you need stool and saliva tests. Saliva detected pathogens that stool or blood tests missed. Diagnostechs is his lab of preference for the GI panel. He's an expert in treatment of these conditions using the drug Alinia. These conditions are very likely the result of undetected parasitic infections. The parasites cause all the symptoms mentioned in this thread, including anxiety, insomnia, inflammation, increased visceral fat in the abdominal and homone imbalances. I've experienced all of this. Do yourself a favor and obtain a full GI panel from Diagnostechs from any doctor. If you have pathogens and parasites. Contact Dr. Stuppy in Los Angeles / Santa Monica regarding his treatment regimine. This is a life changer. If any of you do this, please post your outcome as I would love to hear.
Right now I honestly don't know what i have. i have been at the doctor's office may times, and test after test has been administered, but i still don't know what i have. Because of the stomach flu or something of the sort, for about two months now i've had varying symptoms: nausea, cramps, diarrhea, loss of appetite, chills, and more recently i am now barely able to eat, and i have involuntary food reflux/ nausea as well. i guess now i fall under the status of anorexic, since i lost 30 pounds in less than two months..
Any ideas or thoughts on this?? Please do send your thoughts/ replys
I cannot speak for everyone, but maybe this will help some. I wish someone had told me this before I suffered for so long with this stuff.
For most people, I think the reason your doctor can't find anything, is because there's nothing there - the upset stomach is being caused by stress and anxiety and things you are upset about that you have not dealt with from the past.
How do I know?
Listen to my story. At 35 years old, I was diagnosed with acid reflux. I could eat nothing without getting heartburn. No matter what I cut out - and I followed all the rules - no tomatoes, no chocolate, no alcohol... I would get heartburn and burping which was the worst. I went to several specialists. I had my stomach looked into by a gastro doc... they could find nothing. All they said was that in order to stop the burping and problems they could cut a piece of my stomach out...
I was like wait a minute... I'm way too young for this, to have my stomach cut open, what is going on?
Enter holistic medicine and B.E.S.T. (bio energetic synchronization technique) I was at my wits end, and willing to try anything - i didn't care if it sounded like witch doctor or not, western doctors could find nothing so why not be open to eastern? I was suffering, taking meds constantly with no relief.
Within two months, after being sick for over two years, I had completely healed my stomach and gone off all meds as well as started eating the foods I liked. This has been this way for the past 9 years.
I had found out that one, I had a few allergies to foods I didn't know about it - this was done by the holistic doctor using muscle testing. Two, and most importantly, I found that I was carrying around a lot of sadness from my mother's death over ten years ago. Stuff I had not really dealt with. It took lots of journaling, therapy, and forgiveness... and once I started with that, my stomach started to heal.
Now I realize that when my stomach is upset, i am upset about something. In western medicine we have completely forgotten the mind/body connect. Everyone wants to take a pill, to cover the problem, the problem is your body is telling you are upset about something and need to work it out.
Often times, when I'm upset about something it takes a week or two to manifest in the stomach. And then I have to work to calm those problems. But better not to get to that place and deal with forgiveness and problems before they hit my stomach. When it does strike again, sometimes I have to have bland food - chicken and cooked spinach, as well as take something over the counter. But for the most part, I have completely healed myself and don't have any problems and no meds.
I know this is not what people want to hear. They want to have something wrong with them to take medication and blink it's gone. But I suggest holistic medicine and working with what is causing the stomach upset - some people when upset get back pain, neck pain etc... we just happen to have stomach pain when we are upset.
Listen to your body... my stomach problems were telling me to deal with issues in my mind that were not worked out... maybe your stomach is trying to tell you the same and this is the answer to cure yourself. Don't ever believe that you can't cure yourself...