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Certain HIV positive, but negative tests (Page 47)

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September 13th, 2012
Extremely eHealthy
Here's an excerpt from an article titled "Human T-Cell Lymphotropic Virus Type 1 Tax among American Blood Donors":

The present observations suggest that a substantial number of healthy American blood donors have DNA sequences homologous to the HTLV tax sequence in their PBMC and that practically all of these individuals also have antibodies to p40tax without being serologically positive for antibodies to the structural proteins of the virus. Since, as of this writing, tax has not been found in the human genome, the conclusions that the tax-only state reflects an infection with HTLV or a very closely related virus and that this may be more common in the United States than previously believed seem warranted. Proof of the possibility that yet another variant of HTLV is involved must await analysis of the complete tax sequence found in the specimens under consideration.
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replied September 13th, 2012
Experienced User
HTLV CDC neglected
Tony, Yes the actual number of people infected and living with HTLV is more than what false prediction made by doctors and CDC. since 1990 they just keep mentioning 20mm people living with HTLV. Hasent there been any rise infection past 22 years between 1990-2012. Neglection of this disease is at every stage right from awarness, testing, treatment,actual numbers and finally coverup by cdc and health care providers.
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replied September 13th, 2012
Extremely eHealthy
Also I read that high dose vitamin C (2-3 grams daily) worked better against HTLV than interferon treatments, so if you can do that, you might feel better.
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replied September 13th, 2012
Experienced User
Hey guys ,

I'm still not doing well, I'm having lump feelings in my arm pits but when I look at them in the mirror I can't see any lumps or feel any with my hands, but when my arms are down I feel them. Still have soar stiff neck, itchy skin, my tonsil area is red and my tonsils don't look right to me. I've had 2 upper endoscopes with biopsies taken nothing. Idid have h. pylori took 2 weeks of antibiotics. M having a lot of upper abdominal pain and discomfort. I've had 4 ct scans 3 with contrast of my abdomen and pelvis and 1 without contrast. 1 ct scan showed colitis and another one showed small mesenteric lymph nodes .7cm-.8cm. Dr says they have to be bigger than 1 cm to be considered pathological. I'm really worried about the possibility of lymphoma with all my symptoms. I'm still having really bad middle back pain like something's there that shouldn't be there. When I put pressure on my middle back the pain radiates through my rib cage to vmy chest sternum area. I see a orthredic on monday I'm gonna request an MRI on my back to see what's wrong. The backs of my legs behind the knees hurt feel crampy my calves also. I forgot to mention I also had a colonoscopy with biopsys taken nothing came back . Is anyone experincing any of this? Also Ive had my blood work taken about 8 times the past 6 months it always comes back normal my WBC was low 3 times 3.6 , 3.7, and 4.2 the last time about three weeks ago it was 4.8 I did notice that my lymphocytes were 40% normal is 14 to 46 I'm just really worried about lymphoma but these damn doctors aren't going to do anything as long as your blood work is in spec. Something has to be causing my WBC to be going up and down and everywhere I read it's either viruses or cancer. My stools are still all different colors with mucus. I'll keep posting all my test results guys and I wish everyone the very best.

P.S. let me low if anyone is experincing any of this and has any ideas.
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replied September 14th, 2012
Extremely eHealthy
Scared,

I'm experiencing all of the same symptoms as you - please remind me how long ago your exposure was. I didn't do the endoscopies, biopsies, or CT scans that you mentioned, but I've spent 10 thousand between an infection disease doctor and a cancer doctor. As with you, my blood tests for cancer are coming back within normal range, but slightly elevated.

I'm going to suggest that you buy Curcumin tablets, I've been going heavy on them (2,000mg per day), and I think that because of that I am feeling a bit better. Also, Tafocitinib is being approved on November 21st, and since it is active against HTLV and arthritis, you just need to tell your doctor is that you have arthritis to get this twice a day pill. If the Tofacitinib makes your symptoms go away, then God bless you.

Let me know how your back MRI goes, if HTLV is attacking your spinal cord, that should show up on the MRI. We all have the same symptoms, and live thousands of miles apart, so either we have the same disease or we're all mentally insane.

Best wishes.
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replied September 13th, 2012
Experienced User
HTLV Richard Engnath
First of all sorry for posting such long article,but its nice to know HTLV story of Richard Engnath, which is true for everyone with HTLV

In the world of the Internet, going viral can be a good thing, referring to something that rises above obscurity in the vast universe of uploaded content on wings of sudden popularity. One man in Kingston, Richard Engnath, is hoping to get that kind of attention, in the universe of public awareness, for a pair of real human viruses called HTLVs. That abbreviation stands for human T-lymphotropic virus, meaning a virus that has affinity for T-lymphocytes (T-cells), which are some of our essential immune cells.

HTLVs have been languishing in relative obscurity, at least in this country, since their discovery in the late 1970s and early 1980s. Two forms had been found: HTLV-1 and HTLV-2, and the first form was associated with leukemia. Then, in 1984, a related virus was discovered: Originally dubbed LAV (lymphadenopathy-associated virus) and also HTLV-3, that virus is now known as human immunodeficiency virus (HIV)the pathogen responsible for AIDS.

As HIV jumped into the limelight, its cousins were left in the dark. The HTLVs are, like HIV, retroviruses that carry viral RNA into cells and anchor it there permanently.

Engnath would like to have never met the HTLVs. But a suite of tenacious symptoms led him down the path to discovering them, and he has since become a one-man HTLV encyclopedia, and quite possibly the nations foremost expert on the subject.

His story begins decades ago, when he emerged relatively unscathed from a risky period of experimenting with injectable drugsa newly emerging activity in the 1960s. Though he contracted hepatitis C, hes amazed and grateful he didnt get anything worse. But about five years ago, his luck ran out.

I was drug free and smoke free by then, he explains, and I hadnt gotten HIV. I had a friend I had known a long time, and I was thinking it might be nice to have a child with her. I knew she had been in jail, related to a drug habit, but she said she didnt have HIV. So I took a chance and had unprotected sex with her.

Within a few weeks, Engnath began having symptoms. The first thing I got was swollen glands in my throat and neck, like a mild case of mumps, but it spread to other lymph nodes in my underarms, shoulders, and groin, and into other areas, and I got mild otitis, earache. With those and other problems, Engnath wondered if hed gotten HIV after all. But his HIV tests kept coming back negative while symptoms kept progressing. An infectious disease specialist told him it was just his imagination.

But Engnath kept looking for answers. Four months into this, I was on the phone with the Albany Medical Center, and someone at the HIV center said it could be HTLV-1 or HTLV-2. I had never heard of them. I got the medical librarians to download scores of papers about these viruses for me. [Engnath doesnt have a computer.] There is a lot of research information out there, and some of it said that seroconversion time, when the viruses can be detected in blood, can take up to two years.

he HTLV Info Void
Over the next several months Engnath visited doctors to get tested periodically, and found that each time he needed to explain what HTLVs were and that tests did actually exist. I got a local doctor to test for HTLVs four months into my illness, but it came back negative. At seven months I went to an infectious disease doctor in Poughkeepsie, but he wasnt willing to order the HTLV test again since it had already been negative. At eleven months I went back to the office of the doctor where I first was tested, but he had left the practice and the remaining staff knew little about it and wouldnt test me. They told me they didnt want me to come back anymore.

Finally he convinced an infectious disease doctor in Monticello to test him again for HTLVs, and in January 2006 it came back positive. A more advanced test, through a doctor in Albany, came back positive, for HTLV-2.

Little is known about what HTLV-2 does in the body, but Engnath knows what its done to him in just a few years. He describes it as a core syndrome thats very nasty, with infections and intermittent painful arthritis, slowly progressing neurological problems, and chronic fatigue. He has tinnitus, a constant ringing in both ears that worsens with posture and blood pressure changes, and he has vertigo. About two years ago he developed pain and pressure around the eye, with blurred visiona condition called uveitis. His hepatitis C has started to become a problem.

If Id known about HTLVs, I would have gotten tested before I had unprotected sex, and I could have asked her to get tested too.


The Nature of the Beast
HTLVs are transmitted between people when cells from an infected person come into contact with T-cells of another person. Such cell-to-cell transfer can happen through blood-to-blood contact, such as by sharing drug injection needles or receiving unscreened blood or organs (donors in the US have been screened for HTLV since 1988), and also by sexual intercourse. Infected mothers can pass the virus to offspring in breast milk.

Once infected, most people appear to have little indication of it. But over time, in some people, HTLV-1 can cause adult T-cell leukemia/lymphoma (ATLL), also called adult lymphotropic leukemia (ATL). In this aggressive disease, poorly functioning immune cells collect in skin, lymph nodes, and vital organs, causing swollen lymph nodes, an enlarged spleen and liver, skin rashes, increased infections, and chronic fatigue. With chemotherapy, remission rates are as high as 80 percent, but recurrence is common within a few years, and secondary malignancies may show up years later.

The HTLVs can also trigger autoimmunity, where the bodys immune system attacks and damages normal tissues. HTLV-1 has been blamed for a syndrome of progressive nerve cell damage, causing muscle spasms and stiffness or weakness especially in the legsa condition first dubbed tropical spastic paraparesis because it was first encountered in equatorial areas of the world; it now also goes by HAM (HTLV-1 associated myelopathy).
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replied September 14th, 2012
Extremely eHealthy
AdviseMe,

Great article, thanks, I've read it many times in the past, it's a great example of how ignorant doctors are about HTLV. I'm not sure how long it took Richard to test positive for HTLV, but the part about it taking 2 years is what we all should be focusing on.

Best wishes.
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replied September 14th, 2012
Experienced User
HTLV ignorence
Tony, There should be some one very famous talking about this disease to take the cause.Otherwise it will remain ignored for next 30 years.Some big celebrity.
Or the other way would be to post a video on youtube for millions of people to watch which will speak for it own.
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replied September 14th, 2012
Extremely eHealthy
The only way that a big celebrity is going to talk about HTLV is if I big celebrity gets infected with HTLV, like Magic Johnson did with HIV. Up until then, HIV was only a gay disease, but when Magic Johnson got it, that changed the face of the disease forever. Lucky for him, he has drugs that he can take to stay alive, no such luck for people with HTLV.

Best wishes.
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replied September 14th, 2012
Experienced User
You rite, there is no one for HTLV..
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replied September 14th, 2012
Extremely eHealthy
If you want to learn about other peoples' struggles with this illness, you should check out posts by 'overstressed' and 'omar88' on the forums dot phoenixrising dot me site, these people and others there have been doing much testing and trying to come up with ideas about what's ailing them. OverStressed has been getting tested where he lives in Belgium I believe, and he said that the doctors there are seeing MANY cases like ours. Omar went so far as to get Western Blot tested for all of the components of HTLV (p19, p24, GP21, GP46), which came up negative. The general consensus on that forum is that a generic retrovirus like XMRV & HTLV is making everyone sick.

Best wishes.
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replied September 14th, 2012
Experienced User
HIV NEGATIVE AT 7 1/2 MONTHS.. WHAT CAN IT BE? PARASITES, WORMS,
Hey Ustas.. im still feeling sick. not as much like before but im still not normal.. my throat is feeling alot better since i started gargling Listerine mouth wash... my joints are still a little sensitive.. and my neck also.. i will go back to my health care provider and see what she suggests..

Ustas and Scared... please google "PARASITES AND WORMS IN THE HUMAN BODY" please research it i think it getting closer to whats wrong with us.. let me know what you think.

PS EVRYONE I WENT TO MY LOCAL STD CLINIC THIS MORNING FOR MY FINAL STD TESTING.. I GET MY RESULTS NEXT FRIDAY.. BUT I DID RECIEVE MY HIV RESULTS ON THE SPOT.. NEGATIVE!!! AFTER 7 1/2 MONTHS.. THANK GOD FOR SAVING MY LIFE.. SO REMEMBER SYMTOMS DONT ALWAYS MEAN HIV! IM PROOF!

HAVE A GOOD WKEND MY FRIENDS BE SAFE AND STAY HEALTHY..
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replied September 14th, 2012
Extremely eHealthy
D-man,

Congrats on your negative HIV test results - we all know that we don't have HIV, once we tested beyond the three month mark. But it's good that you've finally let go of worrying about HIV, just as Ustas, AdviseMe, DFrank, myself and others have. As sick as I still am, I do thank God everyday that I don't have HIV, just like you.

Please let us know how your remaining tests go, and if your research into "parasites & worms" turns up anything. We are all in this together, and hopefully someday we will be proven "not crazy", and God willing we will be cured and have our lives back.

Best wishes.
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replied September 14th, 2012
Extremely eHealthy
I got a response from 'OverStressed' on the forums dot phoenixrising dot me site, and here's what's going on in Belgium:

The doctor from the Belgian ITG Helpcenter Antwerp, Dr. Ilse Collier told me she tested many patients with the same symptoms and no answer. She literally said: there's more likely a pathogen out there we yet don't know.
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replied September 14th, 2012
Experienced User
Thanks dman.
Tony since how long is overstress going through this?
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replied September 14th, 2012
Experienced User
Thanks dman.
Tony since how long is overstress going through this disease?
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replied September 15th, 2012
Extremely eHealthy
AdviseMe,

OverStressed has been dealing with this for almost two years, he was seeing the doctor that I mentioned for an entire year. At least the doctor he was seeing had the integrity to say that it's probably a new pathogen & that many people were showing up with the same symptoms, instead of labelling him as CRAZY.

Best wishes.
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replied September 15th, 2012
Experienced User
2 years is long time and still no result. Reading those threads looks like he still suspects HTLV. I have started getting big bumps at backside of my neck. Seriously this is HTLV.
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replied September 15th, 2012
Extremely eHealthy
AdviseMe,

You & me are probably the only people convinced that this is HTLV; everyone else either has gotten a negative test or thinks that HTLV doesn't exist. Before ten months ago, I didn't think HTLV existed neither, but now that I am sick everyday I know that it's a real disease.

Best wishes.
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replied September 16th, 2012
Experienced User
This is the reason why more than 40mm people infected with HTLV and people remain silent and do not recognise this as serious disease, Govt and medical agencies have been sucessfull in covering up and take advantge of negligence.
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replied September 16th, 2012
Extremely eHealthy
The only way that HTLV is going to be recognized (and treated) as a real disease is when so many people have it that it can't be ignored anymore.

Best wishes.
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replied September 14th, 2012
Experienced User
Scared,

I'm having the pain in my calves as well and my joints are sensitive also. Knees and finger joints.

Depressedman,

CONGRATS on your negative HIV test.

I was doing some reading on BACTERIAS and Parasites. They both have symptoms similar to what we are having.

What i would love to know is, are these parasites transmitted sexually?
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replied September 15th, 2012
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Ustas,

Same here - pain & stiffness in my fingers, elbow, back, knees. Many parasites are transmitted by casual contact, so sexual contact must be considered a given. Recall the controversy whether Lyme is sexually transmitted, since it's a spirochete like Syphilis. Obviously sexual contact has a chance that some blood exposure (even microscopic) can occur, so in my opinion ANY disease can be transmitted sexually.

Yesterday I wrote TheBody site a letter asking why mention of HTLV is so scarce, I will let you know if they reply.

Best wishes.
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replied September 15th, 2012
Experienced User
Thanks guys...

ustas thats a good question, but now i think anything is possible, my risky exposore was with a Prostitute, on my bed. very dumb of me, but i was thinkimg if she didnt give it to me during sex, she left it on my bed , like bugs or germs, then i sleep there and i give the bugs a chance to multiply on me? i dont know,... my friend slept with the same Prostitute that nite, and he got the first same symtoms as me, red spots on our penis head, and itchy, but then his just went away, and so did mine, but now i have all these other symtoms, and he claims hes perfectly fine now, make me think it could be CANDIDA that just got out of control and went through my body? or worms or Parasites are attatched to my stomach "intestines" that keep making me sick, the symtoms of both match mine. and from what i read both candida and parasites, worms can be a cuase of both, like you can be suffering from both, i will try there home remedies, plus theres some candida body cleases i will look for one,

thats what ive read, so please help me research this, to fimd our disease and rule out the ones we dont have..
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replied September 17th, 2012
Experienced User
did your friend take any tests , (HIV,HTLV,EBV...)?
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replied September 15th, 2012
Extremely eHealthy
D-man,

What exactly did you & your friend do with this prostitute? Did you both do the same things with her? The reason I ask is that you are sick & he isn't, so I'm trying to see what the difference is.

Best wishes.
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replied September 16th, 2012
Experienced User
Tonydewitt

did u get tested for your WBC and cd4 count?

I am suffering every single symtoms listed. I went for serveal bloood test and the WBC is in a trend of dropping and my current CD4 count is 437. It doesnt look like HTLV
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replied September 16th, 2012
Experienced User
Tonydewitt

did u get tested for your WBC and cd4 count?

I am suffering every single symtoms listed. I went for serveal bloood test and the WBC is in a trend of dropping and my current CD4 count is 437. It doesnt look like HTLV
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