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Certain HIV positive, but negative tests (Page 46)

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September 6th, 2012
Extremely eHealthy
Regarding hyperthemia treatments (which are supported as a treatment for HTLV in a paper by Hatanaka), the Siberian Research Institute of Hyperthermia performs this treatment in multiple sessions. For more details, a PDF file is available explaining the entire process, including activity against "leukemia virus", which I can provide on request. The contact information is as follows: Cheresiz Sergey, Ph.D, phone: +7 961 877 67 67 or +7 913 932 23 90; e-mail: Cheresiz AT yandex DOT ru
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replied September 7th, 2012
Experienced User
Interferon Beta-1a
Interferon Beta-1a Improves Urinary Symptoms, Reduces Proviral Load, and Modifies the Immune Response in a Patient with HAM/TSP.
Costa DT, Sundberg M, Passos L, Muniz AL, Santos S.
Source

Servio de Imunologia, Hospital Universitrio Prof. Edgard Santos, 5 Andar, Rua Joo das Botas S/N, Canela, 40110-160 Salvador, BA, Brazil.
Abstract

The human T-cell lymphotropic virus type 1 (HTLV-1) is the kn
own causative agent of a chronic neurologic condition known as HTLV-1-associated myelopathy/tropical spastic paraparesis (HAM/TSP). Although several therapies have been evaluated for HAM/TSP, none have been approved for use in humans. In this paper, we describe a 55-year-old female patient with HAM/TSP who was treated with interferon beta-1a. This patient, in comparison to 20 female patients with HAM/TSP who were not treated, showed improvement in urinary symptoms over four years of therapy, as well as a reduction in HTLV-1 proviral load and serum cytokine levels typically observed in HAM/TSP. This improved outcome merits further controlled studies on the use and efficacy of interferon beta-1a as a therapy for HAM/TSP.
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replied September 7th, 2012
Experienced User
hows all my frineds doing)>? any improvment ?
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replied September 8th, 2012
Extremely eHealthy
Uk,

As a group, I would say that we are doing better, but we are all still sick. We collectively know that it's not HIV, so we are exploring other options - HTLV, Lyme, etc.

Best wishes.
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replied September 9th, 2012
Experienced User
all im thinking that we have general health problems
NOT STD OR ST
Just timing make us think this is std!! Do you agree?
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replied September 9th, 2012
Extremely eHealthy
No, I don't agree - we all know how we got sick, we all had one time exposure with someone of questionable sexual health.
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replied September 10th, 2012
@ Tony & @D Frank and every one how u doing guys, i did my HTLV PCR test after my risk of 7 month 10 days. and result come back negative after drawing my blood 3 week 1 day.
I am still not well tested negative 24 times for HIV and other STDs and my last test for HIV was after 7 month with negative result, I am thinking to do HIV 1/2 PCR test privately plz tell me what should I do now?
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replied September 10th, 2012
Extremely eHealthy
One,

24 times you tested for HIV? Don't you think it's time to stop worrying about HIV? Come on, HIV testing is standardized and conclusive (unlike HTLV testing), so like Ustas has done, you should put HIV out of your mind.

Best wishes.
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replied September 10th, 2012
Extremely eHealthy
From the American Society for Clinical Laboratory Science
Hi Tony,

Thank you for asking your question at the American Society for Clinical Laboratory Science (ASCLS) web site. The questions posted here are answered by a group of laboratory professionals from across the United States. We volunteer to help patients and their families understand laboratory tests and their interpretation.

Unfortunately, due to lack of research into HTLV, there is little known about the actual window period. Most scientists consider the window to be that other similar viruses, anywhere from 20 to 90 days after infection. Blood banks usually use 51 days. If you've tested negative after eight months it is probably safe to say that you are you not infected with HTLV. Although unfortunately one cannot be one hundred percent sure of this. I would suggest speaking to your health care professional to rule out other similar diseases that can cause symptoms of HTLV. Many other viruses and diseases can cause similar symptoms so just concentrating on one condition is not likely to bring about an actual diagnosis without first consulting with a provider, or an infectious disease physician.

Thank you again for using the ASCLS Consumer Information Web Page. As a member of this profession, I am pleased to represent thousands of clinical laboratory scientists who perform millions of laboratory tests yearly. The clinical laboratory is composed of several subspecialty areas: Chemistry, Hematology, Immunology, Microbiology, & Transfusion Services, and provides over 70% of the objective data that physicians need for accurate diagnosis and treatment.

I hope this information is helpful to you. If you have any further questions, please don't hesitate to visit our site again.

James March-Mistler, BS, CLS
ASCLS Response Team
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replied September 10th, 2012
How is anyone doing? I think it is very important to keep updating about each of our conditions. Since there is no proven treatment, is there anyone out there that tried herbal treatment and solve some of the problems?
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replied September 10th, 2012
Extremely eHealthy
R,

From clinical research, the following supplements are useful:

(1) Curcumin - also known are the spice Tumeric, inhibits nuclear factor Kappa Beta, an inflammation signal.

(2) Fuciodan - a polysaccharide that inhibits cell infections.

(3) Green tea tablets - a demthylating agent that stimulates antiviral genes.

Try them, see if you feel better.

Best wishes.
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replied September 11th, 2012
Experienced User
dfrank?
scared?

any updates? how are you guys doing?
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replied September 11th, 2012
Extremely eHealthy
My girlfriend is starting to get severe back pain, which is on schedule for what I experienced, having been infected three months before her. My back pain seems to be getting better, but I'm just taking it day by day.

Best wishes.
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replied September 11th, 2012
Experienced User
I am sorry for u r gf tony. We all suffering these symptoms yet doctors say 95 percent asymptotic, such a big denial from medical industry and govt. Hope people start recognizing this disease that is politically coveredup.
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replied September 11th, 2012
Extremely eHealthy
AdviseMe,

Thanks - today was the first time that she missed work because of this disease. I try to think that we're going to be okay, but this is another sign that our health is going downhill. And I keep thinking about Alberto in Italy, now diagnosed with Mycosis Fungiodes, a leukemia involving the skin, which is caused by HTLV; he's only been infected with HTLV for seven years, so I think that another cover up is the latency window - they say it's 20 or 30 years, but Alberto got sick in 7 years, and another girl on the WiseGeek forum was dead at 26. This makes me think that we are all in deep trouble.

Best wishes.
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replied September 11th, 2012
Experienced User
HTLV coverup
Agree with you tony, HTLV is a big coverup of our times. No mention of the disease anywere, no reaserch on testing confirmation,latency window. They just sugercote 20-30 years and not serious.Aslo no doctor wants to sepak about this disease in detail.
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replied September 11th, 2012
Extremely eHealthy
AdviseMe,

Amen brother.
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replied September 12th, 2012
Experienced User
this is a hiv forum.. and i think enough has been said about Htvl, and the only people that talk about have tested negative.. so can we please start looking else where and not fill the pages with htvl stuff.. becuase we arnt getting nowhere with that.. no offense people.. just dont want us to be stuck in the same spot as the months keep passing..

everyone who is testing please keep working with your doctor, and please update on your visits , results, suggestions, thats how we can help us figure this out. thanx for reading..
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replied September 12th, 2012
Experienced User
Hello depressedman!

How are you doing these days after the H. Pylori discovery? Are you still plague with those auful symptoms?

I am having problems up to this day after the H. Pylori diagnosis.

All the best to everyone on this forum.
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replied September 12th, 2012
Extremely eHealthy
Ustas,

Good to hear from you! I'm glad that you wrote in, since I don't want anyone telling me that this is a HIV forum when we all know that we don't have HIV, especially in your case.

D-man,

The guy that I heard from who has HTLV said that it took years for it to show up positive, and even then, it required PCR testing, not even antibodies showed up. For this reason, I asked DFrank to get tested for HTLV via PCR - he's been busy but said that he will eventually get around to it (major thanks again DFrank). Sorry to bore you with HTLV, but the symptoms fit; when you find something that causes the same symptoms as HTLV, but is something else, let us know, I'll be all ears.

Best wishes.
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