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Certain HIV positive, but negative tests (Page 44)

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August 21st, 2012
Extremely eHealthy
I received an e-mail from Alberto in Italy last night, he has been diagnosed with Mycosis Fungoides, a lymphoma involving the skin. For those of you who are still wondering about HTLV antibody tests being accurate, Alberto has been infected with HTLV for seven years and has not ever tested positive on an HTLV antibody test (he's only tested positive via PCR). Up until now, he & his wife & his daughter were only suffering from HAM/TSP, but now this MF lymphoma changes everything for him. Both he & any research paper regarding antibody negative HTLV sufferers should once and for all prove that it is possible to be infected with HTLV and test antibody negative. Please get the word out to anyone who will listen.

Best wishes.
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replied August 21st, 2012
Extremely eHealthy
Excerpt from an article titled "Reexamination of HTLV"
A few years ago, when it was realized that infection with HTLV-II was not always detected by serologic tests then in use, type II-specific antigens were included in test kits. The time has come once again to reevaluate currently used methods for the detection of these viruses. Either the inclusion of Tax in serologic test kits or more sensitive techniques incorporating simultaneous amplification of several relevant nucleic acid sequences by an automated system as has been suggested elsewhere could be introduced to screen our blood supply for HTLV more reliably.
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replied August 22nd, 2012
Hi! I have test Elisa 4th generation after 6th weeks negative, but I still have symptomes which are mentioned at some page as HIV symptomes. But I would have them so early, already at 9-11th weeks? I mean a little muscle pain, a little joint pain, had for 1-1 week itchy skin, sweat palms and feet, rash problems I hab continualy from 3rd week till now, but the biggest problem I have now in the 11th week after exposure ( unprotected sex with ejaculation outside ) is that I loose my hair for 2 weeks. What fdo yoyu think, can this all mean that my test was false negative? Thank you for your answer in advance. Trinity
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replied August 22nd, 2012
Extremely eHealthy
Trinity,

Everyone following this post has been repeatedly tested for HIV, and you should get tested for HIV antibodies three months post exposure as well. Since none of us has HIV, so we are discussing alternative causes for our illness, such as HTLV, Lyme, Pylori, etc.

Best wishes.
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replied August 22nd, 2012
Thank aou for your answer! Surfing on the net IU have found page in Canada, where I have found this thing. Do you aggree with it, plz?

"The negative test result you received 6 weeks post exposure via the 4th generation test are an excellent indication of your HIV status. False negatives are very rare, but may occur if done before or inside of the window period. For 4th Generation tests, most medical professionals agree that this type of test is conclusive at that time. Here in Vancouver, we do not have 4th Generation tests yet. As such, our HIV testing guidelines still encourage everyone to re-test at 12 weeks ( 3 months) for completely conclusive results.



Most people seroconvert in 21-25 days post exposure, so yes, 11 weeks (77 days!) would be very late! Generally speaking, late seroconversion has only been documented to occur under the following conditions: in individuals living with an immunodeficiency disorder, are undergoing treatment for Hepatitis C or other invasive therapies such as chemotherapy for cancer which could severely inhibit the immune system or if took Post Exposure Prophylaxis (PEP) after their exposure. But, even in these rare cases, re-testing at 6 months is a pre-caution- there are no known cases in Vancouver where someone took more than 3 months to seroconvert. You can be assured by your negative test results. If you are having a difficult time accepting your negative status and live in the Vancouver area, we would be happy to provide referrals to some support or counseling services so that you can move forward from this fear and move on with your life."
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replied August 22nd, 2012
Extremely eHealthy
Reading your own quote, you should see the text "everyone to re-test at 3 months for completely conclusive results". That's what I've been telling you - follow that. If you are still sick afterwards, test for HTLV and other infections.

Best wishes.
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Thanks for your patience!

replied August 22nd, 2012
Thank you for your reply... Ill go to test on Monday, I believe in my friend who was also on test in his country, and I believe in my test.... thank you, I also wish you all the best.
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Users who thank Trinity1111 for this post: TonyDewitt 

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replied August 22nd, 2012
Extremely eHealthy
Latest news on the FDA approval of Tofacitinib:

The FDA determined that additional data analyses recently submitted by Pfizer constitute a major amendment to the application and will require additional time to review. FDA has not asked that Pfizer complete any new studies. FDA has provided an anticipated Prescription Drug User Fee Act date of November 21, 2012.
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replied August 22nd, 2012
Experienced User
That is a good news Tony, hopefully we get this as early as possible....
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replied August 22nd, 2012
Extremely eHealthy
AdviseMe,

Thanks - I am going to start calling local arthritis doctors to find out which of them are willing to prescribe Tofacitinib for our "condition". If this helps me walk better and feel better, I am going to take it for the rest of my life!

Best wishes.
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replied August 23rd, 2012
Extremely eHealthy
Researchers have identified a mysterious new disease that has left scores of people in Asia and some in the United States with AIDS-like symptoms even though they are not infected with HIV.

The patients' immune systems become damaged, leaving them unable to fend off germs as healthy people do. What triggers this isn't known, but the disease does not seem to be contagious.

This is another kind of acquired immune deficiency that is not inherited and occurs in adults, but doesn't spread the way AIDS does through a virus, said Dr. Sarah Browne, a scientist at the National Institute of Allergy and Infectious Diseases.

She helped lead the study with researchers in Thailand and Taiwan where most of the cases have been found since 2004. Their report is in Thursday's New England Journal of Medicine.

"This is absolutely fascinating. I've seen probably at least three patients in the last 10 years or so" who might have had this, said Dr. Dennis Maki, an infectious disease specialist at the University of Wisconsin in Madison.

It's still possible that an infection of some sort could trigger the disease, even though the disease itself doesn't seem to spread person-to-person, he said.

The disease develops around age 50 on average but does not run in families, which makes it unlikely that a single gene is responsible, Browne said. Some patients have died of overwhelming infections, including some Asians now living in the U.S., although Browne could not estimate how many.

Kim Nguyen, 62, a seamstress from Vietnam who has lived in Tennessee since 1975, was gravely ill when she sought help for a persistent fever, infections throughout her bones and other bizarre symptoms in 2009. She had been sick off and on for several years and had visited Vietnam in 1995 and again in early 2009.

"She was wasting away from this systemic infection" that at first seemed like tuberculosis but wasn't, said Dr. Carlton Hays Jr., a family physician at the Jackson Clinic in Jackson, Tenn. "She's a small woman to begin with, but when I first saw her, her weight was 91 pounds, and she lost down to 69 pounds."

Nguyen (pronounced "when") was referred to specialists at the National Institutes of Health who had been tracking similar cases. She spent nearly a year at an NIH hospital in Bethesda, Md., and is there now for monitoring and further treatment.

"I feel great now," she said Wednesday. But when she was sick, "I felt dizzy, headaches, almost fell down," she said. "I could not eat anything."

AIDS is a specific disease, and it stands for acquired immune deficiency syndrome. That means the immune system becomes impaired during someone's lifetime, rather than from inherited gene defects like the "bubble babies" who are born unable to fight off germs.

The virus that causes AIDS HIV destroys T-cells, key soldiers of the immune system that fight germs. The new disease doesn't affect those cells, but causes a different kind of damage. Browne's study of more than 200 people in Taiwan and Thailand found that most of those with the disease make substances called auto-antibodies that block interferon-gamma, a chemical signal that helps the body clear infections.

Blocking that signal leaves people like those with AIDS vulnerable to viruses, fungal infections and parasites, but especially microbacteria, a group of germs similar to tuberculosis that can cause severe lung damage. Researchers are calling this new disease an "adult-onset" immunodeficiency syndrome because it develops later in life and they don't know why or how.

"Fundamentally, we do not know what's causing them to make these antibodies," Browne said.

Antibiotics aren't always effective, so doctors have tried a variety of other approaches, including a cancer drug that helps suppress production of antibodies. The disease quiets in some patients once the infections are tamed, but the faulty immune system is likely a chronic condition, researchers believe.

The fact that nearly all the patients so far have been Asian or Asian-born people living elsewhere suggests that genetic factors and something in the environment such as an infection may trigger the disease, researchers conclude.

The first cases turned up in 2004 and Browne's study enrolled about 100 people in six months.

"We know there are many others out there," including many cases mistaken as tuberculosis in some countries, she said.
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replied August 27th, 2012
Experienced User
present status of HTLV reaserch
This year is 30th year since HTLV was first reported as a causative agent for ATL. From a series of extensive studies especially by Japanese researches, a variety of information is now available, such as characteristics of the virus, regulation of viral and/or cell gene expression by HTLV-encoded protein Tax and Rex, the pathway of activation machinery on cell growth, the mechanism of cell-to-cell transmission, and prevalence of HTLV carries. However, it remains unsolved how HIV-1 invades and enters into human, how HIV-1 replicates in vivo, how the tumor cells are selected during course of infection, and which cellular molecules contribute disease onset and progression. It was thought the mechanism of HTLV-related diseases, ATL and HAM, would be quickly revealed earlier time after HTLV discovery since the HTLV-related diseases show unique characteristics. Nevertheless, we do not have yet satisfied knowledge of the pathogenesis mechanism as well as the treatment. I describe the history and perspective
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replied August 27th, 2012
Extremely eHealthy
AdviseMe,

Indeed more should have been done by now to completely understand the cycle of HTLV infection. Currently, the following compounds interrupt HTLV activity:

(1) Curcumin - serves as an inhibitor of NF-kB, neucrosis factor kappa beta, an inflammation marker. Taking as much as 12 grams per day is tolerable, currently I am on 6 grams per day.

(2) Fuciodan - a polysaccharide that interferes with cell to cell transmission of HTLV. Taking as much as 6 grams a day is tolerable, currently I am taking 2 grams per day.

(3) Green tea tablets - a demethylating agent that stimulates suppressor genes against HTLV. Currently I am taking 2 grams a day.

This mixture of compounds can be considered the HTLV cocktail, since each compound works differently to stop HTLV. When Tofacitinib (a JAK inhibitor) is available on November 21, that can be added to the cocktail to further suppress HTLV and limit its damage to the human body. I am doing this so that I don't end up in a wheelchair (HAM) or dead from leukemia (ATL). Recall Alberto from Italy is now going through Mycosis Fungiodes, which is a leukemia involving the skin. He was infected in 2005 (7 years ago), so the allegation that HTLV takes 20 or 30 or 40 years to result in leukemia or paralysis is another denial of the medical industry.

Best wishes.
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replied August 27th, 2012
Experienced User
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replied August 27th, 2012
Experienced User
TONNY

what about f we all test for CD4 CD8 count :t wll show our mmune symstems workng or damaged
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replied August 28th, 2012
Experienced User
WHERE ARE YOU MY OLD FRIENDS? HOW ARE YOU GUYS?
UK WORRY YOUR BACK! HOW ARE YOU FEELING THESE DAYS MAN? WERE ALL STUCK IN THIS SICK STATE OF MIND AND CRAZY SYMPTOMS THAT WONT GO AWAY..

USTAS?
SCARED ?
TONY?
ADVISE ME?
DFRANK??

HOW ARE ALL YOU GUYS DOING?? ANY NEW TESTS OR DOCTOR VISITS? PLEASE SHARE WITH ALL OF US. I FEEL LIKE EVERYONE IS GIVING UP ON THE BOND WE HAD.. INCLUDING ME, I GET TESTS AND NOTHING SO I GO BACK IN THAT DARK PLACE OF DEPPRESSION AND JUST SELF DIAGNOZE MYSELF WITH DESEASES.

PLEASE I HOPE ALL OF YOU CHECK IN AT LEAST ONCE A WEEK TO UPDATE ON SYMPTOMS AND TESTS OR DOC APPTS. I WANT TO MAKE AN APPT BUT I NEED TO MAKE A $$ PAYMENT WHICH ISNT EASY RIGHT NOW.. IM LOOKING INTO THE CANDIDA DIET AND WILL LOOK FOR SOME CLEANSING PRODUCTS, ME AND MY GIRLFRIEND HAVE BEEN HAVE SYMPTOMS AND WERE GETTING SCARED AGAIN. I WILL LIST MY SYMPTOMS. THANX FOR READING EVERYONE GOODNITE..

SORE THROAT / LUMP / MUCUS BUILD UP (NOT SURE WHAT IT IS)
STIFF NECK / SENSITIVE NECK GLAND
RANDOM HEADACHES / MOSTLY BACK OF HEAD
STOMACH ABNORMAL / ABDOMINAL PAIN (CAN TOLERATE) BUT NOT NORMAL
RANDOM STOOL CHANGES! DARK / LIGHT/ THICK / THIN/ (SMELLS REALLY BAD)
TINY RED BUMPS ON ARMS / CHEST /LEGS/ (MAYBE RASH?) ITCHY AND BURNS

THATS MY SYMPTOMS THAT WONT LET ME LIVE MY LIFE IN PEACE AND HAPPY!

I WILL TEST SOON AND INFORM YOU GUYS. STAY STRONG AND LETS FIGHT THIS TOGETHER.
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replied August 28th, 2012
Experienced User
Depressedman, from past 2 weeks my symptoms have calm down to a great extent.
Severe back pain, constipation, eye hurting, tingling on hands and legs,weight loss which i was experiencing past 5 months have gone. Still feel neurological tingling at tmes with weak legs.
My diet is more of fiber with fresh fruits, vegetable and juice.
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replied August 28th, 2012
Depressedman,

Similar symptoms are strongly persisted at me
-Sore throat
-white patch on my tongue
-red blisters on my body on my tongue too
-headache
-pain around my tonsil
-roof of my mouth is also changed
-etc.

I am suffering all these symptoms starting from last november. Really bad.

Please guys advice me what to take for the thrush. I think it is spread all over my body. Please tell me what meds can help for this. My doctor prescribed me some meds but didn't help me. Thanks!
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replied August 28th, 2012
Extremely eHealthy
UK,

I don't think CD4 / CD8 counts will help - recall that CD counts go up with HTLV infection, down with HIV infection.

D-Man,

My testing going forward is going to be HTLV testing every two months, I can't afford any more expensive testing. Of course, I will share with the group any positive tests that I encounter.

AdviseMe,

I'm glad that you are feeling better, I know that you were suffering terribly. Remember what I said about taking (lots of) Curcumin, Fucoidan, and Green Tea tablets. Like you, my symptoms subsided recently, I still have eye floaters, tingling, and walking funny, but major back pain has subsided.

DarkGuy,

Thrush is cause by yeast, the best way to battle that is to eat yogurt (I have it everyday for breakfast), and also to take the supplements I listed above, especially the Curcumin - I have four tablets of it at least twice per day.

Best wishes.
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replied August 28th, 2012
Experienced User
Depressedman,

I am not doing bad at all, but know something is going wrong. How i know? My partner experienced similar symptoms as i do. This is like everyday. These includes:-

body aches
abdominal pain
eye problem
flatulence (farting)
belching

I'm just tired of going to doctors who are not willing to help me.

I'm here living and just keeping my fingers crossed, hoping that i'll be ok.
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replied August 29th, 2012
Experienced User
Thanx for responding guys..

please lets all look into THE CANDIDA CLEANSING LIKE DFRANK SUGGESTED..

ALSO EVERYONE (GOOGLE) OR (YOUTUBE) PARASITES AND WORMS IN THE HUMAN BODY.. ITS REALLY INTERESTING AND MATCHES OUR SYMPTOMS! PLEASE RESEARCH ASAP...
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replied August 30th, 2012
Experienced User
Tony, what is the difference between Tofacitinib, AG490 and Bioniz lead peptide, BNZ- are these both Jack Inhibitor for HTLV HAM TSP.
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