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Certain HIV positive, but negative tests (Page 35)

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July 7th, 2012
Experienced User
I also found out last night that my bottom lip in the middle of it is all white. Yes donefor, I use to get that on my neck, chest, and shoulders for months, but I think it's gone now. I still get burning sensation in my figures, and hand. What's weird is that out of 16 months the biggest problems that I've had with pain is mainly all on my left side of my body. I haven't had much problems with the right side of my body except when my ribs use to hurt last year and a little bit this year that was on my right side. Now when my joints in my fingers started hurting last year it affected my right hand, but so far I haven't had anymore problems on my right side. Has that happened to anyone else?
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replied July 7th, 2012
Extremely eHealthy
Ustas - glad that you are feeling better.

Dalton - most of my problems are on the left side also. The white stuff you described could be Candida, which goes back to DFrank's comments.

DFrank - please let us know your test results when they come in.
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replied July 8th, 2012
Hello Guys,

How are you guys? I was away for a while. Hope everybody is feeling better. In my case, I am still suffering the symptoms. My doctor rule out the HTLV case, instead they are trying a number of blood tests to find out the cause. As they informed me, they will consider HTLV later not now.

Still my big problem is pain inside my mouth and my tongue is still white. My tonsil area is completely red. Plus low WBC count. I don't know what to do. I will get test results on the 17th of july. keep in touch guys.
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replied July 8th, 2012
Extremely eHealthy
DarkGuy,

Were you told why HTLV was ruled out, why it would be considered later and not now? How long have you been sick?
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replied July 8th, 2012
Tony,

I am sick more than 8 months. They told me as it is very very low possibility to be infected by HTLV(even zero possibility). But I insisted them to do the test for me. Then they told me to do this test after finishing other tests that they are doing now. I hope they will do HTLV test after having the result of the current tests. I am forcing them to do HTLV test. I will keep update the progress.
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replied July 11th, 2012
Hi, which tests your doctors doing, now and do you get your results on 17/7/12 y results too late?
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replied July 8th, 2012
Extremely eHealthy
DarkGuy,

Thanks for the information - I am glad that you are insisting and forcing them to do an HTLV test, and thanks for updating us on your progress. As AdviseMe mentioned, Richard Engath tested for many months before he got a positive HTLV antibody test.

Best wishes / HTLVhelp
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replied July 8th, 2012
Extremely eHealthy
Can I ask the group to divulge where they are from? For me, I am in New Jersey near New York City; I know some of the others are from Ireland, Jamaica, and even was contacted by a guy from Italy whose wife & young child are sick as well.
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replied July 9th, 2012
Tony,

I am from Italy
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replied July 9th, 2012
Htlv
How long is window for htlv ? When is to be sure you do not have htlv? Plz help, I m 6 month negative but my symptoms killing me.
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replied July 9th, 2012
Experienced User
Hawaii
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replied July 9th, 2012
Experienced User
Hawaii
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replied July 9th, 2012
Experienced User
Florida, about 20 miles west of Daytona Beach.
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replied July 9th, 2012
Extremely eHealthy
onechanceplz,

I (and several people on this forum) have asked doctors and labs about the HTLV antibody window many times, and there seems to be no consensus. Mr. Sadowsky from TheBody site wrote that some people *never* develop antibodies, so he recommends HTLV PCR testing instead of HTLV antibody testing. A patient from Italy named Alberto told me that he tested HTLV antibody negative for two years, and could only be diagnosed with the HTLV PCR test. Like you, we are all suffering with symptoms and want answers.

Best wishes / HTLVhelp.
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replied July 9th, 2012
Extremely eHealthy
Also I should note that Alberto from Italy told me that his symptoms were reduced for about a year after a severe fever, so he is pursuing hyperthermia treatments for him and his family. A Japanese doctor named Hatanaka wrote a paper supporting hyperthermia (heating the body to 42 degrees Celcius for three hours) for the treatment and possible cure of HTLV. Apparently hyperthermia is used widely to treat cancers and viral infections. Quite frankly I would jump for joy if HTLV could be cured this way!
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replied July 9th, 2012
Experienced User
Leishmaniasis read about this guys, tell me what you think.
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replied July 9th, 2012
Experienced User
Also look at symptoms for visceral leishmaniasis, still researching guys.
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replied July 9th, 2012
Experienced User
darkguy, I have those exact symptoms as well, I was at my E.N.T. Dr. today he did a cat scan on my sinuses and said he didn't see anything that really concerned him. I asked about the moucus in the back of my throat and he said it was because of acid reflux. He's had me on Prilosec, nasal spray, and Zyrtec which has done nothing. My tonsils are red and just don't look right to me, my throat still hurts when I swallow off and on, seems worse when my mouth gets dry. I see my G.I. Dr. On the 26th he's gonna do some more tests I'll post results as I get them. Hang in there man I know it sucks but just try. Good luck,
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replied July 9th, 2012
Experienced User
Giardiasis, map bacterium, read about these also guys.
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replied July 9th, 2012
hi friends
i am from saudi arabia
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replied July 10th, 2012
Experienced User
i'm From Qatar
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