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Certain HIV positive, but negative tests (Page 32)

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June 26th, 2012
Extremely eHealthy
PS: I've also been banned from post on the WiseGeek site.
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replied June 27th, 2012
Experienced User
Really tony what for? I find some people on other sites are really rude to people that have symptoms, but test negative. I took my hp test today, and will hopefully get all my other tests done on Monday. Will let you guys know ASAP.
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replied June 27th, 2012
Extremely eHealthy
DFrank,

Thanks for letting us know what's going on with you - almost all of the time these sites don't tell you why you're banned, they just ban you without explanation.

Best wishes / HTLVhelp
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replied June 27th, 2012
Extremely eHealthy
Mysteriously I'm back on the Wise Geek site - odd.
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replied June 29th, 2012
Hello my friends,

I am just.checkin in. I want to curse on here and let my frustrations roar bc everyone in my life thinks im nuts. You guys are only ones who understand, ps my skin is burning right now. Im at work and it sucks. Same spot where I had zit.

Thanks for tellin me about absese. I will look into it. But it has left a.strange red mark as do all my pimples or blemmish or scratch. But this one is distinct like KS... DOES anyone know if KS starts like a zit , crust over and fall off. The symptoms where key to a herpes outbreak but ive read that they don't scar. I had to grow my facial hair in to cover it.

Please let me know, I don't have a dr app until july 26 so I can't get tests till then. Im scared im sure we are all scared. I will be here for you guys til we make it.

Darkman, I love youman welcome..YOU ARE ALL IN MY PRAYERS AS ALL SUFFERING WUTH THIS DISEASE, ALL POSITIVE AS WELL...

PS WHERE IS scared49???

I am going to ask about Hb test too, thank you for that post... Also my.wife has no symptons as of yet either.

God bless u all, tilnext time .my love out to you all
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replied June 29th, 2012
Also I wanted to add I googled ”can people get.straight aids and never p roduce antibodies” and the first link is very disturbing. It makes this even more frustrating.

But what are the chances we.are in that 1% that doesnt produce antibodies. But it also states that p24 antigen can be created by flu, and multiple other viruses. There is so much more in it ... If any of you decide to read it let me know your thoughts .

Im not.trying to scare or put any doubt into you. But is this disease a huge profit business to make money, they say there is no conclusive evidence that hiv causes aids.

But then why doesn't my.wife have.symptoms, why did they let us leave hospital wuth new born and breastfeed her. I just dont get it man ... Im losing it

Any advice
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replied June 29th, 2012
Experienced User
htlv false hope
Hi went to my doc for few more test and my doc fixed an appointmt with neurologist. Neurologist dost thinks my symptoms are htlv related. She adds all these to my anxiety. I cant have bunch of problems due to anxiety. And i am sick of repeting mx symptoms every time. My infectios specilist has taken few more test and wants me to put all these at rest after the final test cuz its par,t win period. Only 3 and half months. He dosent even want to take pcr test for htlv, cuz he has to explain why antibody wount catch. He wantr, me to believe him and put everything at rest.
I have read Richard egneth who runs htlv registry tested negative at 4 months and tested positive at 11months. Serocnversion happens late in htlv. How little do these doctors know about htlv and give false hope.
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replied June 29th, 2012
Extremely eHealthy
AdviseMe,

I would really pressure your doctor to give you the PCR test for HTLV. Tell him that you need to know if you have it so that you can protect your loved ones. Tell him that you've read that people like Richard Engath took a long time to produce antibodies. Tell him that you need peace of mind of knowing what's going on with your body.

Best wishes / HTLVhelp
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replied June 29th, 2012
Extremely eHealthy
AllDespair,

Whatever it is that you have, you should be careful with your wife and newborn - anything that you might give to her will be passed onto the baby through breastfeeding. I hope that it's not HTLV, because that's a big problem in Japan & South America being transmitted via breast feeding. The last thing you want is to end up with a baby that is infected with HTLV, the stories of how these kids suffer terribly is heart breaking.

Best wishes / HTLVhelp
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replied June 29th, 2012
Experienced User
I have made every attempt to request fpr pcr, you know the way ho diffcult it is to convince these doctors.
They are so adament in their stand they dont want to understand anything else. He said he is gonna talk to the head of labarotr to run this specific test.
Although he said there should me medical reasons to prove antibody wouldnt catch not cuz someone is having anxiety.
Also the neurologist was pissed off with me like how am i using the medical terms like spastecity, progressive weakness, bladder dysfunction. What is my background. just coz i am not from the medical background doctors wouldnt accept me using these words.
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replied June 29th, 2012
Extremely eHealthy
AdviseMe,

I'm sorry that they are being so difficult with you - your symptoms are so severe that I can't see how they can ignore them and not give you the PCR test for HTLV. Perhaps if you print out Sadowsky's article on TheBody site where he states that PCR testing for HTLV is helpful because not everyone produces antibodies, that might help.

Best wishes / HTLVhelp
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replied June 29th, 2012
Experienced User
HTLV is Curse
Tony, Thanks for your conscern . Now i am somuch pissed off. Whats the point even if they diagnoise HTL, there is nothing they can offer in terms of medicine or cure for this disease.
Living with this disease or being associated with it is a curse that i see. There is no you can look forward for help when it comes to HTLV.Live life like a Curse....
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replied June 29th, 2012
Extremely eHealthy
AdviseMe,

You're welcome for my concern - we are all in this together. I know it's frustrating, having doctors being complacent about HTLV. They think it doesn't have any symptoms, any suffering, nor any impact on the quality of our lives. So we are supposed to live the rest of our lives dealing with difficult symptoms, and wondering if we will be in a wheelchair someday or dead from leukemia. Everyone with HTLV feels cursed, and wants treatment and a cure, including men, women, and children.

Best wishes / HTLVhelp
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replied June 29th, 2012
Experienced User
its all profit but no cure
Tony, All our suffering and pain dosent makes any difference to medical industry and govt. All they would do is fulfill their greed of more profit by treating only symptoms which still they are unable to treat completely...
The Word Virus is used past 35 years to make money out of innocent general puclic and yet nothing is been done.All these lab and scientists are happy taking grants and not making any robust study for any retro virus. pharma companies fulfill their greedy profit selling drugs for symptoms and not for cure.
None of these people think of the pain sufferer go through.
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replied June 29th, 2012
Extremely eHealthy
AdviseMe,

I agree that profit is the motivation for drug companies to solve any health problem, and unfortunately, when they can't predict a profit, they won't do anything to treat a disease. If you consider how expensive the cancer drugs are to treat HTLV related leukemia ($1,000 per dose), it's easy to see that money is more important than being paralyzed or dead, or simply suffering.

Best wishes / HTLVhelp
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replied June 29th, 2012
Experienced User
Hi guys

Hope everyone is doing great.

H. PYLORI- POSITIVE.
On medication now. I'm happy to have found out the cause of my symptoms.

Tony, did u test for this? If no, please do. I'm almost certain it is your problem too.

THANK YOU Depressedman!!!!!!1
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replied June 29th, 2012
Experienced User
Congratulations Ustas, hope u get all your symptoms calm after this....
Can you please list your symptoms?
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replied June 29th, 2012
Experienced User
Thanks adviseme and everyone else for the comfort an support u generously give.

Depressedman, u r a blessing to this forum.

It's a mighty long list advivesme.

abdominal pain
abdominal gurgles
joint pain
chronic headache
muscle pain
burning skin sensation
skin changes
skin rash
stiff neck
blurred vision
teeth marks on tongue
needle like pain at the waist line
weight gain
darkening of the eyes.
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replied June 29th, 2012
Experienced User
Thanks Ustas, at last u know what is ailing u..
Take care..
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replied June 29th, 2012
Experienced User
forget to add

itchy skin
loose stool


Thanks again Adviseme
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