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Certain HIV positive, but negative tests (Page 29)

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June 20th, 2012
Experienced User
That means keep hanging till the time ur body develops detectable anti body or u end up on wheel chair.even People who run the international retroviraloy on htlv do not know window period for this virus. I was talking to dr viffa and fabiolla the earlier said 6-8 weeks is reasonable,the later said 3 months is fine no further testing needed.
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replied June 20th, 2012
Experienced User
That means keep hanging till the time ur body develops detectable anti body or u end up on wheel chair.even People who run the international retroviraloy on htlv do not know window period for this virus. I was talking to dr viffa and fabiolla the earlier said 6-8 weeks is reasonable,the later said 3 months is fine no further testing needed.
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replied June 20th, 2012
Extremely eHealthy
Ok, so far the HTLV antibody score board is as follows:

(0) dr viffa & fabiolla said 6-8 weeks, then 3 months.

(1) The blood banking industry uses 51 days.

(2) HIV followers use 90 days.

(3) Stricter doctors use 180 days.

(4) Sadowsky & Avioq said there's NO antibody window.

(5) Dr. Zunt said it's "incredibly rare" for someone to seroconvert beyond 6 months.

AdviseMe, you're right, the only way we're going to know is when we're in a wheelchair.
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replied June 20th, 2012
Experienced User
Living invisible with HTLV
Tony agreed with you. Forget about a single Medicine or Vaccine for HTLV
There is no conclusive answer for HTLV window period. Past 30 years scientists and Doctors havent been able to find conclusive window period test. Even there is no sensitive Diagnostic test exist for inconclusive window period.
Also the support for HTLV infected people is second to none from Dcotors and health agencies.People with HTLV live a invisible life till Today when we say science has so advanced we have answer for everythig.
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replied June 20th, 2012
Extremely eHealthy
AdviseMe,

Someone should be held accountable for sweeping HTLV under the rug - the doctors won't discuss it, the government won't discuss it, even the HIV community won't allow it to be discussed, and they're all supposed to be protecting us. I just read an entry on the PhoenixRising forum where a guy named overstressed is experiencing every symptom of HTLV, but continues to test negative just like us. His doctor mentioned that many other people with the same symptoms are showing up, so what is this, a gigantic epidemic or a coincidence?

Best wishes / HTLVhelp
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replied June 20th, 2012
Experienced User
I am sure this will turn into a gigantic epedmic soon, with so my people as asymptomatic carries ad capable of passing on to others. Health communities ignoring it.
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replied June 20th, 2012
Experienced User
I am sure this will turn into a gigantic epedmic soon, with so my people as asymptomatic carries ad capable of passing on to others. Health communities ignoring it.
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replied June 20th, 2012
Still praying for you guys. This past weekend I had huge zit like growth on face that won't heal, filled with yellow puss, sorry so graphic but just keeping up with details. Was weak and slept. Took a couple acylovair and it stopped but face stillllll burning.

I am trying.to get my apointment set up at johns hopkins.

Ps I had to grow out beard to hide huge whatever it is on face, and my beard is horrible looking.

Intermitten fevers all time, weakness spouts , but still on feet

Kit guys
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replied June 20th, 2012
Experienced User
Hello guys, whatever this is that we have, it's horrible. There is never a day without symptoms, no matter how mild or severe it is.

I hate the looks of my eyes. They are getting redder each day. My eyes tend to be foggy at times. Bad taste in mouth during the afternoon, but fine in the morning and nights. Still having calf pain and burning skin sensation.

Only God can tell us what is happening inspite of the vast knowledge He has given to THE DOCTORS.
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replied June 21st, 2012
Extremely eHealthy
AllDespair,

I had the same huge zit on my face, I ended up going to a skin doctor, who said it was a Staph infection. After taking antibiotics, it went away. Then I got the same thing on my leg a month later, missed three days of work, went to the skin doctor, got more antibiotics. Unfortunately, having HTLV makes Staph infections possible, because your immune system is going crazy. The doctor said that the number of these Staph infections has gone up by a factor of ten since last year - if you consider that HTLV could be the next big epidemic, all of these Staph infections could be a sign that more people have HTLV than we know. I hope to God that I don't get any more of these abscesses, they are painful and life threatening.

Best wishes / HTLVhelp
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replied June 21st, 2012
Extremely eHealthy
I just read a well written description by "Jambasher" on the forum for TheBody site, where he shared his story of how he & his girlfriend carefully tested before having any sex, yet he still got sick anyway. It's definitely worth reading, especially the symptoms that he's experiencing.

Best wishes / HTLVhelp
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replied June 21st, 2012
Extremely eHealthy
I contacted Dr. Shaw since his site had a page devoted to HTLV & testing, and asked him what the HTLV antibody window is - he suggested that I contact Arup Labs and ask them, so that he could update his web page (lol). So I followed up on that, and got a very nice phone call from Dr. Allred of Arup Labs, who said that while she couldn't find any information on the window for HTLV antibodies, the window for ANY infection is generally two to four weeks. The Mayo Clinic Lab's site quotes positive or indeterminate HTLV results should "repeat testing in 1 to 2 months can clarify the final infection status", implying that's the window for HTLV, which matches what the blood banks are stating (51 days). I'm a little troubled that doctors can't seem to agree on what the window is, nor labs.

Best wishes / HTLVhelp
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replied June 21st, 2012
Experienced User
Tony, i'm happy for your persistence and determination in finding out what is wrong with you/us.

I am just hoping that all of this is not HTLV, HIV or anything that is fatal. May the Love of God be with us because the Doctors are not with us.
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replied June 21st, 2012
Extremely eHealthy
Thanks Ustas - like you, the more I talk to doctors, the more I realize that we are in this by ourselves alone.

Best wishes / HTLVhelp
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replied June 21st, 2012
Extremely eHealthy
Thanks Ustas - like you, the more I talk to doctors, the more I realize that we are in this by ourselves alone.

Best wishes / HTLVhelp
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replied June 22nd, 2012
Experienced User
positive test for HELICOBACTER PYLORI
OK EVERYONE I THINK I HAVE GOOD NEWS.. MY DOCTOR CALLED ME TODAY AND TOLD ME THAT MY " HELICOBACTER PYLORI " WAS POSITIVE.. SO I JUST PICKED UP MY MEDS AND WILL START THEM TOMMOROW I HOPE IT TAKES CARE OF ALL MY SYMPTOMS.. IL KEEP ALL YOU UPDATED, AND YOU GUYS MIGHT WANNA TEST FOR HP ALSO.. GOODLUCK TO US! AND GOD BLESS
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replied June 22nd, 2012
Extremely eHealthy
D-man,

Good luck and let us know how you're feeling.

Best wishes / HTLVhelp
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replied June 22nd, 2012
Experienced User
Congratulations Depressed Man. Its good now you know what is ailing u.
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replied June 22nd, 2012
Experienced User
Congratulations Depressed Man. Its good now you know what is ailing u.
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replied June 22nd, 2012
Experienced User
Congratulations Depressed Man. Its good now you know what is ailing u.
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