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Certain HIV positive, but negative tests (Page 27)

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June 16th, 2012
Extremely eHealthy
Ustas / AdviseMe,

Exactly my point - they want everyone to take comfort that "one time exposures aren't enough" to transmit disease. If that was the case, half of the world wouldn't be sick. Especially HTLV, every doctor says "it's not that infectious" - one site said that you'd have to be in a relationship for FIVE years to have a SEVEN percent chance of catching it. I'm thinking that's insane. Same goes for oral - they say that's relatively safe, but again two girls who blew me ONCE are sick, proving that one time exposure and oral are both capable of transmitting disease. I feel like the world is one giant denial. My seven month HTLV antibody results are negative, so I wrote Dr. Zunt about what to do, he said that its rare for someone not to develop antibodies. Like the rest of you, I just want this nightmare to end.

Best wishes / HTLVhelp
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replied June 16th, 2012
Experienced User
I was tested at seven (7) months as well Tony.
Whenever my girlfriend complains of problem i go nuts. Its driving me crazy, because she does not deserve this. She is having a hard time with symptoms.

I bet none of those Doctors wouldn't take that one time experience, yet they are saying, u won't catch anything from a one time exposure.
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replied June 16th, 2012
Experienced User
MYCOPLASMA... LOOK IT UP IM TRSTING FOR THIS NEXT IT MATCHES OUR SYMTOMS
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replied June 17th, 2012
Extremely eHealthy
How long has it been for you?
Ustas,

How long has it been for you? For me it's been 7 months, 10 days. Crazy how we all wish that "one time exposure" could have been different.

Best wishes / HTLVhelp
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replied June 17th, 2012
Experienced User
i read about seroconversion, some studies say it takes years to show positive. Not sure how soon can pcr show confirmed result.
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replied June 17th, 2012
Experienced User
i read about seroconversion, some studies say it takes years to show positive. Not sure how soon can pcr show confirmed result.
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replied June 17th, 2012
Experienced User
What if we are wrong, and what if the dr.'s and tests are wrong. What if we do have HIV? Cause you know it wouldn't be the first time that the dr.'s, tests, and everyone else has been wrong, and I'm sure it won't be the last time neither. Everytime I put HIV behind me, the more nightmares that I keep having about HIV. They always say that most dreams are here to tell us something. Plus, our hearts, and minds knows that something is wrong, so could it be possible that it could let us know in our dreams?
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replied June 17th, 2012
Experienced User
I feel the same way sometimes.. But ive took multiple tests 5 HIV test at different clinics all negative.. I get anxiety attacks still. Im going to retest at 6 month mark.
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replied June 17th, 2012
Extremely eHealthy
HTLV antibody testing could take years to show positive
Dalton,

It's not HIV - with HIV, T-cell counts go low; with HTLV, T-cell counts go high - none of us have HIV. As was previously stated, HTLV antibody testing could take years to show positive.

Best wishes / HTLVhelp
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replied June 17th, 2012
Experienced User
Tony:

Eight (8)full months and symptoms are still with me.
The internet is confusing me. Some sites states that Hepatitis can be transmitted sexually, and others say its through fecal to oral. I believe the internet is an overall confusion. Yes, it good, but anyone can submit information that is not factual.
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replied June 17th, 2012
Extremely eHealthy
Ustas,

Soon it will be 8 months for me as well. Hepatitis has many types, each of which can be transmitted in different ways (food, sex, blood, etc.). Doctors should be able to determine what's wrong with us through testing, even if the testing is expensive (e.g. PCR).

Best wishes / HTLVhelp
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replied June 17th, 2012
Experienced User
Looking for htlv window period, tired of searching on net. Please share any info if any one has.
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replied June 17th, 2012
Experienced User
Looking for htlv window period, tired of searching on net. Please share any info if any one has.
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replied June 17th, 2012
Experienced User
Adviseme, some say its 3 months, but i guess we can't soley rely on the internet.
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replied June 17th, 2012
Experienced User
Adviceme,what window period are you talking about ( HIV ,OR, HTLV ) ?
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replied June 17th, 2012
Experienced User
He was asking about HTLV window period
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replied June 17th, 2012
Experienced User
Tony, look up seroconversion hiv. it said that it can take several months or longer. I mean you got to think. The only reason why we know what we do about hiv is because of what we were told. Dr.'s,Scientists. and all professional's have been wrong about a lot of things ever since time began. That's why people til this day die everyday, because the so-called tests couldn't find anything, and the Dr.'s would assume that it's in their head. That's why a lot of them still gets sued. So, why or what can we believe????????
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replied June 17th, 2012
Extremely eHealthy
six months or forever?
AdviseMe,

The HTLV antibody window period is either six months or forever, depending on who you talk to. If you can get the HTLV PCR test instead, try that, since PCR testing might be more accurate than antibody testing.

Best wishes / HTLVhelp
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replied June 17th, 2012
Experienced User
Do any of you guys get dizzy or uneasy gate when you walk?
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replied June 17th, 2012
Experienced User
Not for me dfrank
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replied June 17th, 2012
Extremely eHealthy
Walking is definitely a problem for me
DFrank,

Walking is definitely a problem for me, both in terms of dizziness and uneasy gait. Also I find that any physical exertion makes me so tired that I fall asleep afterwards. My lower back is also very weak, and I have major wasting of my butt muscles. I am also finishing another round of antibiotics for extremely large and painful abscesses on my face and thigh.

Best wishes / HTLVhelp
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replied June 18th, 2012
Experienced User
I also had the wasting of my butt muscles at about the year mark, but have recovered .
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replied June 18th, 2012
Extremely eHealthy
DFrank,

I would love for my symptoms (fatigue, butt muscle wasting, large abscesses, lower back pain, etc.) to recover, but that seems like a dream. I've been corresponding with Dr. Zunt, who says that not developing antibodies at 7 months is very rare. He also said that my previous negative PCR testing should rule out infection also, but with these specific symptoms, it doesn't seem like it can be anything other than HTLV.

Best wishes / HTLVhelp
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