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Certain HIV positive, but negative tests (Page 26)

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User Profile
June 14th, 2012
Extremely eHealthy
Sick like the others - body aches, infected painful abscesses that require antibiotics, back pain, etc. I can tolerate being sick, but I cannot tolerate the abscesses.

Best wishes / HTLVhelp
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replied June 14th, 2012
Experienced User
wish you all feel better soon

please dont let axiaty ruin ur life..

im leaving form now.. good bye everyone
best wishes
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replied June 15th, 2012
Hi guys gals , I just signed up testing post first before I tell story
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replied June 15th, 2012
Okay it worked first off let me sstart off by saying GOD BLESS YOU ALL. I PRAY FOR YOU EVERYDAY. now here is my case summed up . Its way to long to give all details. 2010 was my risk exposure, prior to that in past I got hpv,and gonnoreha all curable right. .. But that was in my younger years. Okay to the point.
Unprotected sex 2010 soon after can't remeber exact here is rundown...

Fatigue
Red spots grew on skin (went away)
Lost weight, but at same time I was in finals at school (dr said.stress)
Constant burning face with what looks like hiv rash (still to this day)
In beginning sometimes had diarreah but I believe it could be from antibiotics my dr put me on for some reason.
Pin needles only in legs
Weight gain
Huge like pimple rash on chin that took 2months to clear but still itches 2years later
Sore throat that came and went but has subsided in two years once in a while I get a sharp pain
Itchy spurts
One dr treated me for thrush with nasty mouth wash but couldnt diagnose thrush
Had endoscopy and mini scope from ENT special... Said I looked healthy despite my red inflammed tonsils and coated tounge
One dr said I don't know what you have and basically walked me out
Pain on left.side buttock with what.seems like wasting
Left side face as well
Right side seems normal
Face gets extremely oily then drys up
Brown discolored healing from pimples
Red spots after pimple subsides and leaves redness on skin like a scar
Somedays face looks wasting and caved in look appears
Tingling.in hands and extreme headaches in beginning
Did I mention I was 180 lbs
Down to 160 then back up to 210 and now 200
Red spots patches on soft pallet that went away
Geographical toungue
Nausia that comes and goes
Swollen nodes in groin under chin armpits all subsided except under chin
Looks like pallups grown under tounge still today
Energy levels up and down
Somedays don't even wanna get up
Otherdays I can work out like a champ and.bench.150 lbs and so on

All THIS PLUS MORE AND GUESS WHAT 10 hiv test spread out up to 2yrs from 2010 all negative...........
Wife thinks im crazy , dr thinks im crazy, friends fam think im crazy, but I swear to you all I'm not... Ive spent two years watching mt body change and suffer through all this called cdc and went.off on them telling them to help me bc if I was single I would be being told.sure your negative have sex ....

Ive been to endless websites , research doctors , specialists all say its in yiur head or kinda brush me off...
That's why I call myself alldespair, bc.the conclusive is 6 months max to test positive , but here I am two years later and still negative with no diagnosis and no.help... Ps I have a v shaped grayish discoloration in penis head to ... On half of it...

This truly sucks and is worst experience I ever had in life, but my biggest wish is that you all get better
Did I mention the guilt I feel for possibly infecting my wife and our newborn who was born lasy year.and she breast fed despite my symptoms bc hospital said she was negative . She had haf two tests in two years to prove to me she is neg too....

One more thing I had vitalago according to a dermatologist who dudnt seem to care...

I will check back to see how you are all doing soon.
God bless us all, and especially those who.are positive...
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replied June 15th, 2012
Im sorry to do this but I forgot to mention to any of you havent seen this yet.... Check out ”the other side of aids” by robin scovill on youtube... It threw me for.a loop just left with even more quedtions, but it may bring you some piece of mind about the medical end of all this bs...

One more symptom I forgot white fordyce spots in lips which dr.said.is normal people just squeeze them... ????

Will someone please give me.some love bc I am TRULY in despair, the hardest thing is to have to function in everyday life feeling like everyone is starring at me.like gross what the heck is wrong with that guy, and wondering if.ill be healthy enough to care for my family bc I love them so much... I feel like an outcast and throwing in the towel.

Also I haven't seen any posts about chronic throat virus, or a new emerging virus in china that is supposed to produce all same symptoms as.aids. Called.” Chinese aids like.virus” but to tell truth I'm done I can't take the endless searches and research much longer... If I ever get an answer I will update you all....
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replied June 15th, 2012
Experienced User
Hi Alldespair, thaks for your post and welcome to this forum. We hope we can give some comfort to you.

You've suffering for a mighty long time with no conclusive result. It's our bodies and we know that something is not right about it, but Docters believe it's all in our heads. I get the same from my doctors and brothers.

Your wife is not experiencing any symptoms at all? My girlfriend is and that's why i'm 100% certain something is wrong. It's hard living with,but we can fight this thing.

Never quit fighting for your life.

Thanks again.
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replied June 15th, 2012
Experienced User
my wife is experiencing the samething, that's how I know it's not in my head. My Dr. told me that there's nothing else that she can do for me, and that's why she's my ex dr.
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replied June 15th, 2012
Ustas,

Thank you for your kind words , yes my wife looks good nice full body no wasting never had any symptoms so she says. Weve been married for two years now so before we met.i don't know if.she ever had. I asked her and she.says no.

I will stay on forum for you guys and try and support you all for these symtoms we are having. I havent been to a immuneologist yet, but my next step is johns hopkins I will let you all know...

Thanks
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User Profile
replied June 15th, 2012
Extremely eHealthy
AllDespair,

Your symptoms sound much like mine & others - since you've been sick for years, can you test for HTLV please?

Thanks.
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replied June 15th, 2012
Experienced User
Alldespair, were all feeling the same, were having symtoms til today. Like you somedays are better then others but we have re adjust to all these new pains and fatigue and for me depression and damaged selfesteem. Were still all testing and trying to figure out what it can be and what its not. Please stay with us and join our efforts and testing results. Thanx for sharing with us your problem.. Becuase we feel the same and now we know were not alone and NOT CRAZY!
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replied June 15th, 2012
Experienced User
Alldespair, were all feeling the same, were having symtoms til today. Like you somedays are better then others but we have re adjust to all these new pains and fatigue and for me depression and damaged selfesteem. Were still all testing and trying to figure out what it can be and what its not. Please stay with us and join our efforts and testing results. Thanx for sharing with us your problem.. Becuase we feel the same and now we know were not alone and NOT CRAZY!
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replied June 15th, 2012
Depresedman, and tony d,

Thank you as well its nice to hear your voices even though its cyber. Kinda.like a support group bc god knows im not getting any here. Just that im nuts .

Thanx for replying me and I will keep you posted with new symptoms and any results.

Tony d. I will ask for htlv

Ps recently ive been experiencing weird rash on right side of face , well seems like pimple but leaves a brown discoloration in skin like kaposi but not sure.... And another one popped up looks like giant white head but it itches not like a zit...

Looks almost like mollescum but no volcano indent. I don't know guys... I put apple cider vinegar on it for now. This sucks man it gets harder and harder to go out in public ....

Tty all l
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replied June 15th, 2012
Experienced User
Hey guys Dfrank again. I know how you all feel with the depression and frustration not being able to find out what is wrong, but hang in there. Last year I was so depressed and worried about my health that I tryed to commit suicide. I evidently was unsuccessful, my aunt had found me and was hospitalized. I now know that it was not the right road to take. I'm no longer worried or depressed about it. My goal now is to find out what is going on. I have been tested for HIV 4 times all negative well after the window period, also been tested for hepatitis. All I know is my lymphocytes running low and neutrafils are high. My doctor also thinks I'm crazy, but he is wrong. That's the Problem with most doctors, if that can't see anything significant on the tests then they move to the excuse oh it must be depression. Well the problem is that they can't feel what we are feeling, so it's easy for them to say that. My symptoms started out as a digestive problem, then dizziness, arm pain and numbness, night sweats, fatigue,stomach aches, erectile disfunction, swallow glands,back pain now all over joint pain, headAches, white coating on tongue,skin problems, I could go on, but you get the picture. Since some symptoms have subsided, but in general I feel worse physically now more than ever. Like a general malaise. When I wake up in the morning my whole body hurts, joints, headache, and terrible abdominal pains. After I get going feel a little better. Anyway I'm getting ready to head to a good hospital for more tests. Like htlv, Lyme, exct. I'll let you all know how it goes. Oh and by the way, I forgot weightloss and feet peeling in weird little circles, also my girlfriend now has some minor symptoms such as weight loss, fatigue, dizziness, and stomach aches. That's the only thing that worries me. Hang in there guys hopefully we can find out something soon!
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User Profile
replied June 15th, 2012
Extremely eHealthy
DFrank,

Thanks for sharing your story with us - some of us have considered suicide as well. Having the doctors tell us that we are crazy is effective in driving us crazy! Do you know who you caught this from? The rest of us seem to have been infected from a ONE TIME exposure, which contradicts the "not very infectious" line that the doctors have given us. I in turn infected others, again with one time exposures, e.g. two girls who gave me oral sex are sick, so again "not very infectious" and "oral transmission not possible" is out the window. Thanks again for your assistance.

Best wishes / HTLVhelp
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replied June 16th, 2012
Experienced User
Tony, Yes, Im pretty sure I got this something from a girl I used to work with. A couple weeks after I think I had the sore throat and flue like stuff. But never a rash. I also had very bad pain in my lower back and balls. The doc thought I had chlamydia or gonnareah but those came back negative. I also had a initial HIV test a few weeks after, even though that had never crossed my mind since female to male transmission Is supposably very difficult, and it came back negative as well. So for almost the first year I never even though it was HIV. Thought it was a digestive issue, until all the other symptoms started showing up. I've confronted this girl, and she said she is fine. I found out later that she was kind of a whoe, and her ex boy friend was bisexual and traveled to places like Thailand. So then I think oh great, cause Thailand supposably has HIV type E that is much easily transmitted among heterosexuals. So I got tested again and negative. I asked the girl that does the testing for the CDC in my area if the test would pick up that strain, and she said yes. It's weird, but all of us seem like we're in a low risk group to have contracted anything. How bout the 2 girls that blew you, what kind of symptoms do they have. And what do they think?
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replied June 16th, 2012
Extremely eHealthy
So you had a one time exposure, just like the rest of us?
DFrank,

So you had a one time exposure, just like the rest of us? I can tell you for absolute certainty it's not HIV - I had more HIV tests than you can imagine, both antibody & RNA; the bill for testing for EVERYTHING was over six thousand dollars. The symptoms tell me it's HTLV, and I'm sure that's endemic in Thailand, especially with the thriving sex industry there. The two girls that I blew are experiencing fatigue, swollen joints, leg pain, etc. That being said, they are like the girl you work with, in complete denial that something's wrong. The rashes are usually small and don't last long, and usually occur at the folds (knees, elbows, groin, etc).

Best wishes / HTLVhelp
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replied June 16th, 2012
Experienced User
Also tony I know Lyme disease can be sexually transmitted also, I will get tested for both.
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replied June 16th, 2012
Extremely eHealthy
Lyme disease via sex is still controversial
DFrank,

Lyme disease via sex is still controversial, good luck with your testing. Did you get sick from a one time exposure like the rest of us?

Best wishes / HTLVhelp
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replied June 16th, 2012
Experienced User
no, possible a couple times with her. But I've had many girlfriends through out my life. Never any high risk exposers.
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replied June 16th, 2012
Experienced User
What do they mean by, "not easy to catch"? Every exposure is a chance to be infected with any virus. It was a one time exposure i had with that girl and i felt symptoms. I stayed away from my girlfriend for over two months so i could do my testing. When all came back negative,i was relieved.

My girlfriend came by me and while making out, she decided that she want to feel me inside her before i put the condom on. It was breif. All she did was to ride it a few times, then i put the condom on, but yet a few days after, she started to experience symptoms.

The one time girl, oour experience was a bit longer but i was in and out of her in quick succession. She i believe, was in denial because i asked her if all was well with her and she told me yes. I believe she knew something was wrong. She started to hide from me a few week after.

I have no one to blame but myself.

Just hoping for the best.
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replied June 16th, 2012
Experienced User
I was reading a post on another forum i think, where a young man thought he ahd HIV base on his symptoms. He was tested for Hepatitis A, B, & C, and the one that came back positive was Hept.A. Is this transmitted sexually? Some sites said yes, while others said no.
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replied June 16th, 2012
Experienced User
Ustas, i agree with u .its easy to catch with One time exposure. My exposure with the girl was protected oral and insertive. Once i pulled out she took out the condom with tissue paper and wiped my penir with the same tissue paper briefly and now i have all symptoms.
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