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Certain HIV positive, but negative tests (Page 136)

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November 1st, 2016
Just an update all. Again I'm the guy who does the other site dedicated to finding the cause of this disease. We are a 99% it's bacterial in nature. Absolutely no one shows signs of an ongoing viral infection though we all have low CD57 - sign of chronic bacterial infection. The thoughts now are this is Lyme, mycoplasma, bartonella or chlamydia pneumonia. Please note a few posters have got positive c pneumonia results. It can cause chronic health issues like those detailed here. This is the current line we are pursuing. It can be passed through tiny droplets of saliva hence why families all get it. It affects joints, eyes etc and causes rashes and chest pain, ulcers etc. I'd advise you to get tested and do your research.
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replied November 14th, 2016
Hey what's going on wilson10 now you say check for Lyme disease, which I did and I think I have chronic as well but doctor won't give me treatment but then again my wife she had same symptoms but And tested negative for Lyme . Now as far as mycoplasma I only tested for mycoplasma genitellium and it was negative is that all in the mycoplasma I should test for? I sure am going to test for chlamediah pneumia as well , cause I feel like I have a co infection
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replied November 15th, 2016
Experienced User
I think tests are not accurate. There is no explanation for my diseases. by the way what is up with scared? no updating from him still?
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replied November 15th, 2016
What test is not accurate? Hiv? , I don't understand either. I agree with you nice. I'm going thru a lot of symptoms and seeing my wife and kids go through the same symptoms with no answers and nothing comming out positive don't make sense? I fear the most for my kids health. I'm going to take these tests Wilson stated and if negative then hiv is the only solution I took all tests and all negative. Hiv is the best explanation that matched symptoms and everything but to test negative for it and try to get treated is another issue. I'm lost and in need of guidance
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replied November 17th, 2016
Experienced User
I dont trust hiv tests next week i ll get tested for htlv and if it comes negative then i must have hiv. i think some prople turn positive late:(so many people got lost in this forum.where are they?maybe turned out positive? ?
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replied November 19th, 2016
Hi guys,
Sorry for not being active here. Its been 17.5 months and I am still having symptoms. Dont know what is happening with my body. I have lost all the muscle from my arms and legs. Also lymph nodes all over the body are still persistent. I tested at 17 months and was negative. But my cbc is constantly showing elevated eosinophils and monocytes. Dont know what is the reason behind this. I will keep on testing till I get behind the root cause of this.
Also I request everyone of you wilson,nicelscu,scaredallen ,gotserved to update your status here regularly. And I hope everyone of us is negative here.
May God be with us.
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replied November 20th, 2016
hi I am from China. I know there are lots of people have.the similiar ssituation. They have synptoms of white tongue, belly sound, skin issue, chlamediah pneumiamuscle jumping, pains at diffirent place different tine, ich sometimes, eyes problem, joints problemchlamediah pneumia, so many symptom like HIV but they always test negtive. They have gone to the government to push them find what is the virus but they were seen as mental problems. I know it is not because everybody issue.is the same. I dont know if there is agency that would like to do.research for this and help us.please help because many people die of this several years later duee to imune system broke down.
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replied November 21st, 2016
Experienced User
Anybody checked for htlv except for scared? I will get tested for it
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replied November 25th, 2016
Experienced User
I did. Negative for both HTLV 1 and 2
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replied November 29th, 2016
Experienced User
Nice to hear that they are negative matteroftime. I will get the result on Thursday but i dont feel so much hope. It will be 1 year mark. How long after the incident was the htlv test matteroftime?mine is 1 year. Window period is enough for that?
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replied November 29th, 2016
Experienced User
Good question. I don't know about the window period for HTLV. I had my HTLV test done 11 months after the incident.
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replied December 3rd, 2016
Experienced User
Hi
Updating
My htlv came negative thanks god. Doctor says all this is stress but i dont believe because you know the reason. Scared you got your wife to tested for hiv or sth else?
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replied December 13th, 2016
Hello everyone..
It took me 20 days to read all the previous pages...I thought I would get the underlying cause of my horrible symptoms by the time I'll see the last page.....but now I feel kind of depressed again...

7 months ago I got familiar with a backpacker from Holland in Malaysia..we were talking for two hours until we ended up having french kiss.... Next day I started to have fungi infection on my scrotum...and took me 2 weeks to get rid of that... I also experienced having high temperature accompanied by red rashes all over my body....

From that time until now I have experienced:

Tingling on my fingers( also pain...in a way that I couldn't put pressure on my tip of fingers or pick up sth)

Peeling on my fingers

Red spot on the roof of my mouth
White toungue and ulcer
Double white line on my nails and nowadays I noticed some vertical black line on them

Pain in my lymph nodes esp on neck and armpit
Weight loss

Yellow urine for the past 7 month
Enlarged testicles
Having belly while my hands and legs are skinny and week
Sore eyes
And the list will go on.....


I've had 11 times blood test for hiv and also 1 pcr RNA... All negative
Hbv hcv toxo ana..syphlis..all other tests negative
My liver enzyme (sgpt)is higher than normal and i have pain in my liver and spleen...

I lost my job bz of these symptoms and lack of energy...I came to my own country to live with my parents again...I have nothing to do just to see different Drs...but nothing has come up ever since...

These past 7 months has been the worst peried of my life... I just wish I could end my life...
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replied December 13th, 2016
Experienced User
Hello
Most of the symptoms are alike mine. Especially the vertical black line on my fingernail and thr rest i am still nrgative for hiv and htlv whatever it is it so infectious
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replied December 16th, 2016
Hi nicelescu

Unfortunaltly I can't let hiv out if my mind...
I can't believe just a french kiss has led me into such a hardship....
The lymphnodes around my neck are so painful...
The pupil of my eyes are swollen in a way that everyone thinks I oversleep every day...
The Dr said that I do not need any further tests ...hiv tests after 6 month is 99/99 accurate!

He refused to write Cd4 test ...just has prescribe some tablets for my elevated liver SGPT...
I want to get married under the pressure of my parents' will..... But I don't know what to do...
Let' pray to God to have mercy on us...
I think we remain undiagnosed and we'll be dead soon in silent..m
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replied December 18th, 2016
Experienced User
I agree with you. With all these symptoms and diseases it is impossible to rule it out. I know that it will someday turn out pozitiv or we will die without diagnos:(
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replied December 18th, 2016
I've had a sexual exposure > 4 months ago.
Tested 7 times 4th gen but all negative, full body STD screens all negative.

Symptoms ongoing now:
- Fatigue (Better already)
- Muscle twitching (Better already)
- Inability to hold urine, yellow and foamy
- Dry mouth, dry lips, white tongue (persisting)
- Stools have some blood at times
- Eyes getting red (bloodshot)
- Red dots randomly on chest, arms etc (bleeding in skin, surfaced overnight about 3 weeks from exposure, no change til no)
- Red pimples on chests (shift around torso every few days)
- Brain fog? Memory loss? Inability to focus?

I've read through most of the posts. Sad that after 6 years there's no advancement. It took a few decades to track HIV, so if this were some kind of unknown viral infection or HTLV then it's probably gonna take a few years of proper research, but there's nothing even being done now. :'(

--> My greatest concern is whether these symptoms are contagious; do your family members, partners, colleagues and friends experience these symptoms as well? On the other forums, they claim that it does but I need more basis of comparison. If it was that contagious, then surely after 6 years half the world's population would be infected at least!

---> I sincerely hope that there's at least a diagnosis for our symptoms. Did anyone attribute it to purely psychosomatic / psychological? Did seeing a shrink and/or counsellor help in any way?
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replied December 19th, 2016
I've read through all the posts.

Unfortunately, I can't help but notice that most of the earlier posters are no longer posting...
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This post has been removed because it did not meet our Community Guidelines.

replied December 22nd, 2016
Experienced User
I dont trust testing some day it will turn out pozitive i know there is no explanation for my diseases
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