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Certain HIV positive, but negative tests (Page 124)

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September 11th, 2015
the ride, am certain its hiv there is no virus cause extreme body inflammation and death feeling unless HIV , also i ve many infections that look like opportunistic infections, am afraid i had it and die because of hiv/AIDS and my lab test negative,i have tested 3 months and half with all available test antibody, antigen, and even tests look for RNA of hiv but all negative, now i have racing heart, wet skin , fever,sore throat, waste syndrome,rash,eyes problem,foul sweat smell, but no more body burning, this is because my immune system is lose the battle against the hiv, and the inflammation i have experienced due to the CD4 suppression,fighting and destroyed by hiv. what should i do i believe lab tests or i listen to my life threatening symptoms, from this experience i realized that the doctors dont help they not even ask for symptoms ,when they saw negative hiv the rely the symptoms to anxiety, i wonder if anxiety can cause extreme awful inflammation, I DONT THINK SO WISE DOCTORS.
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replied September 12th, 2015
Experienced User
hivtest21: I very sorry for your symptoms; please try an calm down I know how hard it is, now these hiv tests after 90 days from exposure 99.9 percent an if you have had several of them stop! with the hiv tests. a lot of viruses will cause same symptoms an bacterial infections as well,so try too calm down,as time goes on things get better, check out the symptoms of endoviruses you will find same symptoms, if interested I have a real good link to someone who for last 10 yrs has been trying to figure out what virus he has,not only that but his family an friends an people in his apt all have similar symptoms,whatever you have its not hiv, and going by symptoms will drive you crazy a lot of illnesses cause same symptoms, an good luck finding doctor,to put time in figuring it out, they run there standard tests,about all they can do , my doctor even mentioned that there are unknown viruses out there they cant test for that, take good care of self, eat well, drink good water,get your rest,give your body whatever you think it needs. see other doctors if you feel you must.maybe youll get lucky an find a good one. has not been case for me, therider
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replied September 13th, 2015
Thanx therider but these symptoms appear after a sexuelle entercourse with sex worker, yesterday i have called a friend slept with the same girl tested positive for HIV1 and he is now under ARV, i described him my symptoms and he told me he experienced many of them,,i called my doctor that have 20 years in HIV infection, his response was(many couple living manay years the women is hiv positive and the husban is still negative so don't think about the others) now i had 4 ELISA, 1 DUO TEST AG/AB, HIV VIRAL LOAD RNA undetectable, my tests are all negative but the guy i spoke with yesterday freak me out, this day am still with fever,fatigue, rush,vision trouble with very red eyes,heart problem and sore throat, all doctors i visited(20 or more) told me you havn't HIV they don't want to help me,my symptoms are AIDS symptoms but the lab test come back negative, if am negative then why the guy who slept with the same girl is under ARV;;;;;;; my life is shatter and each day i feel am going to die soon ,AM SO TIRED THE RIDER.
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replied September 13th, 2015
Experienced User
hiv21, trust me these new generation hiv tests are very sensitive, if you had all neg results after 90 days you don't have hiv,1/2 they test for both antibodies.have you ever considered the fact that see may have more then 1 disease in her body,she could also have bacterial an viral type infections as well.i had read online where some ladies were married to guys with hiv, an they never had it tested neg, so yes your doctor is correct just because your friend has hiv, don't mean you caught it,whatever happened to me was caused by a women in a club who was going around kissing everyone in jan around holidays an grabbed me as well I didn't even see it coming an pushed her off me in 2 seconds, she wasn't anything id want near me an drunk,well 2 weeks later symptoms started, an I had all the same stuff you have but very mild,never felt bad or ill,but knew something was not right an started to test for hiv, every month for a yr, all neg I had found out who she was an confronted her as well she laughed an soon left town, I have this bad feeling an I believe she knows whats going on, so any of you guys out there think you cant catch something from a French kiss, guess again,an I wasn't a willing participate in it!! hang in there TRUST ME it does get better an you do get stronger, take care of yourself an do whatever to help your body fight this, therider
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replied September 15th, 2015
the rider, more than 20 doctors and no on can tell me what happen inside my body, 2 months ago i was seriously in pain the people like me should go to coma but i didn't agree the idea because i though its hiv so you know the stigma around this virus, now am still with manay symptoms,fever,caugh,constipation,red spot eyes, and vision of 6/10, all my test were negative at 3 months mark and even the tests that look for the virus, come back negative, AM praying the god each day to be any kind of illness but not HIV. hang on there The rider and good health.
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replied September 15th, 2015
Experienced User
hivtest21; yes I have been too several doctors as well, they are good at grabbing your money then telling you they have not a clue what to do or how to even start, exact words by one doctor, I said can I get my money back then? an then the contagious disease doctors wont see me cause all tests neg,so im stuck. I have no idea whats going one im sure its a virus,ive done the antibiotic treatments for bacterial infections,whats funny is theres no caring from the medical community.so I know an understand where you are at there.only thing I can do is keep having blood checked, an going in to get checked over,to monitor my condition,so far my blood work is normal,its going on 19 month for me, im sorry to hear you are in such pain that sucks, ive never felt sick nor have had any pain, just a bunch of symptoms that came an went,have 2 laft that are not going away,an you never know what tomorrow will bring?hang in there you are not alone,you can check out the new virus in china google that? id post link but they would shut it down,depressedman hows it going good to hear from you as well,4 years, im interested in your story after four yrs what were your symptoms in beginning,have you had blood work done? an how has that been over last 4 years, I had all that itchy ears, eyes , nose. dry skin, blood red eyes, inflammation stuff, an more as well I was able too get rid of it by taking natural minerals for the thyroid gland even fast heart beat , but after 2 week on this stuff I had mentioned it few posts back its done wonders for me,even my sleep is so much better, check out thyroid symptoms an those are in there,whatever entered my body I believe threw my entire system out of balance an now im much more in tune then I was not perfect but much better,life is full of regrets d-man we all have them,dont beat yourself up cant go back,look forward an keep pushing ahead. therider
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replied September 15th, 2015
Experienced User
almost 4 years of regret
Almost the 4 year mark.

Symptoms:

Itchy skin at different times
Sensitive joints
Itchy ears and eyes. Minor
When I have sex with my girlfriend we both ignite the symptoms. Headache, itchy skin, urinary tract infections symptoms, foggy head,

Now girlfriend has been diagnosed with follicular cysts in here ovaries, it's safe to say I ruined my chances of one day being a father. And also ruined her life.
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replied September 24th, 2015
Extremely eHealthy
D-man,

Good to hear from you - it'll be four years for me on November 7th. Best wishes to you, my friend.
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replied March 16th, 2016
bro what are you on about??? who told you that follicular cysts are prohibitive of from having children? its a hormonal imbalance that MILLIONS of women suffer from. come on dude. stuff being hard on yourself. you have loving gf, you know how bad id kill for that right now?

and to have sex again omg id give a kidney, if i didnt infect my gf/wife with HIV or herpes.

celebrate being alive, go do some drugs and get laid man. Youre lucky

btw foddy head - ketogenic diet will solve all of that!
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replied September 16th, 2015
Gents.

Saw the Neuro Consultant specialist. He tested me for peripheral neuropathy, myelopathy & radiculopathy. All negative. This was done via nerve conduction studies for PN & having a needle inserted into muscles for myelopathy. Awaiting some blood & urine results but tests showed none of the above. Genuinely nice guy who took time to speak re issues. He asked history & testing & reasons why I'm now getting these tests. I was honest & explained fully. I stated the Neuro issues: muscle (leg) twitches, inconsistent bowel (sometimes normal sometimes not) & leg pain. He stated twitching & bowel changes can be as a result of anxiety issues as can pain (pycho somatic). I asked re mass loss which he could not explain. My weight is now about where I was but have lost mass. Not massive amounts & it is improving. I wanted these tests done as I as all of us looked to HTLV & HAM scared me. Obv had a neg 6 month test & due to symptoms the HAM side worried me. I have to now clear my mind of this as it's been proven I don't have the neuro issues HAM patients have. Situation is improving. Mostly now sleep issues & those above.
Hope things start to improve with everyone else soon.

Regards
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replied September 16th, 2015
Experienced User
scared ; good to hear from you again, that's awesome news!!!!! im so happy for you,an im so glad you found a doctor to listen, I have had no luck on that yet, or to even test me for myelopathy like jammy had done, they refuse to do test they feel are unessicary, maybe your mass loss is due to loads of stress ? I bet you will start to sleep better now scared, so what the heck do you feel you had scared a unknown virus or what? I mean these symptoms don't come from no-where? your body had some reaction to something,thank god, it appears to be under control an not as serious as once thought, I have ear ringing, bacterial type tongue, yet, cant help but worry an wonder ,about what entered my body? its very important we all stay in touch to help each other, jammys news an yours gives hope,to the rest of us that just maybe we too will be ok ? therider
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replied September 18th, 2015
Hey Rider. Cheers. Yes it's good news re neuro tests. Not sure what I caught or went on but it's lasted for some time. Stress & anxiety have intensified it I know that. Like everyone I experienced ARS symptoms mine developed after 4 days post exposure which went after 2 days then after a further 5 1/2 weeks later (nurse said when I went for tests 4 days post exposure that after 6 weeks your clear & I counted each one off day by day & bang 5 1/2 weeks later I'm almost clear & bang.. symptoms. (Sweats / shakes / fatigue) hit me like a wet fish. Later experienced (weight loss, teeth issues, mass loss) I look back & i have not took my mind off the stupidity for one moment, I'm not sure what went on there but the stress & anxiety build up could have played a big part in the sudden symptoms appearing just before before 6 weeks. Not suggesting it was only stress & anxiety something went on but my frame of mind at the time may have contributed. At this point I had also explained my infidelity to my wife. The whole thing then caused home, work & social relationships to be disrupted & some ended through worry. As I said I've been tested beyond belief... (MRI/CT/colonoscopy/synacthen/neuro & a whole host of blood work & only thing that came up was borderline sodium..?) . Alongside 5 neg HIV tests and neg HTLV tests all tested up to 6 months. I've spoke with experts here re these results esp HTLV rider & some at length. We have a national specialist centre in London for HTLV & treats HTLV patients. There are also smaller centres in the uk. They all stated antibody test is conclusive at 6 months. The only way there would be no antibodies would be due a lymphoma & in my case CT proved there was no lymphoma as did bloods to be fair. . Weight is normal, mass is getting better. Sleep as stated still so so. (Prob due to anxiety as when I wake I think of the obvious) my issues are getting better but I don't want to run away with that. Currently working on leg mass & twitching (which is settling) which as stated is not a neuro issue thank god.. Hope this path continues. Bowel movements also improving which could be why weight & mass is steadying as body falling back into line. Cheers Rider. Hope all good with you & all on here.
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replied September 18th, 2015
Experienced User
scared; that's awesome glad for you an your family, yes I have spent many thousands testing an retesting they don't want to test me anymore an my blood tests at one yr were all in normal ranges, just had colonoscopy done in july, ill wait til dec to go in an get checked over again an cbc done again ill have to fight for it im sure, an my insurance does not let me go to a lot of other doctors it would be out of plan, meaning they don't pay, if you get a chance scared go on you-tube an watch a doctor tent on there ,lecture on viruses, its awesome you will be amazed by it, I got to tell you I had no ideal, an a lot of viruses you can get from a surface, or from salvia, which clicked in my head due to fact that my exposure was a French kiss, from lady who was visiting here from another state, an scared you can catch more then one virus at a time from a exposure,weather its close contact, sex, French kiss, he explains a lot of these viruses, you really need to watch it im not allowed to post links here, therider
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replied September 19th, 2015
scared glad for u, u was my moral during hiv testing because our symptoms are the same but mine was life threating, the rider, even my hiv test negative i can not clear my mind of this HIV , sometimes i said am AIDS late stage, because we experienced me and my AIDS confirmed friend( who have sex with same girl) we have similar symptoms, but he tested hbv and syphilis positive too, he was seriously ill in the hospital following chest infection, can i believe my hiv status, AB/AG/ VIRAL LOAD all negative, and symptoms killing me especially when i think of the situation of my fri lymphoma, ut my last cd4 was over 1000, can the 1000 be false? i don't know , my life make STOP for 5 months now,TILL NOW AM ON ANTIBIOTICS AND EYE CORTISONE, MAYBE AM EXTRAORDINARY AIDS PATIENT the temple university NEED SOMEONE LIKE ME TO CURE HIV.
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replied September 21st, 2015
Experienced User
hivtest 21; I know how hard it is too erase hiv from your mind I too tested 11 times over a year all neg, before I gave up on that, then tested for everything else neg as well then did blood tests normal ranges, but yet these symptoms don't come from no where? an I understand how all of this trama can drive you insane. but hold the line, you will get better an come more to terms with your situation,as I stated before these new generation tests are very sensitive an if you had any hiv antibodies from that many tests you would have known by now, you are not hiv pos,you have other viruses , some of these endoviruses can strike a person down very hard as well,read up on these symptoms are the same, also there are many uncommon stds out there a lot of folks have not heard of google them an get list as well,these t cell counts go up an down esp when your body is fighting infection, so try an calm down, stress isn't doing you any good here,your body really needs you to mangage this stress so it can fight this infection.im sorry to hear about your friend that sucks, disease is everywhere never know where or how its going to strike you down, we just had a 8 yr old boy here die from viral menigestis infection, which is rare here, doctors figured it out after he passed on, focus on taking care of yourself, the rider
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replied September 23rd, 2015
am going to be crazy the rider, again another infection doctor run blood count and all back to normal, i've met my friend (diagnosed with aids have the same symptoms of me), however my symptoms are more better then 4 months ago, my leukocyte count back to normal, my lymphocyte percentage too , i've stopped taking corticoides since one week and my doctor said this is the reason why you were immunosuppressed and your blood result fluctuate on daily basis, but again emphasize that my symptoms are the result of stress and taking many medications, in the other hand i run a cd4 count an i will get the result the next week, am planing to measure the hiv viral load pcr RNA which come back undetectable at THREE months mark, i am still struggle with many symptoms( red spot in eyes, constipation,oral thrush ,lack of appetit , something stuck in my throat, some rush in my face,wight loose and the weird my heart palpitation and racing (is there any one from you guys have this heart symptoms??), sweat and fever but my sleep seems to be better so far. i don't know what doing next all my lab test come back negative for hiv and even test that look for the virus it self. but when i see my friend i said we have the same symptoms and even bad smell, so how can i believe my tests, i can't erase this hiv from my head.
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replied September 24th, 2015
Experienced User
hiv 21; im really glad to hear your blood work is back to normal, that's a big plus,once again if you are neg for hiv after 90 days hiv is not your problem. whatever is causing your symptoms is still open to question????lot of guys an me as well have had the heart palpitations, a lot of viral or bacterial infections can cause this,the heart settles down in time,as the body balances back out form whatever it is or was, causing problems,i have been feeling great!but I too am wondering if theres something going on or not? as I was never sick, just had all these symptoms come an go but were very mild,an now I have a tongue the doctors states is normal,i disagree, an very mild ear ringing, I always had alittle this is just alittle more. otherwise im good blood normal after 1 yr.so then doctor really thought I was nuts, as well as your may start to,all I can say is there are many viruses out there,an unknown viruses, keep working with your doctor keep checking your blood for any signs of problems occurring, an with a lot of luck maybe one day you will be ok, like jammy, an scared. I waste a lot of time fighting just to gets tests okd they don't want to run so called unnessicary tests,due to doctor getting in trouble is what im told.so if your feeling better already that's a great sign im glad just hang in there, again hiv not your problem.work with your doctor on testing for other things it could be trust me there are many.therider
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replied September 24th, 2015
the rider email me ; saad.apply at outlook . fr, i would to talk to u
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replied September 27th, 2015
the rider i got my lab test today, cd4 1157 CD8 994 cd4/cd8 1.16 And am still with sore throat, sweat,fatigue,bad smeel,wasting, red eyes ,back pain ,i don't know what happening inside my body, i feel that am rejected by medecine because NO doctor can give a clear picture and what kind of virus i have, but till now i can not remove hiv from my head because of my similar symptoms with my friend who had AIDS late stage and cd4 five, am going through very hard moment in my life can someone help me
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replied September 27th, 2015
Experienced User
hivtest21; I kow exactly where you are at! you know somethings wrong an has invaded your body but what???? an these cookie cutter doctors who are all trained to treat symptoms an hand out drugs,cant help they are not trained in trouble shooting , you have to go inside your self an pull it together, as I told you its not hiv, that's not your problem, if you have a aids clinic where you live? go down there an talk with them an seek help, where I live those people are real live savers they were very understanding an helpful, the nurse there even did aphyiscal evaluation,try that rider
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replied September 28th, 2015
Experienced User
hivtest 21; sorry had to cut my message short, but my sons an I were going out on lake fishing an had to leave anyway, your cd4 level is pretty close to normal at 1157 normal is 1200, an all these levels kind of do go up an down, your cd 8 level is normal at 994, normal levels are 150-1000 so as I stated keep watching blood levels an seeing your doctor,to monitor your condition as I am doing its all I can do at this point since my doctors, all don't seem to know what to test for,or how to figure out whats going on? I do feel great, an look normal skin clear, teeth good,eyes good,lungs good heart etc. your local aids clinic can help as well I found those folks to be very caring an understanding, an they have seen many people with symptoms that tyest neg an can give kind words of advice wisdom, they know they work with this disease daily, they also have consulting there, they can help. this should ease your mind on hiv, well it 85 degree time to ride!!
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replied September 29th, 2015
the rider , what kind of symptoms am talking about,THEY are very similar to late AIDS symptoms, am afraid to die SOON , because i can't even eat or sleep
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replied September 29th, 2015
Experienced User
hivtest21; you have yourself all stressed out that's most of the problem if you don't believe me google stress symptoms, an see for your self, you, have all neg hiv tests after 90 days, an blood work is pretty much normal, yes something is wrong but its not hiv, or aids, from what the nurse told me, aids,patients; there tongues have a like cottage cheese look, from autoimmune issues. the skin has leasons an is broke out ,also lung issues,very tired an weak. for starters,an lots of weight loss. focus on getting better take care of yourself,supply your body with what it needs, get your rest,drink good water,you will get better. you can do this !! read back a lot of guys felt same as you an months later were much better, better days ahead for you my friend hang in there, you are going to get better!! the rider, stay strong
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replied September 30th, 2015
the rider, i have this cottage cheese in my tongue, my skin has leasons , lung issues,very tired an weak. and lots of weight loss. i have all symptoms in the book; and that's why i can not ease my mind from the AIDS also i have been in many AIDS clinics all said you have symptoms; you are so sick but you havn't hiv your lab tests are negative so your problem is not AIDS; 4 th generation hiv tests negative ; viral load undetectable;and cd4 normal, but my body can not at least heal one infection(oral trush or flu since 2 months.i am seriously in pain and doctors can not give a clear picture
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replied September 30th, 2015
Experienced User
hivtest 21; I too can tell you its not hiv, but man it sure don't sound good? I have never been sick with whatever the heck I got just had mild symptoms then the went away,i feel better then ever right now but wonder if there is something rolling around inside me as well? go online an goggle hiv like virus in china, I can put a link up they will take it down, read up on that an see what you think? that's been going around for several yrs now, an with everyone traveling it can spead anywhere,i know people get real sick from that as well,did they check you for a bad bacterial infection? theres only certain types of antibotics that can kill some of these infections. also some of these endoviruses can make you really sick as well. your blood results an neg hiv tests,would lead anyone to look at other bacterial infections or other viral infections but not hiv/aids. you have to feel good about that. rider
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replied October 4th, 2015
update from my side the rider, am still with oral thrush, wasting,sore throat, lack of appetite, wet skin,fever, heart racing, i run another blood test and all back to normal also run an hiv antibody test,RNA viral load and cd4 count i will keep you posted about the result of these tests soon.
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replied October 4th, 2015
Experienced User
hivtest21; if it eases your mind to do another hiv test then so be it, it will just be another neg test result nothing will change there, im really glad your blood is in normal ranges that is hugh relief.that means theres hope,as well as neg hiv tests, are you sure you have oral thrush? there is something going on with my tongue as well but its not thrush,per doctors they clam its normal but its not never had this thin film on tongue before, wasting, an appetite loss heart racing wet skin fever can be from stress as well,you are really stressed right now, do your body a favor try to relax.trust me you will see better days, yes I agree something is wrong, but try to work with your body to overcome. I am interested an hoping for good results the rider
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replied October 5th, 2015
Active User, very eHealthy
Honest i cannot read every word of recent posts, but been reading on AC the past mos. and thot to share parts from Amazing health site: (i cannot summarize or rephrase now so pls bear with me here, parts).

The form of charcoal used in modern medical science is activated charcoal USP, a pure wood charcoal carbon that has no carcinogenic properties. Activated charcoal is an odorless, tasteless powder. One teaspoonful of it has a surface area of more than 10,000 square feet. This unique feature allows it to adsorbs large amounts of chemicals or poisons. The powder must be stored in a tightly sealed container, as it readily adsorbs impurities from the atmosphere.
What Charcoal Can Do

Activated charcoal is required by law in many states to be part of the standard equipment on ambulances for use in poisonings. Mushroom poisoning, brown recluse spider bites, and snakebites can all be treated with activated charcoal. Doctors also use activated charcoal to prevent and treat intestinal infections, and as cleansing and healing agents.
Jaundice of the newborn, bee stings, poison ivy reactions, and many other illnesses can be helped with activated charcoal. Many pediatricians and pediatric handbooks recommend that activated charcoal be kept on hand as an antidote in the family medicine chest, especially in households that include small children.
Scientific experiments over many years attest to the effectiveness of charcoal as an antidote. In one experiment, 100 times the lethal dose of Cobra venom was mixed with charcoal and injected into a laboratory animal. The animal was not harmed. In other experiments, arsenic and strychnine were mixed with charcoal and ingested by humans under laboratory conditions. The subjects survived even though the poison dosages were five to ten times the lethal dose.
Activated charcoal can be used internally and externally for humans and pets for the following:

Antidote for food poisoning or accidental ingestion of poisons, poisonous spider, snake, or bug bites, or poison ivy
Eliminate toxins that can contribute to anemia in cancer patients
Filter toxins from blood, in cases of liver or kidney disease
Deodorize colostomies and disinfect wounds (shouldn’t be used on open wounds or you may end up with a tattoo)
Remove tartar and plaque buildup when used as toothpaste
Alleviate allergy headaches, minor arthritic symptoms, menstrual pains, diarrhea, painful urination, flatulence, sore throat irritation, flu-like symptoms, drug overdose, cold sores, tooth abscesses, and toxin from foods.
Activated charcoal has no side effects or known cases of any allergic reactions. It has an infinite shelf life if the container is kept closed to prevent adsorption of caustic fumes.
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replied October 5th, 2015
Experienced User
samm; I spent so time read up on this activated charcoal sounds like its great on heavy metal, detox,an digestion,gas ,bloating, an its cheap so im sold ill try it let people know what I think, thanks for info the rider
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replied October 8th, 2015
hi
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replied October 8th, 2015
THE RIDER, i got my lab test today, hiv Antibody elisa negative at 5 months , RNA viral load undetectable, and cd4/CD8 Ratio 1.3 CD4 as the last time and also cd8 , but the strange symptoms killing me seems like late AIDS symptoms, i do not know what to do next.
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replied October 8th, 2015
Experienced User
hivtest 22: let this be your last hiv test!!! as I stated times before hiv is not your problem,yes there something wrong, but for you an me its not hiv.that elisa test is a very good test, so lets work together an move forward, the fact that your blood work is in normal ranges is truly awesome, you should be so happy hiv neg, blood looking good, you have a lot in your favor. I told you better days are coming, an you will get better. I have some things you can test for but cant mention them here, im not a doctor, an they watch what I say here,an have taken down some of my advice in past, if interested I can leave in your mailbox, a good thing for you to do is go back read all the posts, esp tony dewitt, that guy had lots of good wisdom,its very helpful, some of these viruses hit people harder then others, everyones body is different, I very happy to share in your good news, that's awesome, be happy!!!! therider
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replied October 8th, 2015
the rider : thanx for ur comment ,can you plz inbox me some kind of test that i should run, saad.apply at outlook.fr
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replied October 11th, 2015
Experienced User
hivtest 21; I had posted all that info in your mailbox but the folks here took it all down proving once again they don't want us to help each other,so this site is no longer of any use to me an there fore this is my last post good luck , them like the doctors want us all to remain wondering whats going on, therider
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replied October 11th, 2015
Active User, very eHealthy
But why?
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replied October 20th, 2015
Active User, very eHealthy
Now we dont even know whose post that was??
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replied October 17th, 2015
Experienced User
Hello,
how's everybody doing? TonyDewitt, did u actually get any better?

I'd like to know something from the guys who started this thread, too.

My disease is always 'up and down'; I'm currently dealing with a bad neurological relapse.
I'm still convinced this is a sort of retrovirus, but my lab tests showed no gammopathy, which is very weird.

I don't know what to do and don't know if I will every get better.

Is there any hope ?

J
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replied October 19th, 2015
Extremely eHealthy
J,

Thanks for asking about me. The short answer is no, I am not getting better. The long answer is that I'm not happy with the wasting of my body, hair, face, vision, etc. Yes, the initial pain is less, but if I miss a day of my supplements (especially the Curcumin), the pain comes back big time.

Yes, this is a retrovirus, it's called HTLV.

We're all in the same boat, we can't find a test that neither directly nor indirectly shows that we are infected with this virus. Even worse, we can't even find a test that shows we are technically sick in general, as evidenced by your gammopathy and other tests (e.g. sedimentation rate). Yet we all continue to be sick.

We don't have any hope of anyone in the medical field trying to take this on, that's a given. However, we can try other treatments and see if they work. For example someone on this forum traveled to Russia for hyper-thermia treatment - it didn't help, but showed that if we try different things, one of us might find something that will work. Personally I am going on TDF as soon as I can find a doctor to prescribe it for me, and once I am taking that I hope to transition to the more powerful version of it (called TAF) once it receives FDA approval. I am not saying that this will help, but I have to try something, otherwise all I have is despair and rapid decline. For me, that is my only hope.

Our only other option is to try cancer drugs (azacytidine, panobinostat, etc) as possible treatment.

Best wishes.
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Users who thank TonyDewitt for this post: jammy88 

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replied October 20th, 2015
Experienced User
Thank you, my friend.

I've been going hard on supplements, too. I take Vit B, C,D, E, CoQ10, Curcumin, Acetyl-Carnitine and many more…
they've been helping a lot. This is not a solution, tho. In fact, I'm still sick.


I hope we can get better, one day. If people who got AIDS in the 80s are still here nowadays, I think we can make it, too. Hopefully.
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Users who thank jammy88 for this post: TonyDewitt 

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replied October 20th, 2015
Extremely eHealthy
You're welcome, my friend. I applaud your use of supplements, especially Curcumin, CoQ10, NAC, and vitamins C & B. Recalls that Prosultiamine is a derivative of vitamin B, and is active against HTLV.

Hopefully your extrapolation on the AIDS epidemic will apply to us also as long term suppressors. But you can imagine how many people this virus has already killed, who are labeled with "long term illness" on their death certificates.

Best wishes.
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replied October 20th, 2015
Experienced User
TD, have you tried Tretinoin for face wasting / dark circled-eyes? Worked pretty good in my case. You might wanna try it. (it's basically Retinol Cream)
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